Latest Ovarian Cancer discussions http://www.cancercompass.com/message-board/cancers/gynecological-cancers/ovarian-cancer/1,0,119,38,26.htm Fri, 16 May 2008 00:00:00 GMT Fri, 16 May 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ What is the percentage on a JGTC coming back? I have read all the stories and now I'm wondering if the doctors told me the tructh.  I have just been told for the first time that my Inhibin came back abnormal. Just wondering what case do i have that the tumor has returned.  please advisethanks so much,Charlene  http://www.cancercompass.com/message-board/message/all,24063,0.htm rockspecialone Thu, 15 May 2008 00:00:00 GMT I am 34 years old and I found out 3 years ago that I had a Juvenile Granulosa cell tumor the size of a football. I had no idea I even had the tumor. I had it removed long with a total hysterectomy back in Feb 2, 2005 without radation or chemo. Everything was going good until today. I was told today that may bloodwork (inhibin) came back abnormal. The doctor said mine was reading 17 not sure what that means. What is the normal reading and what is a high reading. I was told to wait 1 month and come back to have the CA 125 and Inhibin A test.  Is it possible that the test could have been wrong? Or should I be worried? Can someone please help. Thanks for your help,            Charlene  http://www.cancercompass.com/message-board/message/all,24056,0.htm rockspecialone Thu, 15 May 2008 00:00:00 GMT Hi, I am Irene, 55 years old, diagosed july 2006 at Memorial Sloan Kettering in Manhattan, NY. Had surgery, debulking, etc. stage 111c. Did IP therapy and clincial trial of avastin until july 07 when I had a bowel obstruction and had to stop avastin. After all this aggresive treatment, was in remission until April 2008, 15 months. CT scan revealed early recurrence and CA 125 rising slowly. My initial ca125 was 30 a false negative when I was first set up for surgery. At current it is 70. At the same time I was diagosed, my middle sister also was diagosed with Stage 4, she is 3 years older than me.Our older sister was advised to remove ovaries and did immediately. Our mother 37, years ago. died of Ovarian Cancer within three months.  We were well aware of this dreadful disease and we followed our Gyn visits regularly but not aggressively. None of our Gny's were aggressive and gave no feed back to us.As of May 1, 08 started Armidex only for 9 days, had nausea and my oncologist switched to Famara. Anyone have any luck with Famara? Any side effects? I'm beginning to fell a little nausea again and extremely tired. I don't know if the tiredness is from depression also.  This disease is a mental game, never know when the next bomb will drop. It consumes every minute of your mind. I would love to know how woman have the courage and stamina to get going cheerfully.I wish anyone suffering from OC the best and peace of mind.Irenerum601  http://www.cancercompass.com/message-board/message/all,24014,0.htm irenerum601 Wed, 14 May 2008 00:00:00 GMT This is an article from Philadelpfhia Inquirer :What a bunch of untrue statements...and how credible is this paper?????  I have the latest scientific study on mistletoe straight from Germany and believe that this medication is working for me. Big Pharma is behind this article because they do not want to admit to anything that works!!!! and they will do and say anything to protect their chemical soups.And also have no interest  because the patent is already done by other country. I read Natural News everyday and they say a lot how Big Pharma works against anything that is not from USA. Well known celebrity from old show "Threes company"-Suzanne Somers she went to Germany and they cured her cancer with Mistletoe. She was on National TV and on many talk shows and spoke about it..Philadelphia .....April 25, 2008It's probably best to use mistletoe to grab a quick smooch around Christmas time rather than as a supplement to help fight cancer, at least for now. More than 20 previous studies of mistletoe extracts were analyzed by the Cochrane Collaboration, a nonprofit organization that reviews health care research. The extracts are among the most prescribed drugs for cancer patients in several European countries. Proponents say mistletoe boosts the immune system and reduce the negative effects of chemotherapy and radiation treatment in cancer patients. Cochrane researchers examined 21 clinical trials of mistletoe extracts alone or in conjunction with radiation or chemotherapy. All told, the studies included nearly 3,500 cancer patients from Austria, Bulgaria, China, Germany, Italy, Romania, Russia and Ukraine. The researchers concluded that the evidence supporting the use of mistletoe extracts was "weak." While