Latest Gynecological Cancers discussions http://www.cancercompass.com/message-board/cancers/gynecological-cancers/1,0,119,38.htm Sun, 06 Jul 2008 00:00:00 GMT Sun, 06 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I was diagnosed with carcinoid in an ovarian tumor 4 years ago, had surgery to remove it along with a total hysterectomy and since then it has been one thing after another.  Now I am having pulmonary problems and since nothing seems to help the current problems, my physicians feel that the carcinoid "is back" and I am scheduled for a scan next week.  I would love to hear from anyone who has or had this type of cancer.  I have looked at the Carcinoid Foundation but no one ever replies on that website.  Thanks and God Bless http://www.cancercompass.com/message-board/message/all,25680,0.htm Sharon h Thu, 03 Jul 2008 00:00:00 GMT Hi im 36 years old and have been dignosed with this cancer i am going in on the 17th of june to have a dye injected into the cancer to see if there is others. my operation is scheduled the next day. ive had apap smear came back clear but i know that doesnt mean anything my biopsy they took on fist consultation near the labidia was clear im so scared as i dont know anything much about this ive read things but at the moment things dont seem clear. i was wondering if anyone has gone through this? http://www.cancercompass.com/message-board/message/all,24805,0.htm carmen3 Sat, 07 Jun 2008 00:00:00 GMT Hi there! I've been all over the place with this HPV thing! First, a positive HPV in June 2007 with normal cells. Very upset, but got over it. Then, abnormal pap in Jan. 2008. Very upset then came to terms with it. Then, the need for a colpo with biopsies. Freaking out, calmed down then went through with it. I had a pretty bad experience and felt a good deal of pain during the biopsies and mainly after when my doc had to stop the bleeding with the big q tips. I started turning white and my lips were turning blue so i was told. i started shaking and seeing stars and feeling like i was about to throw up. I got kind of dissociated from reality like i was about to faint and apparently became instantly sweaty on my forehead. It really was a negative experience. The nurse called the Dr back in bc i was looking pretty grim. I was in bed for the entire day with terrible cramps, but my boyfriend was there during the colpo, so that was very helpful.The next week, I get a call from my doc who said it looked "pretty good in there" during the colpo, but they wanted me to come in to talk about the test results and getting a Leep. I was again very very bummed out to hear that it actually was bad news. I went in to see my doc who said that one biopsied specimen was CIN 1 and the other was CIN 11-111. She said she agreed it would be best for me to go under general anesthesia for the Leep because of how bad I did with the colpo.My boyfriend was freaking out and insisted i get a 2nd opinion. I went to another doc in my network who agreed with my 1st doc but said in so many words that my first doc (who he had heard of) is not someone that he would recommend but that he was sure she was capable of preforming the procedure. The 2nd doc appeared older with maybe shaky hands and a weird fungal growth on his thumb. So I didn't completely trust him to do the leep either (even though it is supposed to be a simple procedure).This was all unsettling so i ended up paying out of pocket to go out of my network to a doc associated with a top gyno hospital. Sorry for the long backstory, but here's my question. This 3rd doc says that i don't need general and that it is very unneccesary. He said he can drug me up with something in my IV where i'm basically in Lala land and just do it locally. After he left breifly and came back into the office he says, "you know what, it's your choice, we can go ahead and do it in the surgical center if you really want to under general though it does not seem worth it since you're paying out of pocket" He gave me time to think about it, but i really need to make a decision quick!My question to the board is: what would you recommend doing?I have to pay $1000 out of pocket for doing the leep it in the office locally and $2400 out of pocket to do it in the OR under general. I'm really torn, the price difference is an influencial factor, but i just still don't know. From what I'm hearing, people generally have a better time with the leep under general anesthesia and more chance of feeling traumatized and bad with the local. Can someone speak on these 2 options and let me know what you think someone with a lot of anxiety over the leep and a bad experience with the colpo should do??Thanks so much for any help!! http://www.cancercompass.com/message-board/message/all,24771,0.htm trying2chill Fri, 06 Jun 2008 00:00:00 GMT my spouse (48) was Dx'ed in 2006 with 'urethral' cancer, however the pathology is mullerian clear cell adenocarcinoma where they feel the primary was the connective tissue between the vagina and the bladder. Surgery