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Thalidomide (Thalomid)

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Subject: Thalidomide (thalomid)
Date: 06/25/2003
Hello out there. Is anyone taking Thalomid (thalidomide) for multiple myeloma? I have been on it since Aug 2002. 50 mg qd for 3 months then reduced to 50mg qd and now back up to 50 mg qd. I just turned 50 and was diagnosed in Oct 2001. 10 months of chemo didn't work so I was unable to have transplant. I also have Multiple Sclerosis, which was in remission until I started taking the Thalomid. I have gained 50 pounds since I started Thalomid. I stopped gaining when the dose was reduced to every other day. Now that I am taking it every day I am starting to gain more weight again. I know that weight should be the least of my worries but I am finding it hard to do normal stuff due to the increase in weight gain. Is anyone else having the same problem? My only alternative is Revimid but I can't get it until the Thalomid stops working. The worst of two evils. The Thalomid is keeping me alive but it is also causing me to be fat and crippled. I am laughing as I write this. Got to keep a good sense of humor with this. So please, I hope know one is offended. I do try to swim daily and watch what I eat but it doesn't seem to make a difference. The pain from the peripheral neuropathy is terrible. I have started taking neurontin, which has helped a great deal. I would welcome any input.

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  1. Thalidomide (thalomid)
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