Latest Hodgkin's Disease discussions http://www.cancercompass.com/message-board/cancers/lymphoma/hodgkin's-disease/1,0,119,57,15.htm Sun, 06 Jul 2008 00:00:00 GMT Sun, 06 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My name is Lindsay i am 19 yrs old and i was diagnosed with Hodgkin's Disease June 2,2008. It all happened so quickly. One day i found a lump on my neck...next day i am sitting in the ENT doctors office and I get poked with needles after needles doing test after test I go back the next day to see what the test results are....and they tell me i have cancer. Next day I am going into surgery to remove the lump so they can do more test! It was one thing after the other...now I am gonna start start my first day of chemo in about a week. I'm so scared. I don't want to loose my hair. I don't understand why this is happening to me!! I just got my own place 2 weeks before i went to the Doctors so i haven't really enjoyed my first place! I know i will make it through but I am so scared of getting sick from the chemo and loosing my hair! I have never been so scared in my life. I have a lot of support but its so hard staying strong and being positive.    http://www.cancercompass.com/message-board/message/all,25451,0.htm Baby Bear07 Thu, 26 Jun 2008 00:00:00 GMT I'm 31 years old. In February of this year, I was diagnosed with endometriosis. I've had on - going problems since I was 10 years old when my menstrual cycle first began. After going from Doctor to Doctor, Er to Er, and being told that my issue was many different things, I finally found out that it was Endometriosis. So after the Doctor codderized the growths, he told me to wait about 2 months and that I would feel better than I have in years. Here's the problem now, it's been since Feb 6th 2008 when I had the endo codderized out. I do feel some what better, BUT! some of the same symptom's are here and even some new one's. I've pretty much at this point given up on Doctor's and hospitals. I've been to so many , been poked and prodded on that I don't want to feel like their personal pin cushion any more, if they can't find out what's causing my problems then I don't see a point in putting my self through it any more. Here is where I'm at now, and what I'm looking to find an answer for.2 years ago, one of the Doctor's noticed a lump in my right under arm. It's right by the right side of my right breast. It's about 2 inches long , much like the length and shape of my pinky finger, the Doctor asked If I had noticed it, I told her that I had not, but that occasionaly once in a while I will have sharp stabbing pains in that area. Then she went on to feel around my throat, and asked if any of the Doctor's have ever said anything about my thyroid in my throat. again I told her that no Doctor has ever mentioned it to me. She did some test, told me that I have an over active thyroid, but not to worry about it, cause they usually work them selves out.... Then after the surgery to remove the endometriosis, I started noticing that all the symptoms hadn't went away. I still had swollen nodules that were painful around my ovary area's so I went to another Doctor. at this point I was suspecting Hodgkins, cause through my research I've found that some women with endometriosis also have hodgkins.  The Doctor told me that he didn't think it was hodgkins cause of the lump in my right under arm, or the swollen nodule around my ovary area, he said that usually there would be another swollen painful gland somewhere else.well that brings me here, Friday evening I had a terrible migraine, it was making me puke and dizzy, I was also extremely hot and could not cool off, i wanted to get in a cool bath, but everytime I tempted to stand I thought i was going to pass out. Later that night after taking some pills and a nap the migraine was gone, the dizziness was still there, so I just took it easy around my house for the rest of the evening. The followinfg day, saturday I didn't feel sick or anything, just extremely worn out , like I had no energy at all. Then late saturday evening  i was washing my face and when I looked in the mirror i seen this very noticable lump on the lower left side of my kneck. It didn't hurt and besides feeling exhausted I was fine. I then woke at 4:19 am sunday with a migraine in my left temple, extreme stabbing pains in my left ear drum, that lump on my throat was also painful, and the top of my left shoulder was hurting as well. my heart beat was extremely rapid, and I was shaking all over like I had drank to much coffee.. after about almost 2 hours the heart beat went back to normal and I wasn't shaking, so I went back to bed, woke around noon. For the rest of the day and night I just felt sluggish, I didn't so much, by monday morning I don't feel sick, no stuffy nose, no swore throat, it's not like a cold at all. the lump still hurts, it's also tender to touch, and i can feel it when I swollow... What could this be??? Should I be concerned? I