radically resected the bladder, urethra, vagina, and also found positive Lymph nodes, which were resected as well. clean margins everywhere. She went through 6 rounds of Carboplatin and Taxol, followed up with IMRT targeting remaining peritoneal lymph nodes.for 2 years she's been getting clean checkups, until Wednesday.She was complaining of back pain, so her Onco had a PET/FDG performed. It returned several metastatic bone lesions on ribs, skull, spine, arms, and hips, as well as 2 neck and groin positive lymph nodes, and a lesion on the rectus adominus muscle.We have not gotten any indication from the cancer center whether or not this is treatable or not, although they seem very concerned to start RadT on the vertebrae for Pain Management. We are assuming biopsies will be performed, but probably not until later next week.I'm trying to get statistics/data on the situation (my spouse is very fatalistic, I need to get facts in front of her beyond the MD's prognosis)... Given the number of distant metastaces, I'm trying to understand if chemo/radT is the primary or adjuvant treatment, or if we must bite the bullet and expect only pallative alternatives at this point. Any help in pointing to where I can get survival data on distant recurrances from Primary Peritoneal/Vaginal Clear Cell carcinomas would be very appreciated-Jeff http://www.cancercompass.com/message-board/message/all,24587,0.htm bdabbt75 Sun, 01 Jun 2008 00:00:00 GMT I just discovered this forum, while searching for information on my mother's condition. She will be 85 in November.  She has a breast & lymph nodes removed in 1993 with breast cancer and at that time was given no followup treatment. She had an HMO supplement to medicare and claimed they wanted the seniors to die rather than treat them. She has had 2 open heart bypass surgeries 1 @ 60 and 1 @ 75 and carotoid artery surgery also.   She always felt she would die from a massive heart attack.  Well, in Dec 2005 she was diagnosed with ovarian cancer.  She had surgery in Jan 2006 and at the time the cancer was explained as periteneal. She had Chemo ( not sure what drugs) - 6 treatments about 3 weeks apart and pulled through that well.  The tests a few months after showed she was in remission.  In Dec 2007, she had a something on her liver they said they would watch.  She came to Arizona for 3 months and had one CA125 blood test ( was elevated) and she just received news yesterday that the original tumor on the liver is the same - they feel it is benign, but there are 3 others.  They are starting chemo on Monday. The oncologist said " You received 2 years from the 1st chemo and maybe you'll get another 2 yrs."  She is a very strong person with a will to live and a fighter.  Her attitude is " Well, what I am going to do but fight?"   I'm not hearing very good things about survival when the cancer goes to the liver.  What is the survival rate, if there is any way to know that?  She is now back in Illinois and I would like to have a better understanding of when I need to go and see her.  I appreciate any help with this or the answer is unknown. Thanks, http://www.cancercompass.com/message-board/message/all,23997,0.htm redped17 Tue, 13 May 2008 00:00:00 GMT So I just found out yesterday through a Biopsy, that I have moderate to severe dysplasia. They want me to do the LEEP procedure. The doctor told me there is a chance that my body will cure itself (because I'm only 21 she said I have a better chance) But I'm scared about taking that kind of risk with something that could turn into cancer. I did some research and there is a good chance if i were to get pregnant(if my cervix doesn't get scarred)that I would deliver premature if I follow through with this procedure. There are so many things in life I want to do and having children is number 1 on my list, granted it wouldn't be anytime soon, but I have to think about my future! Is this something that I really need? I plan on getting a second opinon, but there are so many questions I have, and so many if's **Blah** http://www.cancercompass.com/message-board/message/all,23641,0.htm Daniekl4 Thu, 01 May 2008 00:00:00 GMT My sister was diagnosed yesterday with Fallopian tubes cancer. As well she  was diagnosed 2 years ago, with colorectal cancer, and had to have the rectum (pouch)removed, but no need for chemo.Does anyone have any experience as to the possible -probable connection between the two, and the chances that this cancer may have  spread elswhere. We are waiting for results ( lymph glands analysis). We will know more in two days time.We are anxious as we wait, and thought  someone out there  with a similar set of circumstances, would perhaps like to share with us, their experience and their thoughts..  