Latest Endometrial Cancer discussions http://www.cancercompass.com/message-board/cancers/gynecological-cancers/endometrial-cancer/1,0,119,38,72.htm Sat, 05 Jul 2008 00:00:00 GMT Sat, 05 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi My Mom age 68 has recently diagnosed with endometrioid adenocarcinoma. She is already suffering from Non-Hodgkins Lymphoma (DLBCL). I am looking for all the information and advice I can gather on this. ThanksAmol  http://www.cancercompass.com/message-board/message/all,25554,0.htm amol01 Mon, 30 Jun 2008 00:00:00 GMT My mother had a complete hysterectomy almost two years ago.  At that time the doctors told her that she was clear of any cancer and that it had been confined to the uterus.  Not too long after that her cancer was "recurrent" and she went through a round of chemo - they really wanted to operate at that time (Jan 2007), but she also has CLL (chronic lymphocytic leukemia - which is in remission). The chemo that she had finished for this (nearly a year before her hysterectomy) really threw her white count for a loop and her white count was not good enough to risk having a surgery. This chemo did not work. Neither did the oral hormone medicines (I forget the names of these - maybe tamoxofin and megase?).  She finally had surgery in October of 2007.  The cancer was large and was spread around her entire abdomen. She had to have a colostomy done during surgery due to the placement of the tumors.She had 10 days of radiation about 8 weeks after her surgery. Within two months all of the cancer had grown back. She started on a chemo that attacked her hemoglobin, whites and platelets so badly that they could not get the recommended doses in.   She finally had another CT scan done about 1 month ago showing that there are now tumors and/or lesions everywhere - all through her abdomen, spleen, lungs, liver, etc.  My mother does not ask enough questions and she does not want to know what her prognosis is.  She is going to do whatever her oncologist tells her to do without question because he is the doctor.  She has started on yet another kind of chemo (I beleive Doxil). She has had one dose and will get another one next week. I have no idea what "stage" cancer her's was considered at the time of surgery because she didn't ask.  I know that she can't have long to live but really have no idea.  I wish that I could talk to her more about this, but she has made it quite clear that she does not want to know her prognosis. Sorry this is so long.  Is there anyone out there who has gone through anything like this and has any information or words of wisdom for me? Thank you so much for reading,caringk She   http://www.cancercompass.com/message-board/message/all,25408,0.htm caringk Wed, 25 Jun 2008 00:00:00 GMT Hello all!  My mother was diagnosed in Sept. 07 and had treatment for EC of the GE Junction.  She had 6 weeks chemo and radiation, then surgery in Jan. 08.  A lymph node was found near her left collar bone and it came back malignant.  She is now on Taxotere and Epirubicin.  She has ulcers in her mouth, not wanting to eat much and really depressed.  She is currently on an antibiotic due to Neutropenia, so it is helping with the ulcers in her mouth.  I am sure that is causing a decrease in her appetite.  She is taking 1 tbsp. of Megase daily, but I don't see a difference in her appetite.  She's taking Celexa for depression, but I don't see it making much of a difference.  She doesn't have many up days, so I am curious as to what difference it is suppose to make.  I know that she will be down, but I do expect her to want to fight.  Does anyone have experience with this combination of chemo?  Any suggestions about the depression battle and appetite issues?  I know she doesn't want to be on a feeding tube, so hopefully she will regain her appetite on her own.  Thanks for you response, be blessed and stay encouraged. http://www.cancercompass.com/message-board/message/all,25059,0.htm jcurt Sun, 15 Jun 2008 00:00:00 GMT Although I had no cancer in my lymph nodes after a complete hysterectomy, my oncologist was insistant I have radiation and chemo.  I opted to go the nutritional route and am doing liquid time released peroxide and also clyconutrients.  I am just six months from the surgery and my insurance will not pay for a pet scan to see if I still have any cancers but are willing to allow the money for chemo and radiation.  If you do some research by googleing the two therapies I just mentioned, you will find that people are being cured every day of cancer.  Cancer cells can't live in an oxygenated cell and keep your body alkaline rather than acidic.  