On 1/13/2007
Rozelle wrote:
Hello:
My Mother was just diagnosed with nasopharyngeal cancer. We will find out the biopsy results on Tuesday. They did a ct scan of the neck and said there was nothing there. Can anyone tell me anything about this. They are saying no surgery just radiation or radiation and chemo. We're all so frightened. Could you share your experience with me please.
Thank you.
Angel
My husband was diagnosed with nasopharangeal cancer in october - unfortunately it had already gone to both sides of his neck and metatasized in his bones. we have been encouraged by the first chemo treatment....(two days of cistaplan and three days of 5FU (they wouldn't give him any radiation either) They also began giving him weekly treatments of Zometa (which we understand is to stregnthen his bones and help with pain management) Unfortunately the 5FU broke down the veins in his arms too bad for us to be able to do the 5FU this time (we are on a 21 day cycle of chemo) so we went in last week and did two days of Cistaplan and then they sent us home with two weeks work th Xoleda which is the pill form of chemo... My husband only lost his appetite the the third day during the chemo treatment and was week for a week after that... but this time he lost his appetite and hasn't gotten it back. I think the Xoleda is making him sick... but they put a port in this last time so we can do the Cisplatin and the 5FU the next time.... tell your mother to get her port put in before her second treatement..... it's VERY important. Our doctors told us that the 5FU is very rough on the veins...... Let me know how she is doing .... Did they tell her if the cancer had metastasized anywhere. We are dealing with it in my husband's spine, hips, shoulders and sternum... but he is keeping his spirits up.... we have two teenage boys and he is determined to see them grow up.... I wish you the best. If you are your mother's caregiver... hang in and take care of yourself...My husband can't work anymore so i am the only one working... plus dealing with the treatments, etc.... ASK QUESTIONS...... LOTS OF QUESTIONS. and try to keep your head up..... it's rough on ALL of the family.... let me know how your mother does.