Hi there,
My mum has just been diagnosed with GBM4 only about three weeks ago. She presented with poor vision to the eye specialist, who then ran some tests, which showed that there may be a blockage some where in the brain. She was then sent to get a CT scan and this showed 2 tumors, one in her frontal lobe, and one on the occipital lobe.She was immediately reffered to a neurosurgeon (Dr Michael Biggs - Sydney NSP) who addmitted her into hospital and she had 2 surgeries, to remove both tumors.
She is back home today, and i must say is doing really well, her word finding is a little off, and her vision not the best, but she has had no paralysis, or seizures, and is in good spirits.
Mum has started her Temador 120mg and Radio therapy, and so far no bad side effects... just really sleepy at times.
There are survivors out there, and i keep this in my mind all the time... i belive she will beat this.
If there is any one out there in OZ, or wherever who would like to talk about this situation, and is new to the whole GBM4 thing, please i would love to hear from you.
Love to all
Gilda