I have cut out all processed foods, milk products and sugar.  I installed a whole house water fileter as chlorine causes cancer more so by breathing it in that drinking it but both are lethal especially if you are predisposed to cancer.  Drink only filtered water especially don't drink public water!I am sharing this with you because it could save your life.  If you have cancer and they want to put you through more chemo and you don't want any more, try the glyconutrients.   May God be with you as you or your loved one fights cancer...it is beatable and I am fighting it too. http://www.cancercompass.com/message-board/message/all,24687,0.htm JanieInGeorgia Wed, 04 Jun 2008 00:00:00 GMT Has anyone used Nature's Sunshine Herbal protocol for cancer? http://www.cancercompass.com/message-board/message/all,24622,0.htm four 168 Tue, 03 Jun 2008 00:00:00 GMT I am a caregiver that mother was diagnosed in September of 07.  She had chemo and radioation from October through December and responded well with minimal side effects (once we got the meds to minimize them).  My mother had the EC surgery on Jan 29 and she recovered well.  Her oncologist recenly found an enlarged lymph node near her left collar bone and it was removed.  We got news last Thursday that it was malignant and that she has three options.  (1) Do more chemo, (2) Clinical Trial or (3) Do nothing.  She decided on the chemo injections and the meds used are Texotere with either Carboplantin or Epirubucin.  Does anyone have experience with these chemotherapy drugs? http://www.cancercompass.com/message-board/message/all,24542,0.htm jcurt Fri, 30 May 2008 00:00:00 GMT I was diagnosed with stage 1b endometrial cancer  july of 07.  Had total hysterectomy-was told that I did not need chemo or radiation.  There was no involvement with or organ and it was contained in the uterus.5 days after surgery I had a a strange sharp pain and I was bleeding bright red blood.  This continued for months.  I had 3 pelvic ultrasounds, 3 vaginal ultrasounds, 5 physical exams.  2 clear pap smears.   Each week I complained about the pain and the blood.  2 more physical exams that show everything fine.  Finally I went back to gyno.  Told him I had pain bleeding and discharge and I knew there was a problem.  Physical exam ok bu he did a pap smear.  Pap smear came back abnormal.   They did a biopsy and it came back abnormal.  The then did a CAT scan and found suspicious etiologies in the omental and lungs.  The biopsy of the remaining flesh where the uterus was showed some cancer cells.  No tumors nodes large enough to biopsy.  Now i am on chemo for recurring endometrial cancer.  Still at stage 1.Am I a freak or does someone think that they did not follow up properly after surgtery.  I think they are throwing the kitchen skin in to make sure I get rid of every  thing.  I do not understand how this is "recurring.   http://www.cancercompass.com/message-board/message/all,24307,0.htm joycealim Fri, 23 May 2008 00:00:00 GMT My sister has stage 4 papillary serous cancer of the uterus. Chemotherapy a year ago did not work. The cancer has now spread to the lungs. If anyone with the same condition has had it treated successfully (in remission), pl write http://www.cancercompass.com/message-board/message/all,23170,0.htm anyone Fri, 18 Apr 2008 00:00:00 GMT My mom is starting brachytherapy this week. She had stage 1B, grade 2 cancer and had a full hysterectomy 6 weeks ago. She will undergo 3 treatments.I was wondering if anyone had to use a dilator after treatment. She was told to use it once a week, for 15 minutes, for the rest of her life. She is 76 years old and this will be quite a chore for her. Please let me know if you had any side effects after treatment as her doctors are making very light of it.Diane http://www.cancercompass.com/message-board/message/all,22952,0.htm shellygirl Fri, 11 Apr 2008 00:00:00 GMT Hello,I have stage IIIA Endometrial Cancer and currently going undergoing Chemo Therapy.  After I have complete chemo I will be doing external radiation and a vaginal cuff.  Does anyone know if there are long term effects from the radiation treatment?  