there was some evidence that it might benefit breast cancer patients undergoing chemotherapy, they said, high quality independent studies are needed to truly assess its value and safety. Copyright (c) 2008, The Philadelphia Inquirer I am open for discussion. http://www.cancercompass.com/message-board/message/all,23974,0.htm Elisabeta Tue, 13 May 2008 00:00:00 GMT I am a three year survivor of PPC. I try and find any information I can on the reaccurance of this type of cancer. I was treated at John Hopkins in Baltimore, Maryland and am doing very very well. To my friends and family I rarely even mention what I've been through and just pretend it never happened. But there is an underlining feeling that scares me beyond belief. I always have stayed positive until receantly. In my 1st few months of remission I lost my Mom, my best friend,  to lung cancer. Two weeks before that I had to put my Golden retriever down-he had cancer. It was a lonley couple of years. But then I  bought a new  puppy another Golden. I try not to dwell on -if or when- it will come back. So I would just love to hear from a long time survivor of this type of rare cancer. God Bless  http://www.cancercompass.com/message-board/message/all,23963,0.htm BentleysMom Mon, 12 May 2008 00:00:00 GMT Hello all Does anyone have a good method  or porduct to help a cancer patient gain weight.  I was thinking of fruit smoothies with a suppliment, but donot know of any good weight gain suppliments.  any suggestions?  Input would be helpful.   Thank you http://www.cancercompass.com/message-board/message/all,23929,0.htm tom1164 Sun, 11 May 2008 00:00:00 GMT I usually post in the cervical cancer board however I wanted to ask a few questions here.I've been experiencing certain symptoms for the past few months and it doesn't seem like I'm getting anywhere with my PCP or OBGYN. I've had a colpo, endo biopsy and LEEP which showed CINIII carcinoma in situ of the cervix. (margins were not clear on any). My doc has taken the wait and see stance since the LEEP but my symptoms have become increasingly painful. I have gained 15 lbs in the past two weeks, bloated, indigestion, gassy, lower back pain, pelvic pain, pinching on both sides of my pelvis, leg pain that has caused me to become weaker and stiff. I literally hurt all day and night long. I'm up and down throughout the night running to the bathroom.My PCP ordered an xray, ultrasound and bloodwork after me having a major hissyfit in her office, which she has said came back normal. I truly feel theres something wrong and I dont know where to go from here. Can anyone post there symptoms, testing, advice to help me in anyway. It would be greatly appreciated.-S http://www.cancercompass.com/message-board/message/all,23905,0.htm sugarbabe Sat, 10 May 2008 00:00:00 GMT Hi everyone....I love the message  board...it gives me the insight to look at others opinions and thoughts on cancer.   I have for the 3rd time ovarian cancer and have beat it the first two times and now am doing the doxil treatment and see where that takes me.    My question is at this point, what do any of you think of taking vitamins to help with the immune system, blood levels and overall multi-vitamins?   I mentioned to my Dr. I was taking Super B Complex which my oncologist nurse sister in law said to do and he said I dont want to hear that......I asked him why and he repeated the same answer.   I will be more direct and expect a more sensible answer on my next visit.   What do you think out there?   Have you been told only a multi vitamin was all you needed, dont take vitamins, or what....really interested in any opinions and your findings and if you take them that you have seen improvements or cancer is in remission.   Will wait to hear as your thoughts are important to me and I too am looking for a miracle.     http://www.cancercompass.com/message-board/message/all,23849,0.htm curly66 Thu, 08 May 2008 00:00:00 GMT Since posting my message on Granulosa - Chemo? I have had a couple of requests for symptoms I experienced in recurrence of Granulosa. So I thought it would be a great idea to post them here for all to view. I am heading for the OR on May 15th for my 3rd surgery in 6 years. I have been able to catch the tumours early because I have been aware of my own symptoms. I hope my experience will help someone else. Here is what I have experienced each time:First occurrence (complete hysterectomy in July 2002) (Stage 1C): Extreme pain in the lower left abdominal area that doubled me over and resulted in my going to the emergency room for meds for pain and nausea. For the next 4-5 days, the muscles across the front of my abdominal area felt like they had been exposed to too many situps! I had constant