Latest Other Treatments discussions http://www.cancercompass.com/message-board/cancer-treatments/conventional-treatments/other-treatments/1,0,129,123,94.htm Wed, 23 Jul 2008 00:00:00 GMT Wed, 23 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband had several meningiomas and the last one was malignant.  He had radiation and is now on Tarceva.  Has anyone had any experience with any trials or other protocols that could help slow this very aggressive tumor.  Bev http://www.cancercompass.com/message-board/message/all,25980,0.htm bevbertiger Sat, 12 Jul 2008 00:00:00 GMT I have recently had a double mastectomy from a Breast Cancer diagnosis and also just lost my best friend after her battle of 4 years.  I am 46 and she was 48.  While we both were going thru this most challenging journey, we realized that resources, products, support, healing and many other areas are lacking in our area. I have first hand knowledge of the needs of a Breast Cancer patient but would love any suggestions of items that would pertain to the many various types of cancer. I am in the process of opening a facility that will provide the many products that were difficult for us to find.  My hope is that you can guide me to the many other products/services needed for the other various types of cancer that we and our loved ones are afflicted with. I will have an extensive retail store and hair replacement clinic.  If you have the time and desire to help me, help our loved ones, please send me a list of items that would be desired and that would make/or have made life easier for you and your loved ones.  Sincerely,Tammy http://www.cancercompass.com/message-board/message/all,25441,0.htm tam92407 Thu, 26 Jun 2008 00:00:00 GMT 1.       My son is 04 years old and was diagnosed with Wilms Tumor Stage III of the left kidney on 31 Jan 2007.  (No histological features of anaplasia).  Bone scan was normal.  The left kidney was surgically removed on 09 Feb 2007.  The child put on chemotherapy on 21 Mar 2007 (24 weeks protocol).  The drugs used were actinomycine D, VCR  and epirubicin.  After the first cycle he was given radiation of 10.8 gray .  The last cycle finished on 15 Aug 2007.  The last x-ray of Jun 2007 was normal.   2.       On 02 Nov 2007, due to heaviness in breathing the child was taken to the oncologist and the x-ray and CT scan reports showed multiple pulmonary metastases .  The bone scan was normal.  The child put on salvage chemotherapy on 04 Nov 2007.  The drugs used were ifosomide, etoposide and mesna from D-1 to D-5.  The CT scan after three cycles showed improvement.   3.       However, the creatnine count was 1.0, therefore the drug changed from ifosamide to carboplatnin for the balanced three cycles.  The salvage chemotherapy finished on 21 Mar 2008.  The PET CT and CT scan reports show extensive pulmonary metastases with possible local recurrence in the Lt Para aortic region . 4.       Presently the child has undergone raditherapy of 12 gray lung bath ( the Xray show improvement )and has been put on chemothrapy with ifosamide, carboplatnin and etoposide from 28 may 08. Request any advice from anyone who has used any alternate treatment. The cesium chloride or any other treatment that works. please help anyone. Thanks pratap http://www.cancercompass.com/message-board/message/all,24873,0.htm Pratap Tue, 10 Jun 2008 00:00:00 GMT Has anyone with POEMS had difficulties with controlling diabetes?  I have been trying to get a tumor removed on my spine but my diabetes is always out of control.  I have lost 80 lbs in the past 3 months but my diabetes is still in the 300 and 400 reading.  I need suggestions and most of all HELP.  http://www.cancercompass.com/message-board/message/all,24685,0.htm royalcrimson4u Wed, 04 Jun 2008 00:00:00 GMT Have any of you had chelation therapy?  Your opinion about your treatments and if you are gald you did this. http://www.cancercompass.com/message-board/message/all,23926,0.htm Cajun Sun, 11 May 2008 00:00:00 GMT I lasted only 8 1/2 days putting efudex on the back of my hands and fingers.  It made my right eye get all red a swell.  This had happened before.  It is now been three weeks since I last used efudex and my hands are still very blotchy and there are still some scabs.  Is it possible that because I didn't use for the correct length of time that my hands are not going to heal???  Help http://www.cancercompass.com/message-board/message/all,23854,0.htm Aitkin Thu, 08 May 2008 00:00:00 GMT I have recently been diagnosed with ostronecrosis of the jaw, a side effect of the drug Zometa, which I have received several doses since 2003 for the metastisis of breast cancer to my spine and leg and clavicle. I am cancer free in my bones now but my jaw is dead, tissue over the dead bone won't heal from a tooth extraction and I am in excruciiating pain. They say there is no trreatment, it's irreversible and not much they can do. ANyother sufferers out there? How do you cope with it --increasing doses of pain medicine. It helps with the pain byt I am tired all the time, and sleep a lot more than I'd like to . My cancer is stable. Sharon B. http://www.cancercompass.com/message-board/message/all,23278,0.htm Sharonb Mon, 21 Apr 2008 00:00:00 GMT My father is a type 2 diabetic, suffers from high blood pressure, a long history of stomach ulcers, and osteo-arthritis.  Several years ago, he over-medicated himself with a drug designed to control the pain associated with osteo-arthritis.  The drug ate a hole in his duodenum, and he had to be rushed to the hospital because of the profuse bleeding that resulted from the perforation of his duodenal ulcer.  