Thank you  http://www.cancercompass.com/message-board/message/all,22910,0.htm Beth49 Thu, 10 Apr 2008 00:00:00 GMT My mother was diagnosed about a month ago with endometrial cancer. She has had many health problems develop from her diabetes. Anyway, the doctors don't want to do surgery to remove the cancer due to her obesity, heart disease, stroke history and renal failure... Anyway, she is only 62. I got her to contact MD Anderson to see if they could help her and they don't want to do surgery either. It seems like that would be the best thing to remove the cancer as best could be. Now it just seems like she is just supposed to wait and die without any surgery. They have talked about doing just radiation.I am really frustrated. Needless to say I want everything done that can be and not just sit back and let her die. I want my small children to know their grandmother and remember her. I want to have my mother around as long as I can. I am just wondering if anyone has had a similar experience and if you found some place to treat you or your family member? http://www.cancercompass.com/message-board/message/all,22756,0.htm kpstx Sun, 06 Apr 2008 00:00:00 GMT  Hi to everyone,I had uterine cancer in 1996 and was given a complete hysterectomy and they said it was contained, all 18 lymph nodes were good, but they decided to give me 6 weeks of radiation for any renegade cells. All was well until 2004 when I got deathly sick and was misdiagnosed with Colon Cancer that metastasized  to my liver and pelvis. Dr. Doom told me I would die on the OR table. Well he wasn't GOD and I am still here! After taking 17 months of very harsh chemotherapy treatments and losing all my teeth, I didn't lose my hair, just destroyed my teeth. I am in the process now of having them all pulled and new teeth put in soon. They decided to remove the tumor on my liver and pelvis in 2006.My surgeon told my family I don't have colon cancer and never did have it!! What I have is Endometrial Cancer!  Wow, they were all stunned as well as my oncologist, which I can not blame him, as he took over my Dr's practice when she retired to CO. Then they started treating me with Tamoxifen tablets and I thought everything was going well, the pain in my side was gone and I never felt better except for my right leg. I got off all my pain medication, Now after 15 months since they cut out most of my liver and ablated what they could in my pelvis, it has returned. It is a slow growing cancer that evidently has no cure. They can cut it out of my liver again, but it has attached itself to my main artery going down my right leg. My rt leg has been swelling for a year. All the doctors thought I had blood clots and I didn't. I even went to a Vascular Dr and he didn't see the problem after running expensive scans and sonograms. Meanwhile the tumor on my pelvis has done something to my rt kidney and my surgeon tells me my rt kidney is toast. He is the one that told me I didn't have colon cancer and he is the one that told me the tumor is wrapped around my rt artery going down my rt leg. He can't get it off, it is attached to it and to cut it, will lose my leg and them it would start growing upwards. There just doesn't seem to be any way of stopping the growth or to kill it. I thought radiation could do it in but am told a person can get a certain amt of radiation in their lifetime and I have exceeded mine. I had never heard that before. Now I have started a clinical trial of Perifosine tablets 2x day 50 mg each. I go to Texas Oncology at Presbyterian Hospital of Dallas and they are agents of Mary Crowley Research Center of Baylor Hospital in Dallas TX.. They seem to think this may help. I have been on them 6 days now and have diarrhea and nausea pretty bad. Have any of you had these similar problems? Can anyone tell me if the Perifosine is working for them, I can't find any statistics on it. I would love to hear from anyone that can give me information and If I can help anyone, just ask me.Thanks for listening.Shelia  http://www.cancercompass.com/message-board/message/all,22673,0.htm kelliemimi Thu, 03 Apr 2008 00:00:00 GMT Hi,Anyone out there still chatting about this Obnoxious cancer?I was diagnosed in 2004. After a TAH and radiation (internally/externally), I was told they got it all.It came back in 2007 and I was given chemo (carbo/taxol) through 2/2008.Today I have fuzz on my head and my PET scan is stable. Life is good.After months of research (I took this cancer much more seriously when it came back) what I've learned is that this is an aggresive, persistant and metastatic type of cancer.None of us know how long we've got. I say, "Enjoy every minute of everyday". I'm going to fight this for as long as it keeps comming back although I'm not looking forward to some of the battles.  http://www.cancercompass.com/message-board/message/all,22589,0.htm stasquez Tue, 01 Apr 2008 00:00:00 GMT Anyone out there with clear cell endometrial cancer?  