Latest Pain Management discussions http://www.cancercompass.com/message-board/cancer-treatments/alternative-treatments/pain-management/1,0,129,125,114.htm Sat, 19 Jul 2008 00:00:00 GMT Sat, 19 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Taking pain meds,increases the risk of constipatiion. I have triedeverything from over the counter. Does anyone has any suggestions.  http://www.cancercompass.com/message-board/message/all,23616,0.htm underdog Thu, 01 May 2008 00:00:00 GMT Hi... since beginning chemo (Xeloda now 5FU) my wife has developed severe pain in her knees.  The oncologist believes it could be nerve distress.  Any similar experience and potential remedies?  If so plz advise.  Thanks! http://www.cancercompass.com/message-board/message/all,22563,0.htm sabiduria Mon, 31 Mar 2008 00:00:00 GMT hi everyone, my dad had a radiation procedure called 'cyberknife' done for throat cancer around august of 07. the procedure involved 5 sessions of radiation (very high amount) only at the area of cancer in his throat. after this procedure the pain in his neck is immense! he can't lift his head very well anymore. we started going to a pain institute and they have him on actic pops, morphine liquid and the fentynol patch. he also has percocet and began an anti-anxiety med. is this too much medicine? i know he is in pain but are there any other options? he still can't sleep and his neck is still in a large amount of pain. i am new to this and any advice or information offered is greatly appreciated! thank you, jeanne d http://www.cancercompass.com/message-board/message/all,20524,0.htm jeanned Thu, 31 Jan 2008 00:00:00 GMT I keep reading on you girls and the pain after Chemo, I had Dose Dense Chemo followed by Femara, and then after many visits 2 weekly for over a year to the ONC complaining of pain throughout my body. After 6 months of Tramadol and Percocet 10 a day they sent me to the Rhuemotolgists and suspected Fibromyalgia, the Rhuem Dr. said no after many more tests they actually admitted that the CHEMO caused the pain and prescribed MS CONTIN both in and IR AND ER tablet, I can tell you all that my life for the first time in 2 years is sooooooooo much better although I still live with the pain it is now tolerable and I am able to work 17 to 20 hours a week. I by choice no longer take the femara as it only induces the effects of pain but the Morphine keeps me alive and I am able to reamin active with very little side affects. I wish they had given it to me 2 years ago. I just wanted you all to know that there is something available to you and you can live a normal life, without having to think your going crazy and no one understands your pain, hopefully this helps some of you and you too can be pain tolerant without going through any further anquish. God Bless you sisters and remember Live Laugh and Dance through life you've earned every minute.....Love always Donna http://www.cancercompass.com/message-board/message/all,20374,0.htm lookin4whoo Sun, 27 Jan 2008 00:00:00 GMT Hi everyone I am new to this site and have been reading a lot of past posts. Its 5am and I can't sleep for wanting answers.  My husband has stage 4 colon cancer with mets to lungs, adrenal gland and now spine and hip bone. He is in immense pain and can only find relief while laying down, so he is pretty much staying in bed.  He is currently on a morphine pump with a dose of 35mg/hr but when the pain hits(usually due to a change in positions) I can supplement his dose up to an additional 50 mg.  He is in hospice care in the home and I am his primary caregiver. His goal is to at least be able to sit if not walk pain free. The doctor wants to radiate the tumors on his spine and hip to try and shrink the tumors any advise on other treatments or better pain medicine than morphine. Just getting him to treatments causes severe pain. http://www.cancercompass.com/message-board/message/all,17078,0.htm marianne8 Sun, 14 Oct 2007 00:00:00 GMT Hi, my mother is now suffering seven years with post mastectomy pain syndrome.  In South Africa we yet could not find any doctor to help, and we've seen many.  She is now on morphyne for the last eight months.  Can anybody help please.  Thank you. http://www.cancercompass.com/message-board/message/all,16140,0.htm Günther Thu, 13 Sep 2007 00:00:00 GMT My Mother in law suffer from lung cancer and almost in Last stage. Kindly tell me how to cope up with this stage? What will be the symptoms . Awaiting for reply. Arun Arondekar http://www.cancercompass.com/message-board/message/all,16028,0.htm arun1 Mon, 10 Sep 2007 00:00:00 GMT Does anyone have bad shoulder pain after your dissection? http://www.cancercompass.com/message-board/message/all,11379,0.htm Smiles0621 Tue, 17 Apr 2007 00:00:00 GMT I am a physician and author of THE LONELY PATIENT: How we experience illness (Harper Collins). I have received comments from many bloggers and patients that my book is useful for thinking about the emotional impact of illness. I wanted to make you aware of this new book and hope it helps in your thoughts and decision-making. http://www.cancercompass.com/message-board/message/all,11072,0.htm The Lonely Patient Fri, 06 Apr 2007 00:00:00 