Two years ago, he had a terrible pain that wouldn't go away, and like most men of my father's generation who lives alone, he suffered in silence without bothering to explain to anyone what he was going through and he wouldn't see a doctor about it.  Why?  Because he thought it was one of his old ulcers acting up.  When the pain became agonizing, he finally went to the emergency room of a nearby hospital. It turned out that his problem wasn't an ulcer.  Rather, it was an inflamed gall bladder.  But the gall bladder was in such terrible condition by then, that it had to be removed in pieces.  When the biopsy results came back, it tested positive for cancer.  As a result of the surgery, the remaining cancerous cells spread to other parts of his body.  He now has cancer in the liver and duodenum.  His doctor told him he couldn't give him chemotherapy or radiation because the cancer that settled in his duodenum took root at the site of the old ulcer in his duodenum.  So, he now has a cancerous bleeding ulcer in his duodenum.  Has anyone ever encountered someone with a cancerous, bleeding duodenal ulcer?    If yes, what treatment did his/her doctor recommend?  I'm desperate.  Since the ulcer is bleeding, he gets anemic and must go in periodically for blood transfusions.Help me to help my father. http://www.cancercompass.com/message-board/message/all,22165,0.htm Violetflame Wed, 19 Mar 2008 00:00:00 GMT Since I have been on Tamoxefin I have found it hard to control my appetite and weight.  I was never a lightweight but now I just have a huge appetite and havent much control.  I know there is an emothioinal eating factor involved here as well.  I have just been swithched to Arimedex.  I dont now what effect this will have on me.  Does anyone have the same side effect with weight gain?  What Works.? http://www.cancercompass.com/message-board/message/all,21117,0.htm SarahBee Tue, 19 Feb 2008 00:00:00 GMT Hi, was wondering if anyone has been on Eurbitux and has experienced the side effects of rash in mouth and / or on face, arms, body.  What has worked in treating this, and what has helped with eating if it is in mouth, ie food type or remedy?  I am trying to help my niece.  Thank you so much for any information. http://www.cancercompass.com/message-board/message/all,20402,0.htm Gemini2 Mon, 28 Jan 2008 00:00:00 GMT I was diagnosed with ET a couple of months ago.  I am 36 yo and they found out I had this because at the beginning of the year I had my thyroid removed (totally unrelated) and since then they've had to test my blood frequently.  Even before my surgery my platelets were elevated and my Drs were slightly concerned but since then they have gone up and up and when they reached over a million I had to have my bone marrow biopsied.  My Dr told me I had ET and had to start taking hydrea.  I am curious by nature and did alot of research on the drug and am very concerned about starting that at this point in my life since I have a long time (hopefully) to deal with this disease.  On a side note, I have never had children and have not quite given up hope.  I know what the drug does to unborn children and I feel that it would be somewhat irresponsible for me to start this treatment when I know in my heart I would want to get pregnant.  At this point my Dr is thinking I am being unreasonable but also said I would probably do ok with just an asperin a day until I am a little bit older and treatment will become necessary.  I don't know if I am in denial but because I have had no symptoms I am more afraid of the treatment than I am of the disease.  This is definitely not cut and dry and because I am having to make choices about my health I feel like I need some support from people that really understand!!!   Please help me make, what could be, the most important decision of my life.As it appears that people don't keep up with this message board to often, pls feel free to just email me so we could chat more 1 on 1. My address is --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- I would appreciate all the help I can get.Thank you for reading!! http://www.cancercompass.com/message-board/message/all,19671,0.htm cln714 Sat, 12 Jan 2008 00:00:00 GMT Anyone suffering from chemo fog?  I have a very short memory now and become frustrated because of it. Most of the time my husband makes me laugh but it can get to you. For the first time in my 25 year marriage I forgot my husbands birthday. Now I remembered the week before but for the day of...then I went on to do the same to my mom! Help! Terry http://www.cancercompass.com/message-board/message/all,19588,0.htm TenPenny Thu, 10 Jan 2008 00:00:00 GMT I did chemo for 6 months twice a month for Breast Cancer and 6 weeks of Radiation. I concluded everything in May. Since then I still have numbness in my fingers, feet and toes. I feel like ants are sometimes crawling on my legs and it hurts when the covers touch my toes. If I get a chill it is severe COLD to my very bones. I also have lymphedema in my left arm. I told my doctor and he has started me on Ly something. I have not picked the medication up yet. I hope it works. He says this should have cleared up by now but it hasn't yet. I stay prayerful and hope someone has found something that will help. Stay strong.  Terry http://www.cancercompass.com/message-board/message/all,19585,0.htm TenPenny Thu, 10 Jan 2008 00:00:00 GMT I have had Essential Thrombocythosis for 20 years (since I was 25).  I am currently on a combination of Hydrea, Agrylin and asprin.  