Latest Renal Cell Cancer discussions http://www.cancercompass.com/message-board/cancers/renal-cell-cancer/1,0,119,131.htm Wed, 09 Jul 2008 00:00:00 GMT Wed, 09 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Is there anyone out there that have seeked treatment for the RCC at the Cancer Treatment Ctrs of America?  If so please share with me your experiences.  Would you recommend them?  How much of a help were they? http://www.cancercompass.com/message-board/message/all,25693,0.htm John Elliott Thu, 03 Jul 2008 00:00:00 GMT Hi,My father, 69 ys, who has been suffering from RCC for over a year, has mets in the lungs and condition is quite severe. besides other problems, he develops a very bad cough in the evenings starting from 5 pm and  lasting for 3-4 hrs. The whole body rattles and he starts hallucinating because of teh severity. Cough suppresents have been of no help.He has been prescribed Benz, but that has not been of any help.He has developed aversion to food and medicines and feels naseaous most of the timeKindly let me know if any simple therapy can reduce his suffering due to bad cough.ThanksAnne     http://www.cancercompass.com/message-board/message/all,25666,0.htm Annee Thu, 03 Jul 2008 00:00:00 GMT My father was diagnosed with rcc and had a nephrectomy in March of 2005.  He is very tight lipped about lab reports and treatments.  Lately he has had frequent fainting spells and at times has slurred speach.  He has had two episodes severe enough to go to the ER.  The doctor there just calls it a brain event.  My question is what are the general symptoms of rcc brain mets?  I just have this gut feeling that that is what is goin on.  He gets results on an MRI this week and I may hold him at gun point to get the truth from him.  Can anyone shed some light?  He also has mets in the lungs and pancreas.  Things don't look good and I don't know a damn thing. Help. http://www.cancercompass.com/message-board/message/all,25555,0.htm ramblinwreck Mon, 30 Jun 2008 00:00:00 GMT my brother  51Y diagnosed with renal cancer and he had methstsis (spread) to spin and lung . he had radiotherpy for spin .I have heared of new drug Nexavar . I need to know how effective and what is the cost http://www.cancercompass.com/message-board/message/all,25439,0.htm shafi Thu, 26 Jun 2008 00:00:00 GMT hi all. i,m going in for my surgery on tuesday june 24th.  the dr said he will try in by doing it lap, but if any trouble will convert it to an open radical neph.  i am 33 yrs old and otherwise in good health. to say that being scared would put it mildly.  to be honest im not even sure what to expect after the surgery. i know there will be bad pain and discomfort, but as far as emotional or mental after effects i have no clue.  the shock still hasnt hit me yet, but is becoming more surreal.  the severity of this is beyond my comprehension because all of this started from what was supposed to be a minor shoulder surgery. everybody that has spoken to me family friends etc has said i should be relaxing and trying to calm down. all i can think about is my wife and her being alone. just the thought of not seeing her after the surgery is killing me and i just wish there was truly a way to know if ill be ok and make it through.  if there is anybody whos been through a smiliar situation id appreciate it to hear from you. thank you very muchanthony http://www.cancercompass.com/message-board/message/all,25276,0.htm teddy0513 Sat, 21 Jun 2008 00:00:00 GMT My most recent CT/PET scans actually occurred in May---I'm just late in getting them posted to this website.The scans were clear---no signs of kidney cancer.This means it has been 25 months since any signs of cancer and 23 months since I stopped taking Sutent.For those of you fighting this terrible disease (and your families), please never give up hope; educate yourself to your options and continue to challenge your doctors to be aggressive.And most of all---make the most of each day.Bunker.   http://www.cancercompass.com/message-board/message/all,25198,0.htm Bunker Thu, 19 Jun 2008 00:00:00 GMT Hello.I am new to this site and was wandering if there is anyone currently taking Torisel.My mom was diagnosed with RCC 3 weeks ago.  She had her left kidney removed in 2001 due to a tumor encased in the kidney.  She has had a nagging cough for the past year and she knew her cancer was back.  She had a lung biopsy 3 weeks ago and during the procedure her lung collapsed and she had to be put on a ventilator.  They docs told us that she more than likely would not wake up and that her prognosis wasn't good if she did wake up..........We decided to honor her wishes of DNR and she woke up wanting coffee and ice cream!  We just had our first oncologist visit last week and she told us that without chemo mom might live 2 months, but if she tried Torisel she might live 20 months.  Mom has  had 10 radiation treatments since her lung collapsed.  She has many tumors in both lungs and one is blocking a tube to her left lung.  It is still collapsed.  We are hoping that the radiation will help shrink the tumor so mom can breathe easier.  I am really nervous about mom starting chemo........she has so many skin problems and I am worried that Torisel might really bother her.  We start treatments on June 19th.  