Thanking you and God Bless http://www.cancercompass.com/message-board/message/all,23562,0.htm Marcelle Tue, 29 Apr 2008 00:00:00 GMT Hi Any & Everyone: I started "growing" cysts all over the place- GYN has "no idea" what this is:8/07=pelvic ultrasound: Nabothian cysts, ave 27mm; ditto for both ovaries. Fast forward to 11/08- same thing getting larger, esp the large cervical, 3.3 cm. FastFwd to 3/08: ultrasound: cervical, still many small Nabothians, BUT 1 is now 4.0cm. Both ovaries, still growing. Fast Fwd: last Friday, 4/4: MRI: larget cervical is now 5.5, DILATING external cervical os, protruding into upper vagina; AND lg R Ovarian still getting bigger- irregular shape. No blood supply to it "seen", but strange.Today, 4/9: physical exam- she cannot "feel" the dilation of cervix w cyst in vagina. Is stumped-has never seen a Nabothian this big. A record-breaker. Lg R Ovarian4 cm "making her nervous"...not round, irregular. Said, "That's it- it must come out"ANY THOUGHTS?????  A BIT SCARED....(I have all films on disk)THANK YOU http://www.cancercompass.com/message-board/message/all,22904,0.htm Myfriendhope Wed, 09 Apr 2008 00:00:00 GMT I have had gyn issues for several years.  Have been diagnosed with hyperplasia and recently with Polycystic Ovarian Syndrome.  My gyn tells me that the combination of these two things puts me at a very high risk for cancer, whether it be uterine or otherwise, I'm not sure.  I am 35 years old and am wondering if there are any words of wisdom.  My husband and I have one beautiful son and are not considering having any more children and we've been discussing the possibilities of having a hysterectomy to avoid any complications in the future.  I don't know if this is a viable solution.  I'm just very confused and a bit scared as my maternal grandmother died from a gynecological cancer, and my father is currently battling adenocarcinoma of the lung.  Thank you for taking the time to read my post. http://www.cancercompass.com/message-board/message/all,21437,0.htm daughterinva Thu, 28 Feb 2008 00:00:00 GMT Hi All,I am being treated as an ovarian cancer patient.  I have fallopian cancer.  I have been on several different chemo's over the past 6 years.  I am doing well although for the last year there have been no treatments that shrink my tumor.  It hasn't grown at all though.My question is that I am now on Avastin which is a trial treatment with ovarian cancer.  I would love to hear from anyone who has been treated with Avastin for any type of cancer as I have a few questions about so side effects which I have read and been told are normal but are a bit scarey.If there is anyone out there that know anything about Avastin please let me know!Thanks so much!Judy http://www.cancercompass.com/message-board/message/all,21398,0.htm Turtlebugs3 Wed, 27 Feb 2008 00:00:00 GMT okay so here is my story...I am 39 about to turn 40, I had a full hysterectomy about 4 years ago, due to family history of ovarian cancer (my Mom), she many years later developed cancer of the vaginal wall.  Well I went to the doctors in November and had an abnormal pap smear, they then did a copo (which by the way hurt like heck). The copo was done at the end of January.  I went to the  doctors today and got the results from my copo which is when I was told that I have HPV with Mild dysplasia & genital warts.  The doctor suggested having surgery to remove the warts as they can develop into cancer.  Well I do not have health insurance so I can not afford the surgery, and he also told me that it does not guarantee that they won't come back.I told my boyfriend whom I live with, for almost a year now, what the doctor said.  He is very supportive and I am afraid that I may have given him these things.  How would I know if I did?  Is there a test he can have done to find out? Please pray for healing, cause I am so freaked out right now it is not even funny.  I had the hysterectomy to prevent cancer and now I am facing this possibility!To all others with similar, I pray for your healing also and peace of mind!  http://www.cancercompass.com/message-board/message/all,20984,0.htm scaredinFL Fri, 15 Feb 2008 00:00:00 GMT I had a hysterectomy 20 years ago.  But over the last 6 mos I've  had some intermittent spotting of bright red blood.  Also,  Ive been experiencing some nocturnal incontinence.I didnt go to the Dr. right away because I feel great, and i just thought it was a fluke.  Anyway, I went for my yearly yesterday and discussed this with her and she wants me to have some tests.  She gave me my pap and didnt feel any lumps or masses, so she wants me next to have a pelvic ultrasound.  After that, she will refer me to a gyne,  You know, I never thought that I would handle the possibility of cancer this way.  Ive been in the healthcare field for 30 years and have had an optomistic outlook on this.  But now I dont feel very pleasant.  I feel like my life will be stopped until I can get the results from the tests.  I went yesterday (Sat) so I wont even be able to schedule the tests until tomorrow.  I hate this, and Now for the first time, Im understanding a little bit of what people go through when they face cancer.  http://www.cancercompass.com/message-board/message/all,20605,0.htm closecall Sun, 03 Feb 2008 00:00:00 GMT Hi to everyone.  I am in my mid fifties.  