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Looking For Glioblastoma Multiforme Stage 4 Survivors (Brain Cancer)

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Caregiver
Caregiver
Meglr11983
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Subject: RE: Looking For Glioblastoma Survivors Stage 4
Date: 04/16/2007

Hi everyone,

This is the first time i've reached out for information, but i figured i would give it a try.  On April 13 (Friday the 13th), my father was diagnosed with a Glioblastoma Multiforme in his left temporal lobe and partly in his thalamus. He is 50 years old.  It is an inch and a half in diameter and the doctor stated that becuase it is so deep in his brain, they would cause more damage trying to remove the tumor than leaving it in there.  He is going to start radiation and chemo in the next week and  half or so.  He will be taking the pill form of chemo. He had no visible symptoms - he would slur a word every once in awhile and forget how to do things.  In the three weeks since he approached his doctor, his speech has gotten worse and he has weakness in his right side.

I guess what i'm looking for is support, information on how your families made it through this.  I know we have to stay positive and keep hoping for the best.  It seems that everyone on this board has had a craniotomy, which is impossible for my father.  I would like to speak to someone who who could not have surgery and what they went through.  Even some coping mechanisms would be great. 

 My mother, his caregiver, has been great with him.  When she is not with him though, she's in shambles.  Understandably.  She has not been on her own her entire life and has been completely dependent on my father for the almost 30 years they have been married.  She's having a very hard time with this, and i don't know what kind of support to give her.  I can not help her, as i am 2 states away and we have never gotten along.  I know i should stop being selfish and get along with her, but it takes two to tango.  I am worried about her as a caregiver for her health and sanity.  She has high blood pressure, is a worrier and flips out about the smallest things even in times of low stress.  What kind of advice can i give her, or provide for her in this very difficult situation? 

My father is n the care of the Chief Neurosurgeon at Dartmough Medical Center, Dr. Roberts and his oncologist is Dr. FAdul - a world renowned neurooncologist.

I'm just looking for hope at this point.  Some sort of positive note.  He has 2 daughters and 2 beautiful grandaughters and was finally happy and peaceful with his life.  Please, please help.  I am desperate at this point.

you can email me at 

--- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

 if you would like.

 Thanks,

 Megan

Messages History for "Looking For Glioblastoma Multiforme Stage 4 Survivors (Brain Cancer)"

  1. Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  2. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  3. RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  4. Gbm Survival
  5. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  6. My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  7. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  8. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  9. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  10. RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  11. RE: RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  13. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  17. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  36. RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  68. Looking For Glioblastoma Survivors Stage 4
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  109. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  117. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  119. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  120. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  121. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  122. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  123. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  124. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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