GMT My husband has mesothelioma which has been treated with cemo-now they want to try radation for pain management-His kidneys are working 1.5 %-They now are trying patches for the pain-He has been in the hospital for a week getting iv's -What are we to expect from the spot radation? His spirits are really getting down-Thanks http://www.cancercompass.com/message-board/message/all,10688,0.htm Northernfriend Sun, 25 Mar 2007 00:00:00 GMT Hello all,Quick debatable question. Which seems to be most effective for pain management Duragesic patch or Oxycontin? My mom is on Oxycontin 20 mg q 12hr and 5mg oxycodone for break through pain. She's very stubborn when it comes to pain pills. She doesn't want to be a walking zombie...but w/o them the pain is unbearable. I should add here she has pancreatic cancer w/metastisis to the liver...STAGE IV.  Just wondering....Melanie  http://www.cancercompass.com/message-board/message/all,10561,0.htm Meleroni Tue, 20 Mar 2007 00:00:00 GMT i have a recurrance of seminoma. It was discovered several months ago. The oncologist after delivering his idea of a treatment i affectionately call search and destroy. Assured me the cure rate was 90% and i wouod be cured. pnce he said that then he launched into the possible side affects. Well after realizing that the entire immune system would be comprimized i knew this was not the proper approach. When i ask about possible alternative approaches to the situation. he none that i know of. It was funny i knew about dr. Burzynski in texas so i ask for a referral to him and all of sudden he knew who this gentleman was. Eventhough, he doesn't treat SEminoma he has great success with other more aggressive forms of cancer. For people sworn to do no harm you got to be kidding me. I am now looking for a clinic that5 deals with the immune system and administers cheomo in micro doses. i'm convinced that rebuild the immune system is the way to resolve the recurrance issue. I lost my mother in the protocol. It ravaged her, i will not go through that. Just because some guy in a white coat prefers this method of treatment.  So has anyone gone to the issel clinic in Santa Barbara with a diagnosis of recurring seminoma in the retineal lymph nodes http://www.cancercompass.com/message-board/message/all,8620,0.htm You Got to be Kidding Thu, 04 Jan 2007 00:00:00 GMT I am really truly sorry to hear about your mom Barrett. I can only say this, look upon these last days,weeks or months ( god willing, years)and know you did the best you could. You were the daughter your mom was proud of and would always be proud of. I only hope and pray I am as strong as you when it comes time for my mom. You are in my thoughts, Dana http://www.cancercompass.com/message-board/message/all,4283,0.htm Hopefully Thu, 26 Jan 2006 00:00:00 GMT My husband has stage 4 and is wondering what some of the symptoms are if you are not having pain before death, or will there always be pain? http://www.cancercompass.com/message-board/message/all,3472,0.htm Suzieq52051 Sun, 13 Nov 2005 00:00:00 GMT My mom has just been told her sarcoma spread from her leg, where it returned after a 5% chance, to her abdomen, and now her lungs. They wont operate b/c they say with the cancer in her lungs there is too much risk of anesthesia. I think this is ridiculous to tell someone to just deal with a ton of pain which is basically uncontrollable for more than 24 hours at a time. They had her on morphine for a while but that caused 2 hospital stays of 4 days each while they had to insert a catheter and she couldnt do a BM. They finally switched her after I complained to the doctor on call that this wasnt working, I had driven 12 hours to be with her the day before. He switched her to methodone and dilotid, which was every 4 hours and if she missed the dose by 20 min she was in agony for hours. Now they have her on a 8 hour does but it still is not working well. All she does is sleep and they have basically told her so sorry, its in your lungs now, this is very bad stuff nothing to be done. I think this is a crock of beans but since I live in Florida and they live 12 hours away in VA there is not much to be done. I need some advice on things to ask. Shes always in pain and if shes not in pain shes sleeping. She said shes tired of sleeping and going to the bathroom, she wants to go back to work because she is a counselor at a middle school and she feels the kids need her. What do I do? I need to talk with the Dr's but they dont seem to care. Any suggestions? Buttercup http://www.cancercompass.com/message-board/message/all,3300,0.htm Buttercup21 Sun, 30 Oct 2005 00:00:00 GMT Hi. I recently heard about a nationwide study opening for patients in pain related to or associated with cancer. To participate, you must be between the ages of 18 and 80, experience an average of 1-4 flares of pain per day. These flares of pain are commonly called breakthrough pain. You also need to be taking daily opioid medication to control your regular/persistent pain. Some examples of opioid medications are below: . Morphine . Transdermal Fentanyl . Hydrocodone . Oxycodone . Hydromorphone In case you want to learn more, visit: