Hi there. I am so sorry this sounds so familar its scary. My son is 5. Chronic ear infections. Antibiotics for a year. Then hx of hospitalizations for croup, pneumonia and rotarvirus. For the last 2 years he has been having abd. pain. We did all of the food elimination with no success. Ruled out celiac as well. He has had a colonoscopy, upper endoscopy and ct scan. He did get dx with inflammatory bowel disease (chronic but slight) he has been on several meds for this but no success. They also found a severely enlarged lymph gland within the colon. He still has abd pain every day. Sometimes he will burst in tears doubled over and sometimes he tells me that it hurts but he is ok. Pain doesn't last long. He had one enlarged lymph node on his neck for 3 years that they were "watching" . Now there is a second big one and also a smaller one. Blood work has been wacky several times. Dr. said that it showed that the bone marrow was stressed. I said to him that we know that it is not cancer and he just said actually we don't know that. Nathan has missed a ton of school (lucky just kindergarden). Teacher is very worried as she used to work with sick kids. She is now documenting all. He is very pale and has been very low on the growth charts. Went one year without gaining any weight. Finally gained a pound when added ensure to diet. He sleeps all the time will take a 2-4 hour nap on weekends. He bruises easily and has had rectal bleeding and a few bloody noses. He complains of testicular pain at times along with leg pain. He doesn't eat very much and he is pale and gaunt. Looks worse since Sept. At Halloween we found the coolest batman costume (his fav.) and he went to one house next door and then asked to go home and lay down as he was too tired. I also feel like the dx that we have isn't the end that something else is going on. Our peds said to go for a second opinion. I can pick up records from GI in two days. We are trying to get into childrens hosp. but it is a 3 mo. wait. UGGG. I don't want to be dealing with this and not knowing when he is 10. I am so sorry that you are going thru this too.