aches in both shoulders which the ER doctors felt were related to a gastrointestinal problem. They were very wrong. I experienced excessive gas & bloating, was tired and had frequent naps, a discomfort in the abdominal area with some tenderness, slight nausea on occasion, and even when I was extremely hungry I felt full after only a few mouthfuls of food. I did not experience any weight loss. Also experienced urinary incontinence and a persistant cough that hung with me for over two months.First recurrence: Surgery January 28, 2007: Pain in abdomen returned but not as severe as first time. No pain in shoulders, but all other symptoms were the same. No weight loss.Second recurrence: Surgery scheduled for May 15, 2008: Pain in left abdomen was the first sign that something was not right. I had very few other symptoms appear until a month later when I started a new job and then the nausea, headaches, and achiness made their appearance. I quit my job (which I wasn't enjoying anyway) and after a month, only the occasional headache and the need for naps remained until this past week. (Based on this, I expect that the symptoms of this disease are enhanced by stress.) Over the past couple of days I find that I am experiencing more gassiness, tenderness and discomfort in the abdominal area. No weight loss. CT Scan has been used to confirm the diagnosis of GCT for me. I keep a journal of symptoms for reference which I would suggest everyone do. Be aware of changes in your body - although we all may have similar symptoms, there are some that may be more prominent for each of us in the early detection of this cancer.Please add your symptoms by responding to this message so others can benefit from your experience. Add anything that you think would be useful. With so little known about GCT, we need to pull together to make it more easily recognized.Brenda http://www.cancercompass.com/message-board/message/all,23846,0.htm Gct2-brenda Thu, 08 May 2008 00:00:00 GMT Hello to all -   Is anyone on Estrogen who has had Granulosa Cell Tumor and a total hysterectomy?   Due to this cancer being so rare I would feel better if I knew of others taking Estrogen...  Thanks very much http://www.cancercompass.com/message-board/message/all,23799,0.htm SusieB Tue, 06 May 2008 00:00:00 GMT About 6 weeks ago my 78 year old mother was diagnosed with stage IV ovarian cancer. Chemotherapy and debulking have been the recommended course of therapy for her. Her situation is somewhat different than most of you. Medically, she has been through a lot. Due to polycystic kidney disease, she had a kidney transplant in December 1995. Although her kidney is working beautifully today and doctors are recommending chemo even with the transplant, she is a bit tired of being a 'medical jock.' Nonetheless, doctors are predicting she will run into an obstructed bowel and die a painful death if she doesn't proceed. But chemotherapy might be grueling on her 100 pound 78 year old transplanted body. In addition, she lost my father, her husband of 56 years, to heart disease last year, so her 'joie de vivre' is a little weak. She'd like to live, of course, but what will become of her quality of life? SHE HAS NO IDEA WHAT TO DO AND IS LOOKING TO MY SISTER AND ME FOR ANSWERS. I know it wrong for me to seek input from all of you, but she wants desperately to follow the path of least resistance (least pain), but I don't know what to tell her. Anything you can share will be greatly appreciated. Barbara http://www.cancercompass.com/message-board/message/all,23769,0.htm Valerie1067 Mon, 05 May 2008 00:00:00 GMT I recently had an ultrasound done which showed a hypoechoic complex ovarian cyst.  What exactly does this mean and should I be concerned?I had an ultrasound 1 month before and that also showed an ovarian cyst in the same spot on my left ovary.I have been having abdominal pain, frequent urination, and the feeling of fullness after eating. This has been going on for several months and these are daily symptoms.Mt GYN told me to come back in a year, but I do not agree with her.  I feel that I need to get this checked out.Thanks http://www.cancercompass.com/message-board/message/all,23628,0.htm Murphy1 Thu, 01 May 2008 00:00:00 GMT Board certified  oncology gynecologist or an onologist for follow up and chemo treatment after a hysteretomy for stage 3 oc?  