www.fightcancerpain.com/default.aspx?s=cancercompass&c=ad28 http://www.cancercompass.com/message-board/message/all,2647,0.htm Nyc1090 Thu, 04 Aug 2005 00:00:00 GMT hi my dad has just been told he has mm he is 78 and in terrible pain we cant seem to control it he has many other things wrong with him health wise and we are very worried http://www.cancercompass.com/message-board/message/all,2568,0.htm Welshlady48 Sun, 24 Jul 2005 00:00:00 GMT My father is 58 and was diagnosed with stage IV lung cancer with metastases to the lymph nodes and possibly the spine, six weeks ago. He is undergoing a course of chemotherapy in the UK and is trying very hard to remain positive but finding it very hard when faced with so much pain, mainly in his back and chest. He has asked me to ask for any advice on how best to ease/deal with the pain. He has also asked how often others with a similar diagnosis receive a CT scan? Any advice would be greatly appreciated. Regards http://www.cancercompass.com/message-board/message/all,1530,0.htm Emily Tue, 01 Feb 2005 00:00:00 GMT Hello - I'm wondering if anyone else has had experience with intense, unrelenting burning pain after a mastectomy, in the armpit and on the incision. It's been about a month since my mastectomy and I haven't been rid of this pain one minute; it's only relieved to a certain degree by narcotics. My surgeon knows nothing about the syndrome, apparently. I've read a little online and plan to set up an appointment with some pain specialists, but I'm astounded that there's so little information about this. Nothing on Susan Love's site either. Thanks. Linda D. http://www.cancercompass.com/message-board/message/all,1081,0.htm Linda D. Mon, 15 Mar 2004 00:00:00 GMT I'm 38 and I may have prostate cancer. If I do, and it is malignant, and I choose to do nothing about it, and I happen to die because of it; what symptoms will I experience? What level of pain and where would I feel it? I suppose it will be even harder yet to urinate (may elect to have catheter inserted permanently). I'm not afraid of dying, but I am a big baby when it comes to pain. The nice thing is that I already have a pain doctor for my other chronic pain. So, I will be covered if prostate cancer spreads and I experience a lot of pain. My dad had prostate cancer and had his gland removed. I don't want to do that and I don't want radiation. If it is my time it is my time and I'll make the choice to pass on. However, I'd like to know what advanced prostate cancer will be like symptom-wise Thanks all, Doug http://www.cancercompass.com/message-board/message/all,403,0.htm Doug B. Mon, 25 Aug 2003 00:00:00 GMT My husband has kidney cancer that has spread to the femur bone. He had the kidney removed and a cadaver put in place of the right femur. This was in the last six months in 2000. Now he has unbelievable pain back in his right leg. He says the pain sometime goes to his other leg, groin area and buttocks. I am told bone scans don't always pick up the cancer, so they are saying it is most likely in the bones. He is on 800mg of oxycotin daily with minimal relief. What else is out there? I hear there is a patch. But what is the cost and how effective is it? Any info is welcomed. Thanks http://www.cancercompass.com/message-board/message/all,845,0.htm Shirley B. Tue, 01 Apr 2003 00:00:00 GMT My sister Michele is in so much pain. Her legs and back hurt. She has tried everything to control it and some she cannot stomach. Just having cancer is bad enough, but having to endure the pain is pretty sickening. Her last months would be OK if only she could be rid of the pain. They did a bone scan and it hasn't gone into her bones, we think maybe a blood clot, but we really don't know. She has been in and out of the hospital so much lately, when she is in the hospital she seems to get some relief and they send her home and the pain just comes back. I can't believe we can go to the moon but can't make someone's last days comfortable. Morphine doesn't even put a dent in it. It's like a toothache that doesn't go away. Thanks for listening, Cathy J. http://www.cancercompass.com/message-board/message/all,868,0.htm Cathy Jo M. Tue, 28 Jan 2003 00:00:00 GMT My name is Angie and I am 30 years of age. I have had surgery 2x for removal of tumor and lymphnodes in the small intestines. (rare type of disease). After my surgery I took chemo (Xeloda) and now I am in remission. The problem that I have now is that I have upper abdominal pain, because of the bowel stuck to the wall of the stomach and that is call adhesions. The doctor told me the only solution is surgery again. Is there anyone out there who is suffering from this and what have they done for this pain? They say there is no cure for this. http://www.cancercompass.com/message-board/message/all,854,0.htm Marie T. Thu, 23 Jan 2003 00:00:00 GMT I am a massage therapist in Dallas interested in working with cancer patients to help relieve the pain and other symptoms often felt from treatments. Has anyone used massage therapy in their treatments and if so, has it been beneficial (physically, mentally, emotionally)? http://www.cancercompass.com/message-board/message/all,462,0.htm Mala R. Mon, 29 Jul 2002 00:00:00 GMT