Please keep my mom in your prayers and keep your fingers crossed!Thanks for letting me vent!!Jeannie http://www.cancercompass.com/message-board/message/all,25070,0.htm Pegsbaby Sun, 15 Jun 2008 00:00:00 GMT My Dad was diagnosed with advanced rcc exactly 1 year ago. It started with pain in his thigh and was told he had a tumor in his femur. After a series of ct scans they found the mass in his kidney. He had 2 surguries, a femur replacement and a nephectomy. He seemed a bit better after surgery and had a lot of physical therapy. After a series of radiation on his leg, the pain got worse, his walking got worse. He had been on 5 rounds of sutent, then switched to Nexavar when scans showed mets to his lung, ribs and L4. He is tolerating the Nexavar pretty well, however he is on so many pain meds that is frying his brain nad he gets hardly any pain relief.His surgeon suggested Cyberknife for his L4 (spine) which may be the reason as to why he also still has leg pain. We met with a radiologist and neurosurgeon, and they seem to think this may work. Just wanted to know if anybody out there has had any sucess with cyberknife. My Dad is starting to lose his will because of the pain. My heart is breaking for him, and I am not ready to let him go. Would love to hear of anybody going thru a similar experience that can offer some advice.  Thanks so much and God bless you all!!!! http://www.cancercompass.com/message-board/message/all,24972,0.htm sherell Thu, 12 Jun 2008 00:00:00 GMT We cant get any straight answers from drs. Our Dad was diagosed with kidney cancer stage 4,spread to his lungs. He has had 8 chemo treatments. He is 77yrs., has been weak, not eating,low grade fever,coughing up blood for 3 weeks. Drs. didnt seem to be concern til yesterday, even though Ive preached a month about these problems. Yesterday the dr. put him  in the hospital. Now he seems worse they say he has a infection in the lung. He still not eating. We think the cancer has spread. But no one will confirm this. Any info would help us. Any ideas? What are we against?                                     Thanks,                                      Beamama http://www.cancercompass.com/message-board/message/all,24969,0.htm beamama Thu, 12 Jun 2008 00:00:00 GMT My Dad has RCC with Mets to the lung. He started sutent last month.  Today my mother tells me she noticed my Dad stool was almost a black color. Now I have read the sutent brochure through and through. And it states that it could cause internal bleeding. And if you have black tarry stool to call the doctor right away. We have an app with the doctor on thursday. My dad wants to wait untill then to let them know he thinks it is nothing to worrry about. I am worried that somthing is wrong. Also I noticed he has bruises up and down the back of his legs and he is just very weak and tired. Even more than last week ( He got out of the hospital with plural effusion and Pnuemonia)  Has this Happened to any of you while on sutent?   http://www.cancercompass.com/message-board/message/all,24892,0.htm andrear1086 Tue, 10 Jun 2008 00:00:00 GMT Anyone else have experience with this?  My husband collapsed 3 weeks ago and emergency room doctors told us he had kidney cancer with mets to brain...out of the blue it was a shock.  I had seen signs though when I think back...knew something bad was wrong.  Onc doctors are trying to get him Suten but we don't have insurance and it is looking bad.So glad I found this Board, glad I am not along and can share questions, concerns and HOPE!  http://www.cancercompass.com/message-board/message/all,24870,0.htm kayt4austin Tue, 10 Jun 2008 00:00:00 GMT Does anybody know the pirce of a kit of Torisel or where I can locate the price on the internet? http://www.cancercompass.com/message-board/message/all,24727,0.htm hurley Thu, 05 Jun 2008 00:00:00 GMT Does anybody take torisel on a weekly basis with no rest in between treatments?  Also, does anybody take their infusions as a op at any other facility other than the hospital? Thanks... http://www.cancercompass.com/message-board/message/all,24646,0.htm hurley Tue, 03 Jun 2008 00:00:00 GMT Hai,Good news,most of  my lung noudles have have diminished and 1 or 2 left have decreased in size after completing 3 cyles of sutent.I am going through the 4th cycle now. are there any reports that the diease is fully curable with sutent May god help allRegardsRajasaju  http://www.cancercompass.com/message-board/message/all,24619,0.htm rajasaju Mon, 02 Jun 2008 00:00:00 GMT Hi,My dad has been a patient of RCC with metastats in his lungs. He has taken 4 cycles of sutent , which he stopped after he couldnt take the side effects any longer,15 days back. For the past 2-1/2 months he is having pleural effusin in his left lung, which needs to be tapped every 10-15 days.After stopping sutent, he is constant having fever ranging between 100 to 101.5 F and severe coughing. He has been on antibiotics for the past 4 days, but this has been of no help as yet.Has anybody experienced something similar, what can be the cause and how to correct it.Thanks   http://www.cancercompass.com/message-board/message/all,24583,0.htm Annee Sun, 01 Jun 2008 00:00:00 GMT Having had my kidney removed in 2003 a scan in 2007 showed nodules in my lung and hot spots on my adrenals. In April 2008 I had a lobectomy, which went wrong, they cut an artery, had to remove 2 lobes instead of just one, and had to give me 6 units of blood. Recovery has been long and painful. On my follow up visit last week I was advised that I didn't really need the operation at all, the lab report says the nodule is old scarring from TB and old pulonary emboli! I don't really know what to think. They don't do biopsies on renal cell metases so they weren't really to know. I had a CT Scan, and MRI and a PET which the glucose attached to the nodule. Has anyone else experienced the same thing?  