Latest Bone Cancer discussions http://www.cancercompass.com/message-board/cancers/bone-cancer/1,0,119,16.htm Sat, 05 Jul 2008 00:00:00 GMT Sat, 05 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ hi i am new in writing i hope you all wont mind. i sick with worry as i have been diagnosed with bone cancer. i have had breast cancer  about 12 to 13 years ago were both my breasts were removed . i have also had my womb and ovaries removed as well nothing to do with cancer it was more of a safety measure,in case it spread the doctors thought it was a good idea. so i have had early onset menapause,last year in august in fell over in the bathroom right on my bum my spine hurt like hell then everything was fine. in january this year i went for a normal checkup for the breast and i mentioned i had fallen they sent me for a scan which came up with my upper back in the spine one veretbrae and lower back had cancer including the spleen which had a 7mm lesion.  two weeks later they tell me that the lower back had no cancer just mild fracture. during the time i had requested for a second opinion at a cancer hospital. they confirmed that the one of the vertebrate  had cancer but the spleen even though it had a lesion it was not cancerous.  so at the end of it from having cancer at 3 places it has come down to one place.  i am so confused. i have a daughter who is very close to me she is 14 years old and i know i would love to see her graduate. she is not very close to her father . we have giggles and all the things mothers and daughters do. the doctors have told me 10 years but how do you deal with it has anyone been dianosed and how have you dealt with it. are there any other treatments available to prolong . i feel very alone please advise  ...     http://www.cancercompass.com/message-board/message/all,25214,0.htm savithri Thu, 19 Jun 2008 00:00:00 GMT hi guys, er sorry am new to all this i need help and advice. litlle bit of history here, i had cancer in the breast both side in 93 said it was easy to remove they did and reconstructed it with fat from tummy. they removed both my breasts. two years later due to the fault of the surgeon he had left two stray cancer cells to which he admitted, two 10mm lumps were removed in 96 then 99. i have been fine after that during which time i also had radiotherpay and chemotherapy.i have have early onset menopause due to the removal of the womb and ovaries that was not cancer it was during childbrith. so i have arthrtis and osterporosis has well. but genrally i am fine . last october i fell over in the bathroom on my bum dont laugh but my spine hurt lots for about two days then i was fine. but like a fool i opened my mouth during  my routine checkup  at the hoispital in january this year and the doc said oh lets do a bone scan, they then say yes there are two marks, one my spine the other t4 or something like that.i feel they taking whats in my file and going along with it without listening to me, my x-ray is fine my bloods are fine they havenot done any needle biopsy or anything of that sort. they are adammant its cancer and wont listen,want me to start bisphonates and exmemstate which is a hormone surrppeseant. is this bone secondries or primaries because i have no breast cancer. and what is the progonsis are there new treaments available.. ihave a daughter, will like to see her grow up, sorry for bad spelling. http://www.cancercompass.com/message-board/message/all,22293,0.htm savithri Mon, 24 Mar 2008 00:00:00 GMT What does that mean?  My mom has bone cancer and this is what the Dr. told us.  They have started Rad. on T1 because of the pain and tingles in her fingers.  She also had pain in her left hip, the Dr. only decided to start Rad. for this a week later because I asked.  Now she has about 10 treatments left and he is talking about Taxol/Carboplatin Chemo treatments.  I now know what Maltipal foci means, but how long will she be able to make it? http://www.cancercompass.com/message-board/message/all,21746,0.htm kareng Thu, 06 Mar 2008 00:00:00 GMT Anybody being treated for Desmoplastic small round cell tumor.??I understand it is rare disorder and nobody has any experience with it.Sloan Kettring claims claims they have treated six cases with high dose Cytoxan, but no follow up after six months. They dont know whether those patients are alive and or dead. Interestingly some of the inexeprienced centers using this high dose therapy without ever used this high dose Cytoxan 4500 mg dose which is horendous dose. One group tried in Columbus, and as they described the patient became a pulp and died. So always ask questions. The physicians have the power to put in a way that we may feel like that is the only way to go. When it comes to DSCRT if you ask any Oncologist they will not forth right in admitting that they do not know about it and instead will say " yes I have treated" One has to be careful just not to take the face value. A good doctor with great personality and manners can talk you into doing these extraordinary treatments with yout so called consent which covers their butt to cover for anything.Dr.Bill http://www.cancercompass.com/message-board/message/all,21172,0.htm DrBill Thu, 21 Feb 2008 00:00:00 GMT Has anyone here dealt with chondrosarcoma. My sister in law was diagnosed yesterday.  