My husband was just diagnosed last week. Highlighted areas showed up on his MRI back in January when he first started having seizures. No one knew what they were and waited until 7-1 to do a biopsy. When a few more highlighted spots started showing up. We have been told he is inoperable.They still have not been able to get his seizures under control. He is very healthy other than that. He has very limited short term memory. Sometimes I think its selective. (humor for myself) He is 43 and we have six children, three biological and three adopted.
We go into UCSF on Tuesday to hear all the statistics and treatment plans. We have told him he has a tumor but I think that is one of the things he doesn't want to remember, so now I just tell him he's fine (praying he will be). I will be letting the doctors know he does not want to be in the room for the meeting. He wants to sit outside and look at the view. I guess the reason I am writing is I want to know everything there is to know about survivors. (In fact right after we were told of this the only question I could think of was has anyone survived? Then I got stubborn and didn't want to hear any more at the time.) But I would like to know what kind of medicines, foods, exercise, vitamins, whatever there is out there that could help, but more so, did help. Please let me know. I found this site to look for hope. I have found some. But I need more.
Thank you,
Stefanie