I lost my dear sweet mother 2 weeks ago to this monsterous disease. She fought a valiant fight, almost 4 years from first diagnosis. After the hysterectomy, it reappeared in her right lung 2 years later. After removal of the lung, it spread 18 months later to her vaginal walls. Surgery was not an option, and radiation and 2 rounds of chemo just made it worse. Her doctors admitted they just didn't know how to treat MMMT. Her final days were spent in a wonderful hospice care center. I have no doubt where she is right now, and every tear I shed is for me. I miss her. I'm going through the "anger" stage now. I'm trying to get more info on heredity factors. I had a hysterectomy due to large benign fibroid mass 8 years ago, but fear for my two daughters and my sister.