I am excited to find this site.  Don't we all feel alone in this plight.  I wonder between us how many different things we have been told by our physicians.  I have traveled many, many miles for answers. I was diagnosed with GCT in 2002.  I had a large tumor removed which was encapsulated in my ovary.  I was advised I needed no follow-up treatment.  Three years later I had 20+ tumors.  I had surgery to remove the tumors and the omentum.  One year later I had surgery to removed a smaller number of tumors.  And now one year later I have at least one tumor.My treatments began after the second surgery and have included:  Lupron, Carboplatin/Taxol, and Femara.  I have also developed cardiac problems and believe the cardiac complications are related to the cancer treatments. I am an advocate for knowledge in our plight against GCT.  I have a deep knowledge of GCT.  I have researched this cancer relentlessly over the past two years.I don't know how to accomplish it, but we need to share every idea we come up with.  And, anyone who is diagnosed MUST get a second opinion.  I am living a pretty normal life with GCT.  I've been to some of the best doctors in the US, and some that were not so good.When researching GCT, it is just as difficult to get a straight answer.  How many times have you been told it grows slow, and the next person tells you it grows fast?  How many times have you been told your going to die from this and the next time you are told most people don't die from this?  Have you ever just wanted to have a regular cancer; the kind people care about?  Did you ever dream of turning on the TV or opening a magazine and there is a group of people doing an awareness campaign and a fund raiser for GRANULOSA CELL TUMOR? Has anyone told you to go on a diet and you'll be cured?  I could go on and on.Please respond.  I have never met anyone with GCT.  I have never corresponded with anyone with GCT.  We are all connected, yet we are as lonely as the Maytag Repairman! Sparks  I     http://www.cancercompass.com/message-board/message/all,20544,0.htm sparkave Fri, 01 Feb 2008 00:00:00 GMT I had post menopausal bleeding, was referred to an OB/GYN Oncologist, who informed me I needed a TAHBSO, I had the surgery on 12/28/07 and he discovered Ovarian Granulosa carcinoma. He received the pathology back and he said that it was 'slow growing, I had it for 'years' and they had to 'grade' it something so they gave it a 1A, though he felt it was less than that, 1A is the lowest you can be staged. He said it was well differentiated, no atypia, all nodes came back negative, all peritoneal washings negative, the cancer was isolated to one ovary, and it was entirely contained within the ovary. He said the surgery was the 'cure'. However I have to go every 3 months for an Inhibin B and a CA125 blood tests, a pelvic every 3 months as well and a pet scan every 6mos. I do this for 2 years, then if there are no issues they advance the time between all of these tests. My concern is all that I have read . . .he said my prognosis is excellent and no further treatment will be required . . . there are alot of issues it seems with Granulosa, reoccurances etc . . . should i be as concerned as I am? http://www.cancercompass.com/message-board/message/all,20096,0.htm parrotbayRN Fri, 25 Jan 2008 00:00:00 GMT my mom had endometrial cancer a few years ago. at that time they performed surgery and removed her uterus, ovaries, and lymph nodes. the cancer had not spread past her uterus and as such no additional treatment was recommended. she continues to get regular checks (PAP and internal check). however, my question is is there any other tests that need to be performed other than her regular checks i mentioned above?  any advise would be helpful. http://www.cancercompass.com/message-board/message/all,19918,0.htm amsp00 Sun, 20 Jan 2008 00:00:00 GMT I wish I had found this message board several years ago, I lost my wife to this disease 22 months ago. Elaine was 47 when she died in March 2006, she was diagnosed in December 2004. We live in Scotland where I believe the treatment of the disease is as good as anywhere in the world. I have read through all the messages on the board and all I would say is that you support the patient as much as possible, if they are positive people you support that, if they need support you give them that support. I think a cancer care group if available to the patient and the family is a great help, when this was suggested to Elaine we were reluctant to get involved but she benefited greatly from the group and the feedback from the group was that they benefited from her. It is a horrible disease as everyone else has testified too and I feel we as a family were treated harshly to loosing Elaine so young but my heart goes out to other people on this board who are even younger. It is a shame that it is so difficult to get information on this cancer however it is very rare thank God, there is worldwide research going on all the time and I would suggest people