don't want to waste time going to the Doctor if I can find some sort of information here, I'm just tired of being a pin cushion and being put through so much to not find any sure positive answers. should I just give up and accept that this is just how my body is, or is there something that these doctors are missing? http://www.cancercompass.com/message-board/message/all,25081,0.htm curious1977 Mon, 16 Jun 2008 00:00:00 GMT in dec 07 my partner diagnosed with primary cns lymphoma to brain following steroids, methertrexate and radiotherapy he was given all clear in april . on may 28 he went back to consultant for another all clear brain scan result and mentioned a lump in groin , after tests and lymph biopsy we have now been told that brain tumour was probably secondary. he is due to have a bone marrow biopsy and a lymph removed next week and probable chemo following week . any thoughts??????? mandie http://www.cancercompass.com/message-board/message/all,25038,0.htm picses Sat, 14 Jun 2008 00:00:00 GMT Hello everyone,I hope everyone is doing well and staying positive.I am over twnty years out from my last treatment for Hodgkins stage 2 B. I had both chemo (MOPP) and radiation to my upper and lower body.I have had a couple of problems, one major, that being colon cancer which my Hodgkins onc thinks nay be attributable to the radiation. Anyone else out their with this experience?I was diagnosed with CC stage III with 2 lymph node involvement. Had surgery and chemo for 6 months (5FU and leucovorin)  I am slowly recovering from this and the onc is optimistic. My current issue has to do with my neck, ear aches and ringing in the ears. Right now I am not sure if this is due to the recent chemo or possibly an issue related to the long ago radiation. I read recently about Hodgkins survivors having "dropped head" syndrome which is caused by the weakening of the neck muscles.I would love to hear from any other long termers out there with any issues that they have had due to previous treatment and what else to watch out for.Cheers from Canada  http://www.cancercompass.com/message-board/message/all,24950,0.htm LToronto Thu, 12 Jun 2008 00:00:00 GMT I started working in the HVAC industry at age 30,now 20 years later i have Hodgkins 3B,NS.I came in contact with water treatment chemicals for cooling towers and boilers,been exposed to corrosion inhibitors,biocides for algae and slime control,not to mention refrigerants and oil,i wonder if there,s a link here http://www.cancercompass.com/message-board/message/all,24915,0.htm Vinnie Wed, 11 Jun 2008 00:00:00 GMT   I served in the U.S.Navy from 87-94 and was exposed to about everything known to man kind.my last year in the Navy I seemed to have chronic illnesses,such as flulike symptoms,mouth ulcers,fatigue,cellulitus,and reactive airway disease.4 years after i was released from the Navy I was diagnosed with a Mediastinal Mass of hodgkins lymphoma 1/3 the size of my chest cavity.The V.A.has denied my claim for this ,how fast does hodgkins disease grow? and how long can you have this until it shows up?  http://www.cancercompass.com/message-board/message/all,24680,0.htm mkmurph Wed, 04 Jun 2008 00:00:00 GMT I am overwhelmed and scared.  My best friend is doing everything he can.  He is eating everything I tell him to eat which is very hard for him as he thought fast food was a food group.  Now we learn that he doesn't qualify for free treatment at MD Anderson but he has no insurance.  Does anyone have any information or resources to offer?  He is 24 years old! I already lost another best friend to malignant melanoma at 27.  This cancer is so treatable right?  How do I help him GET the treatment? Please help us, I am not willing to be a victim to cancer right now, and neither is my friend. Thank You   http://www.cancercompass.com/message-board/message/all,24618,0.htm nomorevictims Mon, 02 Jun 2008 00:00:00 GMT Hello, I was diagnosed with HD in the spring of 1974, originally stage 4, six months later stage 2. I just celebrated 34 years survivor. I am going to be 47 this year. I received full body radiation and chemo for two years, and also had my splean removed. Because of the large amounts of radiation I was unable to have children. I am in search of people who have had problems with their heart due to the large amounts chemo and radiation. I have had a heart murmer for 20+ years that has become worse the last couple of years. In feb of 2008 I was diagnosed with Conjestive Heart Diease. I have a leaky valve that may need repair soon. I have lived a very full life and have worked hard, but now I have no energy, I get tired really fast and I am unable to return to my job at this time. I am very fortunate to have a supportive family and a wonderful fiance'e. Thank you for reading my story and hope that all is well with those of you that read this. http://www.cancercompass.com/message-board/message/all,24192,0.htm Blondie1961 Tue, 20 May 2008 00:00:00 GMT Hi everyone my name is Margaret, 24,I had hodgkins lymphoma.  