It is with out a doubt the most difficult time in life! I have had one surgery to remove belly button and half of bladder. It has only been five months since and I had 2 CT scans one in Nov. and one in Jan.and they are showing thickening at the site of the surgery. I have 3 boys which makes this decision part easy , so I can contuine to be a mother. I am only 35 and wonder how my life will change with a neo bladder. I have been told this is such a rare cancer that the only cure would be to have the whole bladder removed at this point. I also had lymph node involvement and they will get as much of those as they can along with all female parts. I hope someone would be willing to respond back! I If feel so alone right now.