Just found this cancer compass again..husband dx 6/11/04 with GBM IV. Need information on how other GBM warriors are doing...Max's tumor has been dormant since Jan 06...but, we keep having complications. First we ended up in hospital in June due to heart rate of 38..ICU for 2 weeks..they seem to think it is the way that the brain was communicating to the heart...living on meds for this now...recently we are having many other problems...talking in sleep having a one sided conversation...thinks his father is still alive...passed over 15 years ago....out of the blue during sleep he will come out with numbers.....having problems forming words...cannot complete his sentence....having a hard time understanding things....some time he does not know what clothes are what....legs are strong enough...but, brain is not commnuicating in order for them to work properly...in the wheel chair more and more each day...we seem to be going down hill all the time...even though the tumor is dormant...are any of the other GBM patients having these problems...Max is 68...can no longer read due to loss of eyesight...cannot keep up with what is happening during a movie. His tumor was in the right occipital lobe...cannot do anything around the house....just need some information....on what to expect...I am so thankful to still have him..I just want the best quality of life for him. Please any information that any of you have will be very helpful.
Thanks
Judy