Megan,
I am going through the exact same situation as you. It is helpful to know someone else is out there with similar circumstances. I have looked and looked all over the internet to try and find survivors of Glioblastoma Stage 4 but have yet to find one.
My dad was diagnosed with a brain tumor the day before Easter of this year. We found out two weeks ago that it is inoperable. Needless to say, we were devastated. He is going to be taking chemo drugs and radiation next week.
It would be nice to keep each other informed of how our situations work out. I wish there was more information out there about people surviving without surgery but it is few and far between.
Take care,
Dana