Latest Non-Hodgkins discussions http://www.cancercompass.com/message-board/cancers/lymphoma/non-hodgkins/1,0,119,57,58.htm Sat, 30 Aug 2008 00:00:00 GMT Sat, 30 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband and I are trying to find a location that administers Bexxar, preferably close to us in the U.S>.  We can't get it in Ontario or Quebec, and live near Toronto. Zevalin is a possibility here at a private clinic,  but we would prefer Bexxar.  Checked Roswell in Buffalo this week and they can't do it, even though they are listed on Bexxar site as available. ALSO we would appreciate being contacted by anyone who has had the Bexxar treatment for aggressive transformed NHL and wouldn't mind sharing opinion of this option and experience with this treatment. Time is a big concern for us. My husband:Diagnosis 1999, 3 CHOP + RadiationCVP 2006Transformed 2007, 3 DHAP plus auto Stem Cell TransplantAggressive Relapsed April 20083 CHOP, partial responseOptions:  Bexxar or PalliativeNOTE:  Glaxo has study they will send to requesting doctor re 14 post Stem Cell Transplant failures who then received Bexxar. 50% acheived remission.   http://www.cancercompass.com/message-board/message/all,27696,0.htm NicksWife Fri, 29 Aug 2008 00:00:00 GMT Hi .. hopefully someone can help.  I was diagnosied with stage iv FNHL last August 2007 and underwent treatment R- CHOP 8 treatments - three weeks apart. Slid a few of thoses and ended up finishing treatments about feb08. Side effects were few controlled.... all in all it was a bearable process.  I have been back for two treatments or Rix (Mabthera). I was told that I would probs be in early menpause ...... I have just found out I am pregnant.  Has anyone else become pregnant while in remission?     http://www.cancercompass.com/message-board/message/all,27483,0.htm fiona821 Sun, 24 Aug 2008 00:00:00 GMT My dad just passed away Friday August 15th from NHL. Of course I suppose it's understandable to have questions, I look back and don't know how we ended up here. He was diagnosed in May 2008 (he was 78) and we were told it was early stage 2, very treatable - good diagnosis. However - he was very sensitive to the chemo. He started out rough. Looking back it seems like the downhill slide began when he got shingles. (after the 3rd round) My mom had told their primary care doctor about "something on his skin". They didn't look at it and by the next week it was full blown awful shingles on his backside - that also let to incontinence. They went ahead with the 4th round - a week later than scheduled and then we got a call early in the morning (Friday 8/8) that he had fallen (perhaps blacked out) and my mom couldn't get him up and he ended up in ICU.There - we found he had had thrush for at least a week. He was in ICU 1 day - seemed to be doing better. Back to ICU improved over two days. They thought he had pneunomia and then determined that he had possibly had a heart attack perhaps when he blacked out and had congestive heart failure (50% capacity). He wasn't breathing well--and was not responding well to the oxygen mask they were using (forces air in his lungs). It was very uncomfortable on his fragile skin and he kept taking it off, was combative, started taking tubes out, tried to stand up,  and then he refused to get on a ventilator - they went back to a different type of oxygen mask (that was Thursday and that was it). He wasn't getting enough oxygen his oxygen intake level sunk too low and after Thursday evening we had no response from him until he passed away late Friday.I guess I don't understand how we went from cancer with a "80-90%" recovery rate to the awful death my dad experienced. Is this normal? Just one of those things? I miss my dad...  http://www.cancercompass.com/message-board/message/all,27356,0.htm wendes1 Wed, 20 Aug 2008 00:00:00 GMT Hi, I'm new to the post but not to NHL. I was first diagnosed in 2001 (age 36) after finding a rather large lymph node (just one) on the insided of my right thigh.  It was removed & biopsied and I was told I had Follicular B Cell NHL.  I was put on an 8 week course of Rituxan and then scanned 3 months later.  All Lymph Nodes were clear.  I had routine CT scans done every quarter and then twice a year.  Dec 2003 at age 38 the lymphoma was back and was in a few lymph nodes.  Some in right leg, and some in left leg.   They were small and slow growing so my Doc decided to do the watch n wait approach.  I then had CT scans twice a year, each scan showed slow growth.   A scan Dec. 2006 had indicated more lymph node invovlement all in groin area (inguinal ).   Since the lymph nodes were getting very large the Doc & I both decided to treat with Rituxan again.  I did 8 week course 02/2007.   A scan 2 months later showed that the lymph nodes began to respond and shrink.   I then scanned 6months later that year indicated lymph nodes growing again. (they never completely shrunk back to normal size.  That brings me to now, 08/2008.  I have enlarged lymph nodes in both my legs but no where else. My blood work is completely normal.  I've never had night sweats, weight loss, or have been sick.  I face treament options soon because eventually the lymph nodes will get too big and can cause swelling and circulation problems.  