There is not much information on the internet and little or no info on nutrition or alternative or complimentary therapies.  She was so shocked at the word cancer, she is not quite sure all that her doctor told her.  She did understand that she will have a short round of chemo and then surgery and that it looks contained to one area of her shoulder.  Any information will be greatly appreciated.  I joined this board back in mid 2007 when my husband was diagnosed with stage IV colorectal cancer and everyone has helped so very much.  Just as he is entering remission, his sister is hit with this news.  Please help if you can.  We are just starting to research this particular cancer and there just doesn't seem to be as much information as other cancers.Please pray for my sister in law (Tammy).Thank youMelinda http://www.cancercompass.com/message-board/message/all,20722,0.htm quickdraw Thu, 07 Feb 2008 00:00:00 GMT please help me, my friend is experiencing pain and i dont know if its arthristis or cancer. its really making me paranoid!!! http://www.cancercompass.com/message-board/message/all,20704,0.htm worrying Wed, 06 Feb 2008 00:00:00 GMT Hi all,  I am desperately searching for help for my Dad - he was Stage 3B esophageal - in remission for about 6 mos. - now with aggressive mets to his hip and sacrum.  I know the outlook is grim, and I suspect there are possibly problems in his lungs/liver - getting a full body pet on Tuesday.   Anyone with any idea how to halt this??   Please help! http://www.cancercompass.com/message-board/message/all,20584,0.htm macybean Sat, 02 Feb 2008 00:00:00 GMT Hi ... I'm new here and a little bit worried.  I have a "bump" of some kind on the bone where my wrist bends.  It's on the outside.  It isn't soft as I read a ganglion cyst is.  How would I know if it is bone cancer? http://www.cancercompass.com/message-board/message/all,19650,0.htm Hamumlo Sat, 12 Jan 2008 00:00:00 GMT Does anyone know if bone mets from kidney cancer is treatable and to what extent?I wonder what radiation does to the bone,does it kill the cancer in the bone?How about Sutent ?But surely RCC would pop back up in the bone anyway?Do the bones link the cancer to everywhere like the lymphs?Is anyone knowledgeable on this subject? http://www.cancercompass.com/message-board/message/all,19608,0.htm knowledgeispower Fri, 11 Jan 2008 00:00:00 GMT my mom was diganosed with endometreosis about a year and a half ago. she had to have all of her female organs removed , and they removed some lymph nodes from her spine to be tested. she did not have to have cemo, she has had to follow up with the doctors every couple of months. the doctors still perscribe pain meds.and run test. The doctors are now running test because they think she may have cancer in her bones. my mom hides alot about this sickness from me. she says shes not going to  except treatment if she does have it. and shes not sure she will tell me the results. does anyone know what the life exspectancy of bone cancer without treatment is? what can i do to help my mom through this?she wont share information about her sickness with me, but i dont want to be clueless. will someone please help me with what to exspect. http://www.cancercompass.com/message-board/message/all,19599,0.htm onlychild26 Fri, 11 Jan 2008 00:00:00 GMT dad has bone cancer just diagnosed the cancer is supposedly in his liver and in the past 2 monthes he has lost 35 pounds the say he has diabetes all of the sudden his eyes are yellowish orange and the docttor said he is too far gone for treatment I am devastated and dont know what to do or what to expect 3 months ago he seemed healthy and hurt his foot and its been awful eversince he is only 56 please help me with any info please  http://www.cancercompass.com/message-board/message/all,19592,0.htm bonecancspread2liver Thu, 10 Jan 2008 00:00:00 GMT Hello.About 4 months ago I started getting a throbbing pain and now four months later I have the throbbing pain in certain parts of my legs. It feels like the pain is coming from my bone. I get the pain (left femur/ hip, left knee and right shin bone.) I am always really tired and the pain is often worse at night and sometimes it hurts to walk. My doctor is sending me for X-rays because he said there is a possibility.Has anyone been through this and know they symptoms? Does it sound like I have it?  http://www.cancercompass.com/message-board/message/all,19051,0.htm Annaxx Fri, 21 Dec 2007 00:00:00 GMT My brother was diagnoised with prostate cancer with mets to the bone stage V1 last April. If there is someone here on the message board that knows someone or themselves is also in stage V1 secondary bone cancer, we would so appreciate hearing from you and how you are doing and what treatment you are in. Thanks so much in advance.     