Does anyone have an opinion? http://www.cancercompass.com/message-board/message/all,23620,0.htm 41gram Thu, 01 May 2008 00:00:00 GMT I am scheduled for surgery on May 15th, 2008 to remove 1 large and 2 small Granulosa Cell Tumours. This is my third surgery for GCT - the first in 2002 with complete hysterectomy (1 tumour), a second surgery in January 2007 (4 large tumours), and now a third surgery. No chemo prior to this as my Oncologist says that GCT appears to be resistant to treatment (both chemo and radiation). Because the tumours have returned so quickly this time, he is suggesting either bleomycin etoposide and platininum BEP or carboplatin and Taxol. The latter sounds less toxic .....Just wondering if anyone out there has had treatment for GCTs (other than surgery), what combination, and what result ....Thanks http://www.cancercompass.com/message-board/message/all,23613,0.htm Gct2-brenda Thu, 01 May 2008 00:00:00 GMT Help!My sister was diagnosed with cancer in the Fallopian tubes, just yesterday. The doctors removed 5 lymph nodes as well. She was given a full hysterectomy. As well, she was diagnosed 2 years ago with colorectal cancer, and had her entire rectum pouch removed.( No chemo necessary)  As for these latest developments We will know more in 3 (May 1,2008)days when the test results(lymph nodes) come in. For now, as we wait, and wonder , is there anyone out there with knowledge regarding a similar sequence in diagnosis, outcome and what it might all entail. Would love to hear anything, anything about anyone who may have gone down a similar path. and has anything to share  with us , while we wait http://www.cancercompass.com/message-board/message/all,23546,0.htm Marcelle Tue, 29 Apr 2008 00:00:00 GMT hello all, i need  some advice , i had ovarian cancer , it was  called  adult granulosa cell tumor, not sure i spelled that right . any how  i am cancer free which is  great news. i am on arimidex, which causes hot flashes also  had  a complete hysterectomy, i have had hot flashes  so bad  i am not able to sleep at night . i cant get no sleep i was wondering if there was  any one  out there  that had the same problems if  so  wht if any thing  can  i tk im not on any estrigen replacemnt and cant be cause of the kinda cancer i had   any advice  would be good , ok and here goes question number 2 being that i dont have any overies i get real dry [vaginal] my  doctor says  use a  lub, i have tryed that but  either  dont like it or it dosent  work ,  i keep thinking there has to be  somthing out there to help me  somthing i am  missing   so i have just  started  to use  wht they call replens with out estergen  so im not sure yet  but if any one eles has any other surgestions id like to hear  about  them  thanks  so so much http://www.cancercompass.com/message-board/message/all,23521,0.htm freeatlast Mon, 28 Apr 2008 00:00:00 GMT   Does this include  Ovarian Carcinosarcoma . http://www.cancercompass.com/message-board/message/all,23387,0.htm Billyejack Thu, 24 Apr 2008 00:00:00 GMT Hi - I am 50 yrs old and 4 weeks ago  I had a total Hysterectomy with Lymph nodes removed.I had a 12MM Granulosa cell tumor on my right ovary that was cancerous.  It ruptured upon removal but the cancer had not spread to the Lymph nodes or any other organs.  It was classified stage 1C.  I am being advised not to have chemo but to monitor for reaccurance every 6 months with Ct scans and Blood tests for my Inhibin level.  I just had an Inhibin A blood test to use as a marker.  The level was 10.What is a normal Inhibin level and is the Inhibin A test reliable?I am getting a 2nd opinion regarding having chemo or not.  I am reading mixed opinions on this matter, it does not seem to help this type of cancer?  Does anyone have any input?Thank you!Patti   http://www.cancercompass.com/message-board/message/all,23369,0.htm Patti 123 Thu, 24 Apr 2008 00:00:00 GMT Dear Message Board Readers:My 78-year old mother has been diagnosed with Ovarian Cancer--she seems to be in a stage III situation, with tumors the size of oranges (11 centimeters) growing in each ovary, lots of fluid (distended stomach, ferocious discomfort although no pain), possible bowel obstruction.  My mom isn't in wonderful health to begin with--she had Guillem-Barre syndrome (viral nerve sheaf damage) in the 1970s, and developed Multiple Sclerosis in the 1980s.  As of this writing, my mom's seen two excellent gynecologic oncologists who have given her different advice--the first wants to operate Friday, pull as much out as possible, and then would probably follow-up with IP-chemo; the second belives an IV of neoadjuvant therapy--a combination of Carboplatin and paclitaxel-- would be best, followed by surgery probably at the end of the summer.  And so my sister and I are uncertain how to advise her wondering:(a) which course offers the best chance of recovery?(b) in the absence of full recovery, which course offers my mom the best quality-of-life comfort during whatever time she may have remaining?My sister and I would be most grateful for any feeback readers might be kind enough to offer.Many, many thanks,Filia http://www.cancercompass.com/message-board/message/all,23312,0.htm Filia Tue, 22 Apr 2008 00:00:00 GMT Anyone have any experience with this treatment??  