I have been in remission for 5 years June 10.  I had 6 months chemo ABVD also did rituxan for six weeks then I had I beleive 5 weeks of radiation.  I was wondering if anyone out has had problems with there teeth. from any of the medicines or radiation?  Anything please let me know...  Thank You http://www.cancercompass.com/message-board/message/all,23794,0.htm Margie02 Tue, 06 May 2008 00:00:00 GMT Hello, my name is Mark; my daughter was diagnosed with Hodgkin’s two summers ago. My family and I decided to move from FL to NY in order to have our child treated at Sloan Kettering. I must say in my opinion SK is the greatest gift to mankind. My sweet girl is in remission and I owe her life and in turn my life to them.While being treated there for almost 2 years my daughter and I saw so many families that were in major distress about how they would afford treatment. Many other families had to move to NY as we did and were in major financial distress. My daughter said "Dad we must find a way to help them". We came up with the idea of a web site, dollarfairy.org where people could tell their story and receive small donations from others, which could add up to amounts that could really help. We decided to add other categories to the site to help a wide range of different people in need. We added categories among others for, wounded soldiers of the war, sick and needy adults as well as kids; college bound kids, inventors, and people down on their luck. We also decided to add an element of fun and good fortune by offering donors one entry into cash and prize give-aways for every $5 donated. Additionally, when a member in need makes a $5 donation to another member in need their own page which tells their story, will benefit by having their story showcased, and having it placed in a better position on the member list. At such time as our membership builds to a significant amount, we will be offering substantial prizes for those who donate. At that point our donors will not only get a warm feeling when giving, they may also receive substantial rewards for doing so. We plan on charging $10 for an annual membership which will help us pay some of the expenses of running the site, advertising our member's requests for help as well as adding funds to our give-aways, but for the time being, membership is free when the coupon code (help me) is used.Please feel free to join and share your story with others who are in a similar situation. Those who join while we are a young and unknown web-site will be given special consideration in the future for helping us to become well known. We want very badly to help to make a very positive difference in this world. Thank you for taking the time to read this and for possibly helping my daughter reach her dream of helping others, by simply joining. If you would like to speak directly to my daughter Maddie, go to the site and send an email and she will reply quickly.  http://www.cancercompass.com/message-board/message/all,23551,0.htm Tradeheart Tue, 29 Apr 2008 00:00:00 GMT Its been about 6 weeks since my final (12th) chemo treatment.  The neuropathy in my feet is still pretty bad.  I wonder how long this lasts and if it will ever go away.  Please post comments about your experience with this tingling and numbness of your feet (or hands).  How long did it last?  Did it ever completely disappear? http://www.cancercompass.com/message-board/message/all,23503,0.htm EricJR Mon, 28 Apr 2008 00:00:00 GMT My Dad decided to stop chemo for good. He is has stage 3 B hodgkins lymphoma. His Oncologist won't give us a straight answer on the effects it will have on my dad. Does anybody know more or less how long it takes for this horrible disease to take over? I am such a wreck. http://www.cancercompass.com/message-board/message/all,23130,0.htm welovedad Wed, 16 Apr 2008 00:00:00 GMT A friend of mine her 22 yr old daughter has had hodgkins for about 18 months. She has had 3 rounds of chemo and 1 round of radiation. She was getting prepped for stem cell transplant and could not have it due to active cancer. This time she can not stay well enough to get the chemo. She keeps getting infections after infections. She had a dangerous reaction to the last chemo with elevated BP's and Pulses. So now the tumors in her chest have grown larger than first diagnosed. She is on 100% oxygen via mask, can't breath, can't eat, delierious and confused. She is in ICU. she is now back on the chemo....... So for the last several months she gets a little chemo and then they stop it, a little chemo and then they stop it.??? I am losing my mind. Can anyone relate to this? Will she survivie? http://www.cancercompass.com/message-board/message/all,23038,0.htm gracie32744 Mon, 14 Apr 2008 00:00:00 GMT Any ever hear of any occurance of hodgkins lymphoma in a mother, a daughter, 3 years later and the family dog?  I'm worried because it's my wife's family and she's worked in that house and with that family for over 10 years as a nanny staying over at least once a week.  