I myself have neuroendocrine tumors (insulinoma). I have had the LU-octreotate over in the Netherlands. It helped significantly. I began getting worse last fall, and went on avastin and carboplatinum and abraxane and it shrunk things down well. Things are starting to grow slowlly so I am going to be on the clinical trial using RAD001...in Houston. If you want to correspond w/ me, please email me. Good luck. Taj Brown (7 yrs w / NET)