Sincerely Gracie  http://www.cancercompass.com/message-board/message/all,18740,0.htm gracey Sun, 09 Dec 2007 00:00:00 GMT My Mom was diagnosed with pancreatic cancer in July 07 that metasticized to her bones.  Her journey ended on Nov. 4th.  She started with radiation and then went on Gemzar (chemo).  The cancer in her bones was in her hip, right shoulder, and ribs.  The pain she was in was excrutiating.  She was pretty much bedridden the last 3-4 weeks due to the pain.  She always said, "if I lay still it doesn't hurt."  Hospice was wonderful and did provide the pain relief that she needed as well as the emotional support for the family.  My mother was a very positive and strong woman and it was horrible to watch as the cancer took over her body.  I miss her very much but am grateful to know that she is in a better place and painfree. http://www.cancercompass.com/message-board/message/all,17863,0.htm suestl33 Sun, 11 Nov 2007 00:00:00 GMT My hubby has been battling this for a year. He's been better, until August and he had an overdose of Pain Patch, so we had a set back of chemo. The meds and chemo damaged his heart, so we took a month off of treatment. Its now time to start back so we had his first Pet Scan done yesterday  to find out what to do next. Its spread to at least 10 other spots in his bones, His left hip, he already had it in his right hip, his right ribs, he already had it in his left ribs. Pretty strange to us how it spread but it did.. He's upset. But we are marching on.. He has been riding his horses and his comment yesterday was well, I guess they will have to get me a lift so mount me on my horses, cause I'm gonna ride them.. He's still fighting.. not giving up.. Just please keep on praying for us.. Please.. They also are going to give him a shot in his spine to help with about 5 spots to "kill or break up" the cancer with hot plastic. Has anyone heard of that? I thinks what I understood. We had so much new information yesterday it was overwhelming.. I wished I had taped it.. thanks for listening and checking in... Ms C     http://www.cancercompass.com/message-board/message/all,17844,0.htm Mscheryl103 Sat, 10 Nov 2007 00:00:00 GMT My Mom had breast cancer 15 years ago when she was 58 and was treated with mastectomy, chemo and 5 years on Tamoxifen.  Within a year after finishing Tamoxifen, a malignant tumor developed along the mastectomy incision line. This was removed, and treated with radiation and 5 years on Arimidex.  She had annual follow up with her oncologist. Several months ago she started to have intermittent back and rib pain which she attributed to possible arthritis and overdoing physical activities.  She went to her family MD for Celebrex and he ordered a body scan.  I was with her the day the doctor's office gave her the devastating news that her breast cancer had spread  and was present in almost every bone in her body including her skull.  It also had spread to four small area in her lungs.  She was suspicious that the results would show cancer rather than arthritis but we were both shaken to the core with the extent of the disease and comparably little outward symptoms.  The oncologist started her in April on Arimidex again and IV Zometa monthly. Her pain is controlled with Celebrex and limiting her movement on worse days but her tumor markers have increased each month.  She is seeing the same oncologist who has treated her for 15 years but since I have gone to these latest visits, I am concerned and agitated regarding the care. The first visit resulted in the oncologist looking for a copy of the labs that were drawn the week before by the family doctor who lives closer, and copies are sent to the oncologists office to determine if the IV Zometa can be given.  He was agitated and kept looking at my mother and then at me asking in an irritated voice "Where are my labs, where are my labs? All I do all day is look for labs." Finally I told him that my mother had gotten the labs drawn the previous week at he family doctor's lab and they should have been faxed by now and if they were not on the chart, then his office staff should call the family doctor and have the results faxed stat because as a patient, my mother had completed her resposnsibility by having them drawn to begin with.This doctor is a one man show, with far too many patients to handle and can be abrupt and incomplete with answering questions, since he spends only 5 minutes per patient checking that their last labs will allow the start of the IV treatment which follows his 5 minute visit and approval.I do not know why he has no associates, physician' assistant or nurse practitioner to spread the work load and assist with a more personal aspect of rendering care.  