It is so good to hear from someone who has been living with this cancer for so long. I am just so worried that the doctors will tell my mom she only has 6 months to a year. She is only 56 and i can't imagine living without her. I still need her and am not ready to let her go yet. We really don't know much about my moms condition. We live in a small town here in kansas and the doctors have never seen this cancer before. So they are sending her to houston. She has her first apppointments this week with the doctors there. I will let you know what they tell her then.