I am now 42 and in excellent health, except for this indolent NHL.  I am looking for someone that may have a similiar experience to mine and would have some advice on which treatment option would be best, given my situation.  I have 3 choices:  1. Treat with Rituxan again, along with some chop therapy   2. Treat with Rituxan, & Zevalin   3.  Autologous, or donor Stem Cell Transplant.   I was told that some with this similiar form lymphoma have actually exeperienced a complete remission with the stem cell treatment, but not all.  Achieving complete remission is unheard of for NHL, but does give one hope.  I appreciate any feeback.  Thanks much, and to all who live with this disease....never give up hope.    http://www.cancercompass.com/message-board/message/all,27161,0.htm blondie611 Thu, 14 Aug 2008 00:00:00 GMT is there any similarity between NHL and SLE or ITP?Can a paitient of SLE ,ITP be treated with reditux? http://www.cancercompass.com/message-board/message/all,26631,0.htm mksurat Thu, 31 Jul 2008 00:00:00 GMT My husband was diagnosed with Mantel Cell Lymphoma in November 2006.  At first the oncologist wanted to take the wait and see approach.  He said that the Chemo and radiation could cause other types of cancer and that his Mantel Cell may be indolent.  So, from November till June  2007 they did MRIs and blood work.  Then one Sunday morning in church in July he passed out.  He was taken to the hospital by ambulance.  We found out that day that his white blood count was at 186,000.  He was put into the hospital the next day and they started him on Chemo.  The Friday of that week the oncologist want to talk with the two of us.  He told us that his Mantel Cell had become "Blastic" and that he had less than a year to live.  From that point on our lives took a dramatic change.  He conuntinued with the CHEMO and we got him into a Bone marrow/stem cell transplant program at Medical College of Virginia (MCV).  The doctors there were excellent.  He received an autologous transplant in November 2007.  We were hopeful, but in January 2008 the Mantel Cell lymphoma came back.  They started him on Velcade and other Chemo drugs but nothing seem to stop the Mantel Cell. My husband died on April 22, 2008.He was 59 years old.  Thank God he was a very strong man.  He never complained about pain nor did he ever ask for pain medicine until his last week of living.  I thank God every day he did not suffer serious pain for a long period of time.  My only hope is for a cure.  Please keep the research going.  Maybe one day there will be a solid treatment plan for Mantel Cell.   http://www.cancercompass.com/message-board/message/all,26483,0.htm care giver 56 Sat, 26 Jul 2008 00:00:00 GMT my partner has been diagnosed with non hodgkin lymphoma and is suffering with awful reflux,he is eating very little which is worrying . has anyone else had same problem and how long does it last? he has only had one session of r chop http://www.cancercompass.com/message-board/message/all,25724,0.htm picses Fri, 04 Jul 2008 00:00:00 GMT Has anyone ever had any experiences with R-ICE.  A salvage chemo given when R-CHOP is unsuccessful.  He needs a bone marrow transplant but has yet to go into remission. He will be admitted to the hospital next weeks for several days for the infusion.Any feedback would be helpful.Thanks,Robin http://www.cancercompass.com/message-board/message/all,25700,0.htm Domer Thu, 03 Jul 2008 00:00:00 GMT My husband went on a trial of Rituximab (over 2 years) on completetion he was given the all clear and has been for the last 12mths but now it has come back.  His Proffessor has now given him an option to go on another trial which is Rituxin+apomab.  I dont seem to be able to find any information about this new drug other than the info given by the Hospital.Can anyone help.   http://www.cancercompass.com/message-board/message/all,25466,0.htm algoir Fri, 27 Jun 2008 00:00:00 GMT My husband originally was diagnosed with Non-Hodgkins Lymphoma Peripheral T Cell - other in 2000 at the age of 47.  He had a stem cell transplant using his own cells in 2001 and remained in remission until 1/2007.  In 8/2007, he had a mini stem cell transplant.  In 10/2007, the cancer returned.  In 2/2008, he had a lymphocyte infusion which has since failed.  He is currently receiving radiation which will hopefully follow with a CD-25 antibody treatment and then a third unrelated donor full stem cell transplant.  My husband has been falling within the last week.  Out of no where, he just drops.  This also includes dropping of his fork when eating  Has anyone experienced this with their patient?  He will be having an MRI in two days.  I am concerned that the cancer has spread to the spinal cord and the doctors aren't moving fast enough.  Please let me know your experiences.  I have dealt with this cancer for 10 years, but still have no idea when it's time for me to "prepare".  