http://www.cancercompass.com/message-board/message/all,24479,0.htm Redlady Thu, 29 May 2008 00:00:00 GMT I've seen several articles in the Cancer Compas about clinical trials for RAD001 and its long(er) term progression free survival taking everolimus.  My husband is currently in a clinical trial of Nexavar/AMG386.  His periodic scans have shown no new growth (metastatic RCC - kidney spread to lungs) and actually some shrinkage.  The trial is over in June.  Just curious as to whether anyone has had experience with everolimus -- results, side effects, etc. LBM http://www.cancercompass.com/message-board/message/all,24407,0.htm hondo Tue, 27 May 2008 00:00:00 GMT Hello all, update. Good result Sutent. Had my CT this week dont profess to understand all the techinical jargon but one tumour continues to have necrosis (is dying) and both now have fluid within which is "cystic" and I am told is a sign that they may be breaking down. Anyone else had this / could explain a bit more about it? The rest is stable so I have started cycle 11. Railwayman http://www.cancercompass.com/message-board/message/all,24373,0.htm Railwayman Sun, 25 May 2008 00:00:00 GMT My mom has been taking Torisel treatments for the past 3 months.  The doctor finally did a CT scan last Wednesday to check the results.  We went today and the doctor said that cancer had not grown.  That it was stable.  Since the Torisel seems to be working he is going to keep her on the treatments.  My concern is how many treatments of the chemo can she take without it wearing her body down.  She does really well with the side effects.  There aren't many except that she doesn't have much of an appetite due to the food not tasting good.  So she is losing weight.  How long do the treatments last? http://www.cancercompass.com/message-board/message/all,24250,0.htm tnvolfan515 Wed, 21 May 2008 00:00:00 GMT I'm 12weeks post nephrectomy and recently started trial for adjuvant RCC with high recurrence risk. Either taking sutent, nexavar,or placebo. First 8days nothing happening and then yesterday weird burping/taste followed by middle of night violent vomitting. Doc called in antinausea meds and advices day off study. Anyone with similar experience? I guess this is good news. But I'm surprised by suddenness and severity. The pessimist in me says I have food poisoning. Thanks for anything youre willing to share. Ps I did notice kind of a dry nose from day 1 of trial http://www.cancercompass.com/message-board/message/all,24143,0.htm TimPM Sun, 18 May 2008 00:00:00 GMT I'm 12 weeks post nephrectomy and recently started trial for adjuvant RCC with high risk recurrence. Either sutent, nexavar, or placebo. First 8 days nothing then yesterday burping nausea followed by middle of night violent vomitting. Doc called in nausea meds and advices day off meds. Any one have similar experience? Could I just have food poisoning? Only other "symptom" dry nose maybe if I look hard stools looser than avg. Then bamm! I guess this is good news. Thanks for any replies. http://www.cancercompass.com/message-board/message/all,24142,0.htm TimPM Sun, 18 May 2008 00:00:00 GMT I have been diagosed with renal cancer that was located in my left hip during a revised hip surgery.Orthopedics want me to go the pill route,I was told by oncology,that the copay would be about $7000/mo,that is with Medicare and a Blue Cross Medex. If this is correct is there any help for someone who is on a fixed income,to assord this pill. Thank you http://www.cancercompass.com/message-board/message/all,24124,0.htm tkoedd Sat, 17 May 2008 00:00:00 GMT You did a short post on May 1st about your experience with Sutent & Rad001, with wonderful results.  Please elaborate on the meds, side efects and results. What form are they in, how often do you take them, how are you doing now?Thanks, Bill http://www.cancercompass.com/message-board/message/all,24090,0.htm Wilhelm Fri, 16 May 2008 00:00:00 GMT  I am RCC patient with lung mets since April 2007.  I have completed 3rd cycle of sutent 50 mg per day. During the last 10 days of the 3rd cycle I developed hand & foot syndrome which cause discomfort and create hinderences in walking. Can anybody inform me about the remedial measures to be taken or any medicine  to arrest the hand foot syndrome Thanks  http://www.cancercompass.com/message-board/message/all,24035,0.htm rajasaju Thu, 15 May 2008 00:00:00 GMT Good morning.  My dad was diagnosed with RCC in October after having his kidney removed.  They found a 7cm tumor growing into the renal vein, which also attached itself to his back wall.  We recently found out that the cancer has spread to his liver, lung and chest wall.  Up until about two weeks ago, he was essentially symptom-free.  Now, he is in unbearable pain and in the hospital.  He started Sutent last Tuesday, but began to have fever, cramps and shortness of breath, so they doctors have suspended it.  I am out of my mind with worry and fear waiting to hear what is next.  It all seems to be moving so fast.  Has anyone else experienced a similar situation?  Thank you. http://www.cancercompass.com/message-board/message/all,23985,0.htm chrisann Tue, 13 May 2008 00:00:00 GMT