After the treatment, the nurse gives the patient the written order for the next labwork and treatment and the scheduler sets up the appointment and you're out the door.  This time as my Mom was having the IV started for her monthly Zometa, the oncologist flagged me down in the hall and wanted to show me that her tumor marker had risen again and wanted me to talk to my Mom about what she wanted to do, which I thought was really his responsibility. He was in such a hurry that I had to ask him what options should I mention to her of which he said "either another hormone or chemo " I wanted to know specifically what hormone he was recommending as well as what chemo either oral or IV.  I was shocked when he told me that all he wanted from me was an answer from my mother -either hormone or chemo - because specifics didn't really matter "because she has it all over...it is everywhere!" My mother chose the hormone, which when we got the prescription, it turned out to be tamoxifen that she was on 15 years ago upon the original diagnosis of breast cancer. She said she would try it for a month and see what her tumor marker is then, but he wants her to be on it for 3 months.  If there was another oncology group in the regional area I would encourage my Mom to switch even due to the undignified treatment of people who for many are in the process of dying faster than they are living.  Her tumor marker has risen to 358 but he has never said which specific marker test he orders.  In April he mentioned that if hormones were not effective, he would use oral Xeloda so I am confused why he even mentioned trying another hormone and not recommend oral chemo next. I will get specific answers from this man during the next visit no matter what it takes! I'm upset about this kind of treatment especially when you are dealing with physically and emotionally vulnerable people who are either praying for recovery or praying for something that will slow down the rate of their dying.  And for me on a personal note, my mother is not only my Mom, but my sister, my daughter and my best friend.  None of these relatives exist in my life and soon neither will my mother. It's a thought greater than I can bear.    http://www.cancercompass.com/message-board/message/all,16596,0.htm daughter4evr Fri, 28 Sep 2007 00:00:00 GMT Hi there,  my mother was diagnosed about two years ago with myelofibrosis.  Since then it seems that is has been one thing after another.  My mom has diarea all the time and now has diabetes can anyone tell me if this is related and if you know of anyone with these symtoms.  Also I have read that this disease is caused by benzene I know that this is in bleach therefore I was wondering if anyone that has this used alot of bleach to clean with.  I can't think of anything else that could have caused this as my mom was a bleach user for many years.  I hope this reaches the right message board. http://www.cancercompass.com/message-board/message/all,16575,0.htm notgivingup Thu, 27 Sep 2007 00:00:00 GMT Hi everyone,  A dear friend of mine has bone, liver, kidney and colon cancer.  She does not have long as you can imagine.  She has many, many internet friends and I would like to start a blog so they can leave messages for her.  Do any of you know where a good blog site is that is not to complicated?  Thanks! http://www.cancercompass.com/message-board/message/all,16552,0.htm aowww Wed, 26 Sep 2007 00:00:00 GMT my mother cancer has came back in her ribs i fear we will know friday i pray that it has not but i know how bone cancer works and i really scare because she is in so much pain i use to coplain because i am biplor and seeing what my mom is going thought i dont open my mouth how can i http://www.cancercompass.com/message-board/message/all,15678,0.htm bird35 Tue, 28 Aug 2007 00:00:00 GMT im just about 19 now, my sister is only 6. Our mom had breast cancer and it spread to her bones, and spine. and we were just told she has very little time to live. does anyone know of any surgery, or, know anyone who pulled through. im looking for a piece of mind. http://www.cancercompass.com/message-board/message/all,15450,0.htm sarahshwa Mon, 20 Aug 2007 00:00:00 GMT My father who is 64 found out he had cancer of the tongue last year.  He was taken into hospital pretty quickly and had that part of his tongue removed.  They also removed a couple of surrounding glands as a precaution, they said.  He had a course of radiotherapy to kill off any cancer they missed during surgery.  He seemed to be doing fine.  He came out of the surgery well and was making very good progress.  He was having periodic check ups with his doctor and was told he was doing very well.  Unfortunately, as bad luck would have it.  After his surgery he had a minor car accident, where another car drove into the side of his car.  He didn't appear to be injured at the time and was still making good progress.  Some weeks afterwards he started to feel some discomfort in his right thigh.  