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Looking For Glioblastoma Multiforme Stage 4 Survivors (Brain Cancer)

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Subject: RE: RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
Date: 01/21/2003
Thanks for your interest. I think I mentioned my wife is a diabetic and is currently on lots of medication. We kept an appointment at Duke Medical Center on 1-9 and met with an oncologist. A psychologist also tested her. She did not do well with the testing. The interview with the oncologist was helpful because she went there very tired and spent much time sleeping day and night. They had taken her off a steroid medication in mid Dec. and upon seeing her decided to resume that medication. They had the benefit of an MRI comparison using earlier Oct. films with one done in the middle of radiation about Dec. 15. They claimed they thought the tumor had stabilized from new growth, were not real sure, but decided the medication would help giving relief to inflammation thus allowing her to get back an appetite, also possible better progress with writing loss, puzzle solving, visual benefit, more positive walking (she was being interviewed in a wheel chair and had insisted on that help from where the car was parked). They suggested a respite from further chemo treatment and ordered blood counts once a week for 3 months and a metabolic comprehensive blood test once a month. They did indicate they were going to switch her from temodar chemo treatment to a process called ccnu. The reason given was to keep any tumor growth from developing immunity to the chemo treatment. The ccnu has not started as yet. Also, her platelet count dropped to 25000 a few days before going to Duke which required infusion of an outside supply. The latter also had something to do with the Duke decision to hold off on further chemo treatment. Thus, we are waiting to hear if they will resume the chemo. In the meantime my hunch is that Maggie is slipping away more and more. We had an MRI done on Thursday 1-16 and we are waiting to hear from Duke what their analysis is. I wish I could be more helpful. Andrew W.

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  1. Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  2. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  3. RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  4. Gbm Survival
  5. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
  6. My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  7. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  8. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  9. RE: My wife Diane is an 8 year Grade 4 Brain Cancer Glioblastoma Survivor
  10. RE: RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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  27. Sulfasalazine For Gbm !!!
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  68. Looking For Glioblastoma Survivors Stage 4
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  109. RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)
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