Any clue of the survival rate? http://www.cancercompass.com/message-board/message/all,20442,0.htm pjba11 Tue, 29 Jan 2008 00:00:00 GMT I have been post menopausal for a year when this happened. I had a clear jelly discharge witha tinge of blood, read it could be sign of cancer.  Went to a local ob/gyn she did biopsy nothing showed, said nothing on ultrasound.  I didnt give up and didnt believe the PA I saw that day since I couldnt see a real dr,  Went to a real ob/gyn the followuing month in July, she did  vaginal ultrasounds and said lining wasnt thick and did those blood test.  Did another vaginal ultrasound in Oct said nothing showed, I read about the symptoms and there they are about uterine cancer, clear discharge. Now today end of Dec I started having a dark bloody discharge, not heavy but there. I called her office and talked to the dr on call. she said it wasnt from my ovarian cyst, which I found out I had but she said it was getting smaller and not worry about it. If  any of you had these symptoms of clear jelly discharge with a tinge of blood, ovarian cyst that wasnt very big and bleeding 6 months later, please let me know. I am scared this is cancer, Colon cancer runs in my family and I know this gene can also cause uternine cancer. Wish I would have went to another gyn a more aggressive one, but after seeing two you want to start trusting one of them. Did anyones uterine cancer or edometrial cancer start this way?  I cant do anything until Monday and hoping I can get in right away.  Thanks http://www.cancercompass.com/message-board/message/all,18896,0.htm DDntn Sat, 15 Dec 2007 00:00:00 GMT Afternoon everyone, My mother was found to have endometrial cancer in mid-November this year. She was brought in for a full hysterectomy and also had her fallopian tubes and ovaries removed. They checked all the regions around her uterus and found no signs of cancer. They also did a quick check on her uteran wall and found exactly what they expected, a small tumor which had not broken through the wall. They gave her the good news and she went home. She's been recuperating nicely and started driving again a week ago(very exciting). On Wednesday afternoon, our joy and relief was shattered when she was called in to go over the official pathology report from her surgery. The pathologist had located a very small(approximately 5mm), mass on her right ovary. Her oncologist was cautiously optimistic and explained that although my mother now technically has Stage IIIA cancer, the tumor was extremely small and was unlikely to have spread beyond its current point. As a precaution to kill any cells that may have spread they have suggested chemotherapy and my father is looking into clinical trials for her following the chemo. I wanted to post here because I love my mother dearly, she's only 57 and I can't imagine her not existing in my life. I'm only 23 years old, recently graduated from college. My entire family is freaking out about this. :( I will continue to update here and will try to get her on here myself to speak about this, as she has her own laptop. Any information or support would be wonderful. http://www.cancercompass.com/message-board/message/all,18758,0.htm soonblue Mon, 10 Dec 2007 00:00:00 GMT I was wondering why someone would send me the url of something called tiny url. It was not appropiate.  http://www.cancercompass.com/message-board/message/all,18383,0.htm Marymint Tue, 27 Nov 2007 00:00:00 GMT I just hung up from my doctors office saying that I had to come into tomorrow to have a endometrial biopsy and get the results from my colposcopy.  The doctor said last Tues that they would not call me unless something needed to be done and obviously since they called something needs to be done. I have been trying to read what they might be looking for and everything I read is so grim, I know it is bad and I have a 3 year old daughter I am so scared that what I have is bad and has spread or they would have just waited to have me come in on the 5th. I am so scared what does it mean to need an endometrial biopsy, that can't be good. I cant even tell my family what am I going to do. I have read the post and everyone who has any sort of cancer in the endometrial has had it other places too I am so scared it is too late and my daughter will grow up without me and never remember me. I am suppose to go to school tomorrow but I don't think I can. I am 42 years old lost my insurance so I was not able to go to the doctors for an annual pap since about 6 months after my daughter and that pap came back normal can it spread that fast? I'm so scared, I'm sorry I know this is a place of hope but I cant let my family know until I know for sure and I have no one to talk to. Any