Hello my name is Beka I am 33. When I was 32 last yr 06 in May I was diagnosed with cholangiocarcinoma. I was told it was inoperableand was told that sometimes this cancer doesnot respond to chemo but they said we were goingto try. I was terrified and morbidly depressed.
I am oneof 40% that respond positively to c hemo (I'm on epirubicin, cisplatin and flourouracil) my tumor after 6 treatments has shrunk from 11cm down to 6 cm. Now I'm on a maintenance plan. Having Flouro on ts own. My oncologist calls me her miraclegirl. I am allowed to do some teaching with kids now as my immunity is better not being on the otherharsh chemos. I have a fantastic quality of life andI have heard of a guy who has the same cancer as me on the same treatment and he is still going after having this cancer for 14 years.There is hope. I know there arepeople outthere suffering. This is my first time on this site this is the first time I ever typed cholangiocarcinoma ingoogle. I have been afraid all this time. All I can say is my heart goes out to everyone being impacted by this disease. I have been praying for everyone else who is suffering from or impacted by cancer . I hope you all keep praying too. It helps as itreally comforts me I hope I give hope to you.
Sincerely, Beka