support there own country's research programs as much as they can so this particular disease can be beaten, I would also encourage any patients to subscribe to any trials there doctor suggests as this is the only way that progress can be made, Cancer is a worldwide problem and needs to be attacked as such so the costs and the resources are spread globally. Elaine was very positive the whole period of her treatment, we entered one of the trials at that time (I say we because it is the whole family who lives through this disease, not just the patient), Elaine went through 6 Chemo treatments followed by a radical hysterectomy followed by 3 chemo's, this too us up to September when we had a wonderful 3 months of treatment free time, sadly the cancer re-ocurred in late December 2005 and she died in the March. We were told once Elaines diagnosis was confirmed in the January of 2005 that the expected survival period for a stage 4 was only 18 months, Elaine only got 15 of which only 3 was treatment free but she never gave up and neither did we and i hope everyone who reads this will also remain as positive as you can, don get me wrong, we had depressed and bad times as does everyone but this wonderful little lady battled harder than I have ever witnessed in my life and I will always be in awe of her wonderful gentle fighting spirit and even though she was feeling terrible herself would still give reassurance to any other patients she met and spoke to. My heart goes out to all patients and there friends and families, all I can suggest is that you stay strong and support each other, make the best you can from the good days and the bad, hold on to what ever faith you have, and know that you are not alone as all these replies testify. Nearly two years on now I still have an unfillable void from the loss of my best friend and partner but life goes on and things do get easier. Make the most of the time you are given and support and love each other. God bless you all and I will think and prey for you all http://www.cancercompass.com/message-board/message/all,19870,0.htm Colin Fri, 18 Jan 2008 00:00:00 GMT Hi my name is Lyn and my mother was diagnosed with PPC in Jan 2006 and passed away on October 21, 2007.  She fought a long hard battle untill the very end.  We were all able to be with her at home when she passed away.  This cancer is a horrible cancer that needs to be more recognized.  My mom was sick and compplaining of the very symptoms related to PPC months before she was diagnosed.  She was 77 and she did not do well with the chemo treatments but continued untill they told her there was nothing more that they could do.  S he was given 3-6 months in Aug and died in October.  Has anyone out there lost a loved one to this horribloe cancer?Lyn http://www.cancercompass.com/message-board/message/all,18745,0.htm Perri Lyn Sun, 09 Dec 2007 00:00:00 GMT Hi my name is Lyn and my mother was diagnosed with PPC in Jan 2006 and passed away on October 21, 2007.  She fought a long hard battle untill the very end.  We were all able to be with her at home when she passed away.  This cancer is a horrible cancer that needs to be more recognized.  My mom was sick and compplaining of the very symptoms related to PPC months before she was diagnosed.  She was 77 and she did not do well with the chemo treatments but continued untill they told her there was nothing more that they could do.  S he was given 3-6 months in Aug and died in October.  Has anyone out there lost a loved one to this horribloe cancer?Lyn http://www.cancercompass.com/message-board/message/all,18744,0.htm Perri Lyn Sun, 09 Dec 2007 00:00:00 GMT Im looking for information on some issue my wife is having, she went to her gyno, 2 weeks ago, while being exsamined the gyno, said she had a discoleration of the interior vulva, it looks like a blues black spydery type birthmark, it seems like its been there forever, it is not rough or scabby, just like s,mall broken blood vessels. She had a cat done , nothing found, Pap nothiong found, Next step is a biopsy, if nessesary per the Gyno? i would think it should be done period, but hell, im just a guy. Has anyone ever heard of this, the gyno said she has never seen this before, and she has been in the bussness for awhileThanks Joe  http://www.cancercompass.com/message-board/message/all,18417,0.htm Joeburg55 Wed, 28 Nov 2007 00:00:00 GMT Erbitux and Photodynamic Therapy Works Synergistically in Mouse Model of Ovarian Cancer A new study has found that a treatment regimen that combines the monoclonal antibody C225 (cetuximab, Erbitux) and a method called photodynamic therapy (PDT) is synergistic and well-tolerated in a mouse model of ovarian cancer. Because the prognosis for women diagnosed with ovarian cancer is poor--less than a third will survive 5 or more years--new treatment strategies are needed. Combination therapies directed against nonoverlapping molecular targets may be the most likely to succeed. Tayyaba Hasan, Ph.D., of Massachusetts General Hospital in Boston, and