I'm feeling very lost. http://www.cancercompass.com/message-board/message/all,25282,0.htm LynnM Sat, 21 Jun 2008 00:00:00 GMT I am just completeing a cycle of 6 sessions of CHOP + R chemo for diffuse large B-cell lymphoma. I am lucky since the disease seems to be in remission.The chemo has given me extreme fatigue and short windedness, my tiredness has worsened with each treatment, and I am now anemic, and my blood chemistry is screwed up. I realize my physical  recovery after chemo stops will take time and I would like to learn the experience of others in the community who may have gone through the treatment.  Will it take months, were you making real progress after 6 months. Were any diets aof particular help?  Would appreciate any info.Thanks,Irv http://www.cancercompass.com/message-board/message/all,24829,0.htm Butyl Sun, 08 Jun 2008 00:00:00 GMT i am a medical student but i feel so much depressed and helpless.i suggested an ultrasound abdomen for my dad who is 60.there was no indication behind it.my dad was healthy,very much active.it showed few paraaortic nodes.we did a CT abdomen followed by laparoscopic biopsy.i cant believe he has a follicular lymphoma grade 3,stage 2.he has few para aortic noses and mesentric nodes,largest being 2.6 cm.can anyone tell me anything about his long term survival? http://www.cancercompass.com/message-board/message/all,24264,0.htm revival Thu, 22 May 2008 00:00:00 GMT Hi, A recent biopsy of a neck mass shows Large B Cell Non Hodgkins Lymphoma. I was first diagnosed in April 1999 with the same, at that time on the brain. I was able to successfully get rid of the brain mass after 2 years of chemo and then Rituxin and an herbal treatment from Mexico called Hoxsey.                                                      Was in remission till one and a half years ago. Mass in chest was diagnosed as small B Cell follicular. Radiation, and Zevalin did get rid of that. Now with cancer moving to the other (left) side of my body, (all previos activity has been on right side) and now being Large B Cell I am being told to do a stem cell transplant. I do not want to because of several reasons #1 being I have done so much chemo already. #2 Do not want to get that sick. Does any one have any other experience with other therapies than chemo, radiation or surgery. I am looking for something that will boost my immune system to beat cancer out and that will not make me sick.Thank you,Steve http://www.cancercompass.com/message-board/message/all,23751,0.htm stephenalonzo Mon, 05 May 2008 00:00:00 GMT In November my dad was diagnosed with NHL. It has been a long and hard road and currently he is in the hospital in the ICU and has been there for 40 + days now. He is stable now finally but there is so much ahead of him. The medical care he is receiving is wonderful. My mom has not been working so she can help take care of him and in the middle of all of this he lost his job and now we are in a court battle with his employer. Needless to say there is a lot of stress and sleepless nights in my house. We are also financiallly struggling. He has COBRA for his insurance so atleast he is covered but I am sure nost of you know that is not cheap. Plus the mortage and the bills we are not sure where to begin. Has anyone found any charities or organizations that have provided assistance to them. I talked to the American Cancer Society and they gave me some ideas I was just wondering if anyone has had success with any of the organizations out there????? I wish all of you good health and you are in my thoughts.  Sarah http://www.cancercompass.com/message-board/message/all,23738,0.htm herefordad Sun, 04 May 2008 00:00:00 GMT Hi all, I have diffuse large B-Cell lymphoma and have had 2 cyles of chemo, CHOP + Retuxan. I would like to hear from others who have had this treatment.  I am tolerating it well but my fatigue level and short windedness is increasing. Does that continue to worsen with increasing chemo?  I am scheduled for a total of 6.treatmentsThanks for your help.Irv http://www.cancercompass.com/message-board/message/all,23614,0.htm Butyl Thu, 01 May 2008 00:00:00 GMT Hi, A recent biopsy of a neck mass shows Large B Cell Non Hodgkins Lymphoma. I was first diagnosed in April 1999 with the same, at that time on the brain. I was able to successfully get rid of the brain mass after 2 years of chemo and then Rituxin and an herbal treatment from Mexico called Hoxsey.Was in remission till one and a half years ago. Mass in chest was diagnosed as small B Cell follicular. Radiation, and Zevalin did get rid of that. Now with cancer moving to the other (left) side of my body, (all previos activity has been on right side) and now being Large B Cell I am being told to do a stem cell transplant. I do not want to because of several reasons #1 being I have done so much chemo already. #2 Do not want to get that sick. Does any one have any other experience with other therapies than chemo, radiation or surgery. I am looking for something that will boost my immune system to beat cancer out and that will not make me sick.Thank you,Steve http://www.cancercompass.com/message-board/message/all,23587,0.htm stephenalonzo Wed, 30 Apr 2008 00:00:00 GMT Has anyone in the community had diffuse large B-Cell lymphoma in a testicle. I discovered a mass inmy left testicle, had an orchiectomy and am have finished my second session of CHOP + Rituxan chemo, of a scheduled 6.Would like to learn others experience. ThanksIrv http://www.cancercompass.com/message-board/message/all,23538,0.htm Butyl Tue, 29 Apr 2008 00:00:00 GMT on velcade experienceing sensitive testicles. comment? http://www.cancercompass.com/message-board/message/all,23537,0.htm tv872 Tue, 29 Apr 2008 00:00:00 GMT Hi, 23 y/o Female. I have a question regarding a BONE hard lump in my neck.  