positive stories or stories of hope and comfort would greatly be appreciated. Thanks http://www.cancercompass.com/message-board/message/all,17547,0.htm blondraider Tue, 30 Oct 2007 00:00:00 GMT I would like to thank all the wonderful  people here who have taken the time to give me such great advice. It was been 8 weeks now since my hysterectomy. I had grade 1 Endometrial Cancer. The doctor says all tests show no cancer after the  surgery. There was cancer in the lining and a little in the uterus. I am very grateful for the good news. I send the  people here my prayers and good thoughts. I know there are some here having a hard time but so strong and hopeful. They still take time to help others and it is greatly appreciated.   Jeannine http://www.cancercompass.com/message-board/message/all,17402,0.htm jean9_1 Thu, 25 Oct 2007 00:00:00 GMT I was diagnosed with advanced endometrial cancer in October 2003.  Because of the advanced stage, I was fortunate to become part of a clinical study and I may be alive because of that.  l had 2 surgeries, radiation and chemo.  Today I consider myself cured. Here is my continuing problem.  The radiation therapy apparently caused severe scarring, the surgeon who performed the vaginal hysterectomy didn't leave much cervix, and I have severe sexual issues.  I have recently read in my research that many women still have the same level of orgasm they had prior to their hysterectomy.  I don't.  Also, when I finished my course of radiation, the nursen gave me the device that she told me to insert into my vagina every day.  She didn't tell me why she gave it to me or what it would do.  The pain I experienced while using that "thing" caused me to stop using it.  Now there is no way my husband and I can have intercourse.  Is there any hope for me? http://www.cancercompass.com/message-board/message/all,17068,0.htm Still kicking Sat, 13 Oct 2007 00:00:00 GMT Hi:)My grandma just started chemo today.  This is what they started her on: 1st drug they want to use is Paclitaxel (Taxol)2nd drug is Carboplatin (Paraplatin)Has anyone else personally or had a family member on this same treatment?  How did they do? Were there many side effects? She is in great spirits and has not yet been sick.  I just lost my mom to GBM stage 4 and do NOT want to watch my grandma suffer like my mom.  She was diagnosed with grade 4B endometrial cancer.  They have not slated her for radiation.  Is this normal? Thanks for any replies.God Bless you all. Megan http://www.cancercompass.com/message-board/message/all,16468,0.htm Meganc Mon, 24 Sep 2007 00:00:00 GMT I do not know how this message board works....I have tried several times to get the suppor that I need...and not been able to find the anwers from anyone.  Hope someone can help me....My mom has been battling cancer for three years  Her primary cancer is uterine.  She had a full hysterectomy, and six after that, was in a lot of pain, could use the washroom, and after two and half weeks of fighting with the doctors, to investigate her further, the opened her, only to find the cancer spread to the vagainal and bowel.  (sloppy work)  she was then advised to take radiation to pelvic area, she had comleted all radiation treatments, and felt good.  She was advised to make sure she kept her appointments etc.,,, in 2005, she lost her youngest child 37 yrs old, very suddenly, without any warning or enything.  He died of a congestive heart failure..since then, mom has not been doing too well.. in 2006, she startedto complain about pain in her legs....the doctors thought that because she is highly diabetic, and suffers from high blood pressure, she could be having water rentention...she was given pills for it...and the pain was still there.  during her visit to the oncologist, she was reminded to take a CATscan, as she was due for it.  Mom put it off...when the pain in her legs became really bad, I had taken her to see a doctor, (family doctor) and he immediately, asked for a chest xray...and had noticed that there was something that looked like a piece of flesh....but recommended a CAT should take place...again, mom did not follow through. (just a reminder, mom lives in the Bahamas and I live in Toronto, her radiation treatment and follow-ups were done in Toronto, once a year, she the best care...however her follow-ups in Nassau, was never done thoroughly)  After several months, mom started to have pain in her chest, and finally, a doctor, from the US, who works in the Bahamas, recommende she does a CAT scan, and after that, she learned that she had a tumor in front of  heart, near the lung.  