On 1/25/2007
Paul uk wrote:
Hello All
My name is Paul and I live in the UK. I was diagnosed with ET five years ago, although I was only told about this a couple of months ago and over the Christmas period I have had to have weekly blood test as may platlet and white blood cell count has been rising constantly as of late.
You seem to talk about this more in the US and have better understanding.
My left arm becomes unable to use for upto 30mins a day as it goes numb, very hot, and starts off by changing colour until eventually it goes a purply/grey colour with pale blotches and all my veins stick out and become solid. This happens several times a day and I have been trying to discuss this with my Dr and to find out if this has anything to do with ET but I never get an answer nor do they wish to investigate or discuss this matter.
If anyone can help I would very much appreciate.
Very Best Regards
Paul
Hi Paul,
I have a couple messages posted regarding my 14 y/o daughter. Look in Thrombocythemia on this message board. Maybe the info will help you out. New to this also. But all info is good info. If you need to talk...whitford01@comcast.net