Hi Maura! I saw my blood doctor today for the first time since starting meds (Hydrea)- my #s are back down in the low 600s (when I started at the end of Feb. they were 1.5 million) and one of the questions I asked was about flying because you said your dr. said not too. He has no idea why you were told that unless it was something to do with some other medical problem you have. He told me that flying isn't restricted for ET diagnosis. You are lucky you live close to MD Anderson - they are on top of the pile and known the world over for innovative treatments. I know you will find a good dr there - on their website they have a number of clinical trials listed that maybe you can get into.And they also have 3 drs that specialize in chronic blood diseases. Please keep us posted.
Michele - I asked my dr about the fatigue also and he said that in my case it is probably the Hydrea since I didn't have it before I was diagnosed. You just have to hang in there and try to live through it. Some days I wake up feeling tired and if I make myself go out and do errands I usually feel better. Some days it is harder than others but my husband always reminds me that there are so many people that have it worse health wise than I do. I am thankful that its all I have to deal with.
Keep in touch you'all!
Barbara