I'm immediately jumping to an environmental conclusion and worried about her, but wondered if anyone else has heard of a similar situation? http://www.cancercompass.com/message-board/message/all,22947,0.htm bmac31277 Thu, 10 Apr 2008 00:00:00 GMT Hi Everyone.  My husband finished treatment for Hodgkin's Lymphoma in August 2007.  His first PET following treatment was all clear (in 11/07).  He had a CT Scan in February 2008, and he recently found out he had new enlarged lymph nodes in his neck.  He has no other symptoms, and he was just beginning to recover from the flu at the time he had the CT.  They have ordered a PET for next week, but we are scared!  Has this happened to anyone else?  Is it realistic to think the flu/bad cold could have caused these neck lymph nodes to swell?  Thanks!! http://www.cancercompass.com/message-board/message/all,22677,0.htm bearo Thu, 03 Apr 2008 00:00:00 GMT My son, age 24,  was found out that he has Hodgkins State 2B in Jan. 3, 2008.  He had 4 cycles of ABVD treatments, not responding well.  ESHAP started the 2nd week of March and he will have the 2nd cycle by tomorrow.  I was told by the doctor that he will have Autologus BMT as soon as his tumors getting very small from the ESHAP treatment.  Then, Radiotherapy will be followed.  During this week, my son needs to have 4"Neupogen" injections to boost his white blood cells and another 10 injections after this 5-days treatments.  This Hodgkin, all these treatments, injections and side effects drove me crazy and I almost went mad. I don't know how many times I cried for my son.  He is a smart, lovely and gently boy in the University.  He feels so bad whenever he sees my sad faces as I really don't know how to hide my sadness.Please give me some suggestions, ideas and supports about the ESHAP treatments, Autologus BMT and the "Neupogen" injection.  Should I trust all these and that's the right way to save my son. The road is really rough and tough for my poor boy! http://www.cancercompass.com/message-board/message/all,22522,0.htm Angelayoyo Sun, 30 Mar 2008 00:00:00 GMT Hi my name is Amanda I am 33 years old I have been dealing with Hodgkins for almost a year in half now. I was told oh this is the best kinda cancer to have if you to have cancer it is so easily treatable well I can assure them it is not for me and so many others that I have read their stories on here. My question is I was told by my oncologist that the next step for me is a stem cell transplant all I have had is ABVD no radiation. I just feel like there has to be something else they could to do before the stem cell transplant. Is there anyone else out there that has gone through this and can give me some advise. http://www.cancercompass.com/message-board/message/all,22364,0.htm amandamichelle Wed, 26 Mar 2008 00:00:00 GMT Hello All, After going through Chemo and the final PET scan for my Hodgkins, I decided to get my act together and get into shape.Chemo side effects could include weight gain - more weight gain than I ever experienced.  For my new curriculum, over the past 3 months, I have been going to the gym 2-3x a week, running 5 miles on average each visit on treadmill. Just to let you know, I never had real endurance in my life. I was always the last in my class running and when forced to I had to do short sprints - not to mention that I found running boring. After a healthy change in diet (no junkfood, no sodas, low on carbs, sugars and fat, low on red meats) lots of whole grains, flax, veggies and consistant exercise I lost 25 lbs. in 2 mths and, could honestly say that I feel in better shape than before diagnosis. I could finally catch up to my kids unlike before. Hoping this little blurb could help you all. Take care. http://www.cancercompass.com/message-board/message/all,21692,0.htm Ilan2007 Wed, 05 Mar 2008 00:00:00 GMT Maybe I should have put this under a different message board but I am trying to find some answers for myself and my father. My father is 83 yrs old. He has always been a healthy, strong willed, active man. He farmed all his life and then worked for 20 yrs. (until he was 80) at a window factory. His only main health issue was his bad back. He also got lymes disease 2 yrs ago. About 5 yrs ago he started to have problems with his legs swelling up for no reason, the Dr. passed it off as artheritis. He would have a few unexpected fevers and his hands always seemed to itch. One other thing that seemed strange was that when it got cold out and he was outside his hands and nose would turn an extreme purple, almost black.Last yr. all of this changed for him. We thought he had phnemonia (sp?), so did his Dr. but they also did x-rays and found he had something on his left lung. At the time they thought he might have lung cancer, my father has never smoked a day in his life or been around anyone who smokes. To get right to the point....after a very long stay in a large