Hello to All,
I am new to this site and find it truly inspirational. I am a 41 year old male and was diagnosed with LMS in August of last year. Had total resection of 18cm tumor from my abdomen. Removed my entire stomach,spleen and 30% of pancreas. Played golf five weeks after surgery--truly a gift from God. Seven weeks post op Received radiation to the tumor bed in abdomen daily for 6 weeks . Nausea and some additional weight loss, but another blessing is I've had a feeding tube (G-tube) which my wife and I decided to keep even when the surgeon said it was time to remove. It has helped me to supplement my nutrition during radiation. Finished radiation in late November and just had my first post op CAT scan. Got results last week and we were devastated to learn that I now appear to have a 2cm tumor on my liver and have a suspicious place on my kidney and diaphram. Have PET scan tomorrow to clarify and meet with my local oncologist on Wed to discuss results. My local oncologist does not seem to be to optimistic when he delivered the CAT scan news. By reading other messages tonight, I have decided to seek out a couple of the top Sarcoma centers (MD Anderson, Dana Farber) for second opinions no matter what the results from the PET. Thank you all for your messages that date back some couple of years.
Now that I am in the metastatic diagnosis category, I am searching for any and all the advice, support and prayers I can receive. It would be of tremendous help to receive some feedback?
God Bless,
Chris