colleagues tested C225--which inhibits the epidermal growth factor receptor--and PDT--which involves laser-based activation of a light sensitive chemical--separately and in combination in a mouse model of ovarian cancer. They found that mice treated with both C225 and PDT had a substantial reduction in mean tumor burden to 9.8% of that of no-treatment control mice, whereas mice treated with C225 only or PDT only had mean tumor burdens of 66.6% and 38.2%, respectively. Mice treated with both C225 and PDT also had a nearly three-fold increase in median survival compared with the control mice. When compared with PDT only or C225 only, C225 plus PDT produced synergistic reductions in mean tumor burden and improvements in survival. In an editorial, Eli Glatstein, M.D., of the University of Pennsylvania in Philadelphia, and colleagues discuss the theoretical advantages of using C225 and PDT to exploit different aspects of ovarian carcinoma tumor biology. Note: The Journal of the National Cancer Institute is published by Oxford University Press and is not affiliated with the National Cancer Institute. Attribution to the Journal of the National Cancer Institute is requested in all news coverage. Visit the Journal online at http://jncicancerspectrum.oupjournals.org Kate Travis jncimedia@oxfordjournals.org Journal of the National Cancer Institute http://www.cancercompass.com/message-board/message/all,17795,0.htm Gdpawel Thu, 08 Nov 2007 00:00:00 GMT Erbitux and Photodynamic Therapy Works Synergistically in Mouse Model of Ovarian Cancer A new study has found that a treatment regimen that combines the monoclonal antibody C225 (cetuximab, Erbitux) and a method called photodynamic therapy (PDT) is synergistic and well-tolerated in a mouse model of ovarian cancer. Because the prognosis for women diagnosed with ovarian cancer is poor--less than a third will survive 5 or more years--new treatment strategies are needed. Combination therapies directed against nonoverlapping molecular targets may be the most likely to succeed. Tayyaba Hasan, Ph.D., of Massachusetts General Hospital in Boston, and colleagues tested C225--which inhibits the epidermal growth factor receptor--and PDT--which involves laser-based activation of a light sensitive chemical--separately and in combination in a mouse model of ovarian cancer. They found that mice treated with both C225 and PDT had a substantial reduction in mean tumor burden to 9.8% of that of no-treatment control mice, whereas mice treated with C225 only or PDT only had mean tumor burdens of 66.6% and 38.2%, respectively. Mice treated with both C225 and PDT also had a nearly three-fold increase in median survival compared with the control mice. When compared with PDT only or C225 only, C225 plus PDT produced synergistic reductions in mean tumor burden and improvements in survival. In an editorial, Eli Glatstein, M.D., of the University of Pennsylvania in Philadelphia, and colleagues discuss the theoretical advantages of using C225 and PDT to exploit different aspects of ovarian carcinoma tumor biology. Note: The Journal of the National Cancer Institute is published by Oxford University Press and is not affiliated with the National Cancer Institute. Attribution to the Journal of the National Cancer Institute is requested in all news coverage. Visit the Journal online at http://jncicancerspectrum.oupjournals.org Kate Travis jncimedia@oxfordjournals.org Journal of the National Cancer Institute http://www.cancercompass.com/message-board/message/all,17690,0.htm Gdpawel Mon, 05 Nov 2007 00:00:00 GMT Hi everyone, I was told on 10/31/07 yep Halloween that I have adenocarcinoma in situ encapulated and I now wait for a hysterectomy. I do not have insurance and slowly falling through the cracks I think since I was suppose to be called last Thurs by an oncologist but he did not call and now I have to wait till Monday. I am so scared and lonely and everyone just keeps telling me to be positive and I will be ok well I am no ok and this is not ok and I should be able to cry and yell and throw things and have support and I don't. My husband actually started a fight with me because I said I wanted to buy a new night gown and some slippers for the hospital and he said why don't I just wear the stuff they provide and I don't want too, I want to have my own personal stuff is that so wrong? His mom agrees with him. He is not being supportive he is being selfish and stupid but no one else sees it except my 16 year old son. I am so scared and all I do is break down and when I do everyone gets mad at me. The people I thought I could count on are not there my husband actually called me the "C" word last night because he had to come and get me because my suppose to be friend got mad at me because she tried to take me out and get my mind off things yet a couple of times I broke down and she got mad at me because after all she did take me out and I am suppose to forget my recent diagnosis and eat jelly beans and swing from the light fixture right? I was not having a bad time I just had some emotional moments. I did not deserve that but everyone is treating me like this except my kids. I have no one to cry with or talk to. My husband is actually mad at me because he had to wake up and come and get me (his wife) that needed him??? I'm a fool. My mother in law asked if I was supporting him? WHAT? I just want to get my surgery and get on with my life I have decided that I need all the things keeping me down out of my life and so my new goal is to get well finish school and move on. Thanks for reading this I need it;) http://www.cancercompass.com/message-board/message/all,17651,0.htm blondraider Sat, 03 Nov 2007 00:00:00 GMT Hi Anyone,I recently found out that my Aunt (dad's sister) 61 has cancer.  