hospital and with a team of doctors they found out that my father needed heart surgery. His one main heart valve needed to be replaced. They then informed us that he had lymphoma. His chest was full of it when they opened him up on his lungs. They said they could not operate or take any off because it was to dangerous but they had been there for many yrs. They also said that when he gets cold his blood clots way to much, so that is why he turns purple. This had been going on as well for many yrs and they called it cold gluton. So when doing his heart surgery they had to do a completely different procedure for slowing down his heart. Later at several check-ups which I did not go to (my mother only understood part of the conversation and my father is almost deaf so he didn't hear any of it), they told my dad that he had leukemia and Hodgkin's disease. I don't quite understand, is all of this related to one thing? Or are they ALL different and separate cancers he has? Does the cold gluton go with any of these, such as the leukemia? And does this mean the leukemia is separate from the Hodgkins? My father's one main Dr. at Regions in MN said that he didn't think my father should do chemo or radiation, it would just wear him out at his age. He has had it for many yrs. this Dr. said and he has done well health wise. He talked instead about a type of medicine for my father that would help him as he did get worse. He did say that he would probably only give him 3 yrs left. Since we don't go all the way back to Regions and we never went into detail on this "medicine" we have no idea what specifically it is. I wish we would have found all of this out and am wondering how now to do so.If anyone could answer my questions I would be so appreciative. I am trying to deal with this and get by. My mother was just diagnosed yesterday with colon cancer, which came as a shock to all of us. We thought she would be fine when having her colonascopy, after all it runs on my dad's side rampid and we thought he would end up with it but hasn't as of yet. This has been a very difficult yr. since last March till now.Roxy http://www.cancercompass.com/message-board/message/all,21454,0.htm Hope4mydad Thu, 28 Feb 2008 00:00:00 GMT Iam 25 and i just found out i have hodgkins. was wonder if anyone out there can tell me what to expect. i have to do 8 rounds of chemo and 24 sessions of raditation. http://www.cancercompass.com/message-board/message/all,20729,0.htm baseball1983 Thu, 07 Feb 2008 00:00:00 GMT I have been in remission for 6 years with Hodsgkin. I had radiation to the chest and throat and chemo. I cough all the time, it is like a tickling. Anything triggers it, food,smells, the cold, the heat. I have talked to so many doctors, and they me on different things. The only thing that helps me sleep is cough medicine with coedine, which I have a hard time getting. Does anyone have any suggestions? I am so frustrated and get tired of the people making making fun of my cough. I know they are not being mean. Any help would be great..thanks http://www.cancercompass.com/message-board/message/all,20649,0.htm Capricorn Tue, 05 Feb 2008 00:00:00 GMT I have a young friend who has Hodgkins and was wondering if there is any relationship between this and Breast Cancer -- like a higher frequency, comes as a secondary, etc.  Any ideas?  Thanks, Cath http://www.cancercompass.com/message-board/message/all,20335,0.htm poppy/cath Sat, 26 Jan 2008 00:00:00 GMT Hello Ladies,I recently had a breast cancer scare but the tissue turned out to be benign. I have decided to have a bilateral mastectomy with reconstruction. The doctors are highly recommending it b/c of the mantel radiation I had when I was diagnosised with Hodgkins Disease in 1980 at 15yrs. I feel like this is the best for me. I am just wondering if anyone else has made this decision. I am scheduled to have the surgery Feb 28, 2008.Thanks for you input. http://www.cancercompass.com/message-board/message/all,19960,0.htm Paula43 Mon, 21 Jan 2008 00:00:00 GMT my husband finished treatment in august and so far according to x-ray and blood work in early december everything looked ok. i spoke with the doctor and told her he was very itchy.said to wait it could be the time of year. but now he is scratching to the point he has sores on his arms, lower legs and his neck is very itchy. he had slight red patchs when first found out he had hodgkins(stage 3b) but nothing as bad as this. should i try to have him insist on ghalium scan? any info would help!!! http://www.cancercompass.com/message-board/message/all,19179,0.htm chriscaregiver Fri, 28 Dec 2007 00:00:00 GMT Vinnie here, just when i thought i was all better latest cat scan picked-up increase lymphadenopathy in the same location,as usual it always happens around the holidays,anyway due for a pet scan Dec-27,all i want for Xmas is a Hodgkins free body,Santa http://www.cancercompass.com/message-board/message/all,18972,0.htm Vinnie Tue, 18 Dec 2007 00:00:00 GMT