My life is controlled by extreme exhaustion and crippling headaches.  My haemotologist is talking about a bone marrow transplant as an option.  There is not much literature for ET sufferers and I feel quite lost and alone here.  Does anyone have any information about bone marrow as a treatment option for ET or any other valuable information about the medication that I take.  I've been on Hydrea for at least 15 years and agrylin for about 5 yrs.  http://www.cancercompass.com/message-board/message/all,19469,0.htm josey Mon, 07 Jan 2008 00:00:00 GMT Hi. I'm new to this board. My gyno told me the depot lupon shot can protect the ovaries from low dose chemo/cytoxan with a 90% return to normal rate. I'm wondering if anyone knows if depot lupron can sufficiently protect the ovaries from high dose Chemo & immunosupressants?Thanks. http://www.cancercompass.com/message-board/message/all,19114,0.htm pinkflower Tue, 25 Dec 2007 00:00:00 GMT Hi, I am looking for any and all information on anyone that has used alternative and/or complimentary treatments for stage iv cancer.  Information on good or bad.  Also has anyone gone to cancer treatment ctrs of america and what did you think?  Any other treatment centers?This is for my 30 year old niece.  I am desperate to get any information.  I have been researching for 2 years.  Thank you.  http://www.cancercompass.com/message-board/message/all,16728,0.htm Gemini2 Wed, 03 Oct 2007 00:00:00 GMT Hi, Suitable links and advice is essential in getting the right information. www.mesotheliomacancer.com.auRegardsPeter http://www.cancercompass.com/message-board/message/all,14559,0.htm Active Sat, 21 Jul 2007 00:00:00 GMT My mother was dx in 2000 w/ breast cancer, we did radiction, chemo,& a mastectomy. Then in 2002 she now had cancer in the other breast, same treatments as before but w/ the added removal of a lymphnode. Now Jan. of this year after dealing w/ headaches for over a month. An MRI tells us she has brain cancer (cerebella metastasis). Once again radiation and chemo.Lab results found that she is her2new postive.Thenon June 25th after another MRI tumors on her spine ranging from the T12, T1, C6,and the T6-7 they call it metastatic bone disease. Did 15 radiction treatments. Today, July 17th, a CT scan found lesions on her pelvis. How much can the human boby take. I just pray to God she pulls thur all this. Is there any thing that can be done. Any and all advise is welcomed. http://www.cancercompass.com/message-board/message/all,14442,0.htm TX. Ann C Tue, 17 Jul 2007 00:00:00 GMT i have taken one shot of the lupron depot. i went in the other day to get the second shot and i wound up being pregnant. i was wondering if anyone knew the effects of the shot on the unborn child. my doctor said i should be fine but i am still very concerned. http://www.cancercompass.com/message-board/message/all,13159,0.htm Beautifulmotherof3 Tue, 12 Jun 2007 00:00:00 GMT I know some of you have research Dr.Budwig's cottage cheese and flax oil. From my research it sounds like you shouldn't do the cottage cheese and flaxoil protocol and eat refined sugar, meats etc. What if you're just doing just the cottage cheese and flax oil and not all the rest of the diet. as a preventative to getting cancer? As far as I know I don't have any cancer, just trying to try things to be as healthy as possible. It sounds like a healthy thing to do daily. http://www.cancercompass.com/message-board/message/all,12944,0.htm Richdc Wed, 06 Jun 2007 00:00:00 GMT Anybody wants cmd,concentrated mineral drop foprm utah great salt lake capable of treating any diseases. call janice @+966567890160 & +966508563077riyadh,saudi arabia. http://www.cancercompass.com/message-board/message/all,11817,0.htm Mcjane73 Fri, 04 May 2007 00:00:00 GMT Hi, I was wondering if anyone has experienced alot of pain, and that it happened to be just from taking Sutent? My Dad is having pain that we are hoping it is just that, not more cancer. He is having pain in spots that have NOT been identified as having any masses. Also, does anyone know if there is a better pain med than Oxycontin? He is taking that, but it seems to be less and less effective. http://www.cancercompass.com/message-board/message/all,11391,0.htm Lisabetsy Wed, 18 Apr 2007 00:00:00 GMT Does anyone have any information ie treatments, type of doctors, alternative methods on trying to get wound to heal-will somewhat close and then reopen again.  The chemo is completed, but still on Avastin.  Please help.  Thank you.   http://www.cancercompass.com/message-board/message/all,10175,0.htm Gemini2 Thu, 08 Mar 2007 00:00:00 GMT My bother in law was recently diagnosed with Rectal cancer, he has not had a any treatment as yet but will be in the next couple of weeks. I have been on the internet checking out alternative therapies etc Zeolite seems though it may be  the best to try. Can anyone who has used Zeolite give me their opinions PLEASE? http://www.cancercompass.com/message-board/message/all,10079,0.htm Rozie123 Sat, 03 Mar 2007 00:00:00 GMT Has anyone tried either of these treatments?  My brother in law has angiosarcoma and starts chemo next week. He is looking worse by the minute and we are al scared and feeling helpless. I've been researching hydrozine sulphate and b17.  They sound promising but b17 is supposedly illegal.  I did find a web site that sells it but am having a tough time getting thru.  Can someone PLEASE help me! http://www.cancercompass.com/message-board/message/all,8840,0.htm Cindy01 Mon, 15 Jan 2007 00:00:00 GMT