I was just reading your postings to each other and wanted to share my findings. I've been on 5 rounds of the sutent. It is working for me too. I started with stage 4. Kidney,lung and brain. It didn't look good, we got 4 opinions before we found the right doctor. I live in WA state, I doctor in LA. It's a lot, but so well worth it. I have had numerous surgeries also. The gamma knife is wonderful for brain tumors. I've had numerous tumors treated with excellent results.As one of you said, find the most aggressive dr. that you can. It's the best option for a longer survival. I, too have had numerous CAT and PET scans. And MRI's galore. It's most important to find a fantastic Neurosurgeon besides an oncologist. He's not an expert on brain tumors. But he is an expert on RCC. I had whole brain radiation. It did nothing. I had a crainiotomy which got the larger tumor.I had my right kidney removed, gall bladder, portions of both thyroid and pancreas. The sutent has shrunk what is lest in my lymph node/lung area. My problem thus far is that the brain keeps kicking up small tumors. That is where the gamma knife is a god send. But you have to find a Gamma Knife unit that knows what they are doing. I go to USC in So Cal.for that. It's amazing. I will be 3 years out in December. It's quite a disease isn't it?
I would love to hear from you both and hope that your husband has found the direction he needs. I also am so glad to know that some else is having good luck with the sutent. I have some side effets from it and wondered if you do?
Thanks in advance to letting me horn in on your convo.