I am battling ESS for the 3rd time. This is the second time in my lung. They say it is inoperable. I tried Tamoxefin and that did not help. I am now on Arimidex. I would like to know what sarcoma hospital you go to? Also I tried to join the support group you mentioned. I haven't heard anything. Is there something else I need to do? Thanks for your help. Jane