Hi, Jill...sorry it took me this long to respond. Yes, the Topotecan has been working for me...it's been a year last month that I've been taking it. The only thing that I've noticed just recently is that I've been getting EXTREMELY fatigued by the 3rd treatment. So, since my blood counts and CA 125 are good, the doc and I have decided to try giving me an additional week in between treatments. In other words, I was taking Topotecan every third week...now we're going to try giving me 3 weeks between treatments, to see if that helps.
I would really hate to stop the Topotecan because it's been going so well for me. So I've decided that even if I have to have 5-6 days of being extremely fatigued I can handle that. I'll just planning on staying home and resting. I'll just rent some videos from the library, and I also have some books I want to read. After all, that's what I did when I had chemo the first time. On the day I had chemo, I'd go to Blockbuster afterwards and rent 9-10 of their cheapest movies and spend time watching them. I've always been a movie buff anyway!
When I had chemo the second time my cancer came back, I'd go to the grocery store ahead of time and stock up on things I could heat up in the microwave, because I knew that I wouldn't have the strength to cook anything -- geez! I barely had the strength to walk to the bathroom for 5 days, and hey! I live in a studio apartment!!!
You know, "you gotta do what you gotta do," right?
I love you, my sister, Oby