It is about 2 cm and 1 cm below where the mastoid meets the sternocleidomastoid muscle.  It is not visible to the naked eye and is felt when mild pressior is put in the muscle.  It feels rock hard, nonmobile, nontender.  I read a post on here earlier of a gentlemen being misdiagnosed witha knot in his neck muscle and it ended up being Follicular Lymphoma.   Has anyone else has a lump like mine.....or an experience like his? I am absolutely convinced I have cancer because my doctor also said it felt like a hard muscle. But it has definately gotten harder over the past 7-8 mo...I dont think it has gotten any bigger nut I heard NHL is sometimes indolent.  Any advice would be greatly appreciated!!!!!! http://www.cancercompass.com/message-board/message/all,23535,0.htm crestor02 Tue, 29 Apr 2008 00:00:00 GMT Just wondering if anyone is diagnosed with MCL and if so, what therapy are you undergoing and what is your length of remission?  I'm in a Velcade clinical trial maintenance program.  Anyone else on Velcade.  Thanks for your responses.      http://www.cancercompass.com/message-board/message/all,23370,0.htm lacy1942 Thu, 24 Apr 2008 00:00:00 GMT I had non hodgkins lym of my stomach had radiation and all was clear for only 3 months now it is back. I have to wait until june to clear up 2 peptic ulcers so they can decide on treatment. Anyone else with non hodgkins that has come back and what should i expect??                                                                       the dance    http://www.cancercompass.com/message-board/message/all,23357,0.htm the dance Wed, 23 Apr 2008 00:00:00 GMT my husband jim came back from a deployment in kuwait in the spring of 02. he came back with NHL mixed Tcell, Bcell, stage 4 B. he could barley stand on his feet and he still did his job. they also found prostate cancer.   he was first treatet with CHOP, but after a few months, he relapsed. he got rituxon and ICE. in spring of 2003 he had his stemcelltransplant (his own). no relapse. the prostatecancer  was treatet with hormones and surgery. there where some complications, he had a subdural hematoma. he is still cancerfree as of today. he tires easy, but is still able to work part time. there where hard times and sometimes i wanted to drive against a wall, i was so stressed. after all this was over, he asked me if i ever thought he would die. my answer was no. i am forever gratefull to the wonderfull health professionals  and the united states army for taking care of my husband and our family. i think what helped me a lot was talking to other cancerpatients. it is not easy at times but there is always hope. i will pray for you all, god bless  http://www.cancercompass.com/message-board/message/all,23259,0.htm naticale Mon, 21 Apr 2008 00:00:00 GMT I have Grade II, Stage III Follicular Lymphoma. At my first consultation yesterday my doctor advised not to treat me, saying that he wanted to monitor me at 4 month intervals. All of my chemistry is normal and I have no outward signs of the disease, such as night sweats, weight loss, or fever. Has anyone had a similar experience? http://www.cancercompass.com/message-board/message/all,22696,0.htm jean37 Fri, 04 Apr 2008 00:00:00 GMT I dont quite know if anyone out there can really answer my question.  Thursday of this week march 20,2008 I went for my yearly pet scan if found good this would make me three years in remission.  On Friday my oncologist called and said something disturbing to me which Ive never heard of before.  She said I need to re-take this very expensive test again because for some reason my muscles were so tense that they could not read the report well.  I was sleeping through the whole thing i was not tense at all because im okay with my having nhl it's not something I dwell on.  Did anyone ever hear of this excuse or do you think it's her way of making me have a relaxing easter vacation before they double check what they feel they saw.  I havent been feeling well for the last year and im okay if it's back but I want to find out asap so I can kick it's ass again.  Please I hope someone can reply if they have ever heard of such an excuse.  sincerely liann in las vegas. http://www.cancercompass.com/message-board/message/all,22268,0.htm liann Sun, 23 Mar 2008 00:00:00 GMT I was diagnosed with mediastinal diffuse B cell NHL stage 2B in 1999 and have been cancer-free since completing chemoradiation.  I was treated with CHOP and then 21 cycles of radiation. I have done a little research and have seen that heart problems can occur from both adriamycin and radiation treatment.  Has anyone heard of or had heart complications like this following CHOP? Or how about breast cancer? Is anyone familiar with MUGA scan to evaluate for heart/cardiovascular problems? Any help would be greatly appreciated.  Thanks. http://www.cancercompass.com/message-board/message/all,21026,0.htm sandav34 Sat, 16 Feb 2008 00:00:00 GMT