We don't know what type yet but it has spread throughout her body.  Apparently there is a large amount of thick fluid in her abdomen.  She is showing signs of dehydration.  Apparently she has been living with symptoms without letting anyone know..she dismissed them as this or that.  We don't know much right now yet everything we do find out seems worse than we thought.  It seems to me that she could go at anytime and I just cannot imagine our lives without her.  She lives two states away.  She has two boys in their mid to late 20's.  From what I can tell it seems like her cancer is along the Ovarian, Peritoneal, Gynecological realm.  Although there are  many other areas impacted.  I would appreciate any response from anyone.God bless. http://www.cancercompass.com/message-board/message/all,16846,0.htm Jazzysmom Sun, 07 Oct 2007 00:00:00 GMT Hi to everyone,                      I'm a concerned friend hoping to find someone who can please give me some information and hopefully some answers about this disease. My story is, my dearest friend has been recently diagnosed with PPC, she's 38 has 2 beautiful daughters 7 & 9 and a wonderful hubby (her sole mate)! They,  as a family do everything together and are the most wonderful people you would wish to meet.          It was August this year whilst away on their holidy that my friend had a terrible swollen abdomen with severe pain. This got worse and buy the time they returned home she went to the doctors, who told her it was chronic constipation. She'd been suffering this for a long time , but put it down to her IBS. The medication did not work and she ended up being rushed into hospital. She had scans, bloods, x-rays etc and was told the  3 most frightening words we all dread to hear. YOU HAVE CANCER! Just weeks ago, my friend was the most healthiest person I know on this planet, she does'nt smoke, drink and lives a very healthy lifestyle, (she puts us all to shame!!) and this happens. I just don't get it, how can someone so healthy get this. She has also been told she has 4 tumours on her liver, but her liver functions are good, thankgoodness. From reading some of your messages, quite a lot of you have had surgery, but my friend has only been offered Chemo, does anyone know why this is. Her CA 125 is high, and her abdomen is swelling up with more fluid. She is back in hospital and they have started draining the fluid 5 ltrs so far and have left the drain in. My friend is in so much pain, they have now put her on a morphine pump to make her feel more comfortable. She is on Taxol  and Carbolplatin, I hear this is a very tough treatment, but I know my friend will battle through it, she's one tough cookie!  I would love to hear from anyone who has gone through this treatment and give us some insight into what will happen next.God Bless You all and keep well Bev x                                                                                      http://www.cancercompass.com/message-board/message/all,16648,0.htm julesfriend Sun, 30 Sep 2007 00:00:00 GMT I found this website, when I searched for information about primary peritoneal cancer, a truely silent killer.  My younger sister was diagnosed with PPC in May 2006.  Her CA125 was 5000.  She had one round of chemo as well as intraperitoneal chemo before her sugery, followed by 8 more rounds of chemo.  Her CA125 was 8 after the last chemo in February.  Three months ago, her CA125 was 15, still within the normal range.  Three weeks ago her CA125 was 36.3 (normal = 35), but last week it elevated to 42.  The doctor did not see any tumor from her abdominal ultrasound, so that her oncologist asked her to wait for one month before he could make his decision about chemo.  Has anyone here have similar experience?  I am terrified about her cancer's coming back.  It's only been 6 months since her last chemo!  I would like to know if there is any complementary treatment such as nutrition supplement/herbal therapy available for this cancer.  I know that we still need to rely on the conventional treatment like surgery and chemo to treat the cancer, but I just wonder if there is any complementary therapy that can help to fight the cancer. http://www.cancercompass.com/message-board/message/all,16463,0.htm n4yyld Mon, 24 Sep 2007 00:00:00 GMT