Before surgery, she was sent to the States, where a PET scan was done, and foun that her cancer had not gone anywhere elseetc., The night before her surgery to the heart, her collar bone broke in half, while she using the washrooom.  The surgery to the heart took place, tumor was large as a grapefruit, three days after, the collar bone was fixed with surgery, as the cancer passed through her bones.  She took four chemos and ten radiation treatments...after the chemo she discovered that she could not move her left side, her leg was numb, as well as her left hand.   she was not very mobile...after a whole week, of drama and truma.. she was seen by the doctor, who had then decided to take another CT Scan, and found that she had a tumor in her brian, which after a few hours was rushed in for an MRI.. which showed, she had a tumor sitting outside of her brain, a little over a size of a golf ball, and a large amount of swelling to the brain....the only opition she had was to reove the tumor, reduce the swelling, however, if she did not do the surger, she would have been in a coma, and died in less than two weeks. Her surgery took place, tumor came out, they were only able to remove ony 80% and had to leave the rest in, as it was to close to nerve ending etc.,,,,,the surgery took place on Sunday september 9th...mom is currently in pain, she still not able to use her left side, and she is passing any urine....she is on all types of medication, currently, she is always sleepy, canno open her eyes for anything....I tried to put this all in a nutshell...but I am still stuck....what kind of life will mom have, will she be able to walk again, since she is not able to pass urine, does it mean that her kidney is shutting down...what can i expect from all of this...can anyone, write back and give me some advise? mom has a lot of faith...what shall I be prepared for...I look forward to reading or heaing from anyone that can give me answer...I pray a lot.. and mom isa very christian person. Thank You,  Pam Sands http://www.cancercompass.com/message-board/message/all,16177,0.htm Help me Fri, 14 Sep 2007 00:00:00 GMT Hello, I have just recently been diagnosed with ESS low grade, and have just been told I had "extensive lymphovascular permeation". Because of this, my oncologist has recommended radiation treatment, mainly for prophylatic reasons.  Everything I have read says radiation really doesn't help. If the cancer comes back, its coming back,  no matter. Has anyone had radiation treatment that could convince me it's what I need to do? I am probably a little different than most as I my will to live is not so great. However, I have a 14 yr. old son who I believe deserves to have his mom around at least until he graduates, but I have always told myself, if I ever got cancer I would not put my family or myself through all the horrible treatments and leave a huge financial bill behind. I believe God will help me through no matter what happens. I do however feel my desire to do nothing as far as treatment goes is quite selfish, mainly because of my son.  I guess I need some encouragement as to why I should spend thousands of dollars for something that may or may not help. I am also worried about the good cells that will be affected during radiation. My doctor also recommends megase therapy after raditaion, but I am not going to take it. If I take anything, it will be letrizole. I refuse to gain the weight, as well as all the other side affects I have read about,  and am a teacher, so I need all the energy I can muster. Whatever thoughts you could share that would help me become a little more "motivated" would help. Thanks.bioteach http://www.cancercompass.com/message-board/message/all,15176,0.htm bioteach Sat, 11 Aug 2007 00:00:00 GMT Hello my name is Jeannine. I am 54 and was just diagnosed with Endometrial cancer. The doctor says it is stage 1. He is planning a hysterectomy in 3 weeks. Does anyone know the chances of surviving this cancerr? I would be thankful if I could find out any tips to prepare for the hysterectomy.I have a wonderful husband of 2 years who is freezing meals ahead but I am not aware of how much I can do or not do after the hysterectomy. Thank you for any advice and take care all. Jeannine http://www.cancercompass.com/message-board/message/all,14805,0.htm jean9_1 Sat, 28 Jul 2007 00:00:00 GMT Can someone help me find IV Vitamin C or a practitioner to administer it?  I live in Michigan but am willing to travel.  Any help would be greatly appreciated! -Seraphinus http://www.cancercompass.com/message-board/message/all,14713,0.htm Seraphinus Wed, 25 Jul 2007 00:00:00 GMT