He went to see his doctor, who upon hearing he had had a car accident, gave hime some pain killers and sent him away.  The pain killers helped for a short time and gradually the pain started to get worse and worse.  When he saw his doctor who performed the treatment for his tongue cancer, he just told him that if the pain persisted then he would take a look at him, but he didn't seem too concerned.  Months passed by and my father kept on seeing his regular doctor and he just prescribed Morphine to help him with the pain.  My father had lost a lot of weight because he was in too much pain to eat anything anymore.  Finally the doctor decided to send him for a bone scan.  Whilst at the hospital my father was having some problems urinating and was advised to go to the ER if it persisted.  So that is what happened.  He ended up spending 2 weeks in the hospital.  During that time he was told that his cancer had spread.  He now had it in his hip.  It has apparently passed through glands and into his blood and then his bones.  He has some spots of the cancer in his liver now also.  He was transferred to a Hospice so they could help control his pain.  My father did not want to be in there and demanded to be at home with his family.  So currently he is at home but it is a very stressful time for my mother who is taking care of him at present.  I go and stay with them when I can to help her out.  To tell you the truth I am a little unsure how this is all going to end.  We have been told my father only has a matter of months to live.  We are all devasted and of course my father has not taken the news too well at all.  I am upset and angry that this wasn't detected sooner when something could have been done about it.  But I am sure that is just a natural reaction.  I am trying to keep a calm head about this although I am having a hard time with it.  I just sit and cry, I can't help but think of my father and how he used to be when he was fit and healthy.  Baring in mind he was always a fit and healthy man.  He took up Taekwondo in his 50's and got his blackbelt a few years later.  He has never smoked or ever drank alcohol in excess.  It just seems so unfair.  And it also makes me think weather this is something that could possibly be inherited.  My grandfather died of hodgkins disease (in the 1970's).  Has anyone been through this or is going through it right now with a loved one.  I would be grateful for whatever advice can be given. Thank you. http://www.cancercompass.com/message-board/message/all,15183,0.htm Paula1970 Sat, 11 Aug 2007 00:00:00 GMT Mother is in alot of pain. She is doing the radiation treatments, she is on both lortab 10mg/350 and morphine 10mg/?. She went thur 60 pills in less than 6 days. One of her doctors said she now has what is know as bone cancer. And that I need to keep an eye on her for possible bone factures. He also said there is a strong possibility she may delvelope cancer cells in the liver or lungs.   But what am I to look for. There warning signs to look for. I don't just want to stand by and watch her die a slow & painful way.  http://www.cancercompass.com/message-board/message/all,14735,0.htm TX. Ann C Thu, 26 Jul 2007 00:00:00 GMT Hello, other ET patients, My name is Csenge from Hungary, I have diagnosed ET since 1995. Lately my platelet dropped under normal limits (77.000), have splenomegaly and portal hypertension. Does someone out there has experience about ET turning to Myelofibrosis? What can I expect? http://www.cancercompass.com/message-board/message/all,14725,0.htm csenge Thu, 26 Jul 2007 00:00:00 GMT I am 51 years old and in the prime of my life. I work full time (I am an RN) and I am a full time master's student.  I am a mother of 2 married children and a grandmother of a 4 year old.  I was diagnosed with MGUS, IGA (0.2%) with negative Bence Jones Protein, after an MRI for a rotator cuff tear showed bone marrow edema.  I was scheduled for a bone marrow Biopsy last week, but cancelled the appointment.  I am asymptomatic and feel well.  I am paralyzed by fear.  I need to know how to go on with my life without being in total denial.  I want to be optomitstic and continue with my plans, but feel blunted and alone.  My husband is great, but I don't want to burden my parents and children with this.  I am so glad I found this site. http://www.cancercompass.com/message-board/message/all,14466,0.htm Thrive Wed, 18 Jul 2007 00:00:00 GMT Hello, My name is April and 4 months ago today I lost my 26 year old husband to bone cancer. He had High Grade Pleomorphic Sarcoma, and Iwas wondering if anyone new about this type of cancer or any other bone cancer you can give me info on.  I have started my own relay for life team in his honor and my biggest thing is to bring awarness.Feel free to check out the site:www.freewebs.com/cancercrusadeIf I can do anything for anyone here please let me know!!! http://www.cancercompass.com/message-board/message/all,14336,0.htm cancercrusader Sat, 14 Jul 2007 00:00:00 GMT