Hi to all those who have written in over the last few weeks. I was diagnosed with Fallopian Cancer in June 2003 after a complete hysterectomy for what appeared to be a cyst on my ovary. The pathology report showed that the cancer had started in the fallopian tube and spread to the ovary. I had a complete hysterectomy followed by 3 months Carboplatin & Taxol chemo treatment, then a second operation in which my lymph glands were removed plus (can't remember what it's called) but they take away more of the surrounding tissue/muscle to make sure nothing is left behind. I then had my remaining chemo treatment which finished at the end of December 2003 (I couldn't have my last treatment as my immunity was too low. I had a very low tolerance to the chemo and was really ill though my oncologist said that everyone reacted differently but that it didn't seem to influence results one way or another.
I am still in remission and go again in November for another check.
Please all stay positive. This cancer is treated the same as ovarian cancer so you may get some help from their discussion groups.
The main thing seems to be to have a good gynaecological surgeon who is thorough and doesn't leave anything to chance and of course, a reputable oncologist. As I live in New Zealand I cannot recommend where to go for medical help.
As Davria C says, it is very scary, but her CA125 is down to 4 and that's a really good sign - the lowest mine has been is 14 but that's well within the accepted level.
Anyway good luck to you all and I will be thinking of you. Judy