http://www.cancercompass.com/message-board/message/all,23300,0.htm Xoxfrancine333 Tue, 22 Apr 2008 00:00:00 GMT My mom was diagnosed with ovarian cancer in 1998. It is in stage four and has been on many different treatments. Her current Oncologist does not want to remove tumor and we want a second opinion. Her blood count just recently went from 12000 to 19000. Anyone know of a ovarian cancer specialists in the area?   Joe http://www.cancercompass.com/message-board/message/all,23297,0.htm Xoxfrancine333 Tue, 22 Apr 2008 00:00:00 GMT hiI justed learned from a long-lost friend that she has ovarian cancer and will be having chemo in May. I don't have any additional details. I would like to send her a care package but would like some advise from the message board. When my mother in law was taking Tarceva for lung cancer there were some good postings re: some lotions, etc. for the side effects. What should I pack up for my friend who is doing chemo for ovarian cancer?   http://www.cancercompass.com/message-board/message/all,23012,0.htm Julie Girl Sun, 13 Apr 2008 00:00:00 GMT Hi Everyone, I had a CT Scan in January and my Doctor said that I had fluid which they had noticed before. I have had a full hysterectomy so I didn't really understand how this could be happening. They scheduled me for a follow up yesterday and now I am scheduled for a Tap....I guess to get the fluid out on Friday. I requested a C125 because a friend told me to. I am a little upset this was not suggested to me in January. I have never heard of this disease and am shocked without ovaries I could get this 5 years after my surgery. I am scared and do not know what to expect.  I have a follow up appointment with a oncologist on Tuesday. My stomach gets bigger each day, I don't have an appetite and am tired more and more. I keep reading all these sad emails. Does anyone have a happy ending? I am 53!Appreciate any feedback or positives you may have. Thanks!!Lori  http://www.cancercompass.com/message-board/message/all,22901,0.htm Lori5 Wed, 09 Apr 2008 00:00:00 GMT hello all, i just went for my check up yesterday, i had ovarain back in june  last yr had my surgery in july , then had another surgery  about 4 weeks ago . the one 4 weeks ago turned out they were wrong and the cancer hadnt  came bk . and so i went bk  for my check up yesterday and i had asked him ,  so now wht is the cancer in reamission or  wht he said  no  that i was cancer free as  when he did the last surgery he looked  around  and didnt see any thing at all nothing  so he has to say  i am cancer free, i am so so happy  and i want to tell u all  that come on this site  thanks  so  much  for every ones input and  want to say for u  grls and  woman out there  that have ovarian cancer  be  strong  have a good attitude  toward this thing and u will beat it too , and  remember  there is a reason why  every thing happens, we  dont no wht it is  but i believe theres a reason , and  like  my daughter in law told me once  god only gives us things that we can handle and if he didnt think we could handle it  he wouldnt have given it to us   so  good luck all http://www.cancercompass.com/message-board/message/all,22864,0.htm freeatlast Wed, 09 Apr 2008 00:00:00 GMT My mother had a ''cyst'' in 2003 and we tried to get her gynecologist to do a hysterectomy on her at that time.  She was72 at the time.  3 years ago May she had a tumor the size of a nurf football and her abdomen was full of smaller cyst. LONG story short.  She underwent a 7 hour surgery, since August 2005 been on one or another Chemo Therapy and now she is getting ready to have another 4 or 5 hour surgery to remove tumors from her liver and between her organs and back as well as her gallbladder.  This has been a nightmare because doctors just don't seem to know what they are dealing with.  Through all this there has never been a PT scan just to see where in the body cancer cells are with this type of cancer.  Last year she was sent to MD Anderson Cancer Center in Houston and the treatment they recommended her oncologist wouldn't administer because he knew too many patients that had suffered far worse from that particular chemo  treatment.The one thing we did learn however while at MD Anderson is that in 2003 the cyst that was removed was most likely this granuluso cell ovarian cancer and had she had her ovaries removed she wouldn't be where she is today.  Don't take one doctor's word or advice, get more than one opinion if you can! http://www.cancercompass.com/message-board/message/all,22597,0.htm prm123 Tue, 01 Apr 2008 00:00:00 GMT