Latest Side Effects discussions http://www.cancercompass.com/message-board/after-treatment/side-effects/1,0,120,117.htm Fri, 16 May 2008 00:00:00 GMT Fri, 16 May 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ You'll find Aquaphor MUCH more soothing than plain Vaseline or other petroleum jelly. Just slather it on as often as needed to sooth pain and itching.It's available over the counter, found in the hand lotion area. Drugstore.com also has it. Get a large jar and a couple of small tubes for your purse so you're never without it.Good luck.Lousy http://www.cancercompass.com/message-board/message/all,23584,0.htm Lousy Wed, 30 Apr 2008 00:00:00 GMT After 2 years still Have Problems does anyone have any suggestions.. My oncalogist wants me to go to a nueroligst now..he told us he doesnt know why i still have these problems http://www.cancercompass.com/message-board/message/all,23573,0.htm Thehobman Wed, 30 Apr 2008 00:00:00 GMT My wife is being treated for colon cancer with the Folfiri-B regimen. Has anyone experienced a discoloration of teeth?  The area around the gums is turning a black color, in a pattern like plaque.  Thanks for any info. http://www.cancercompass.com/message-board/message/all,23235,0.htm evadkooz Sun, 20 Apr 2008 00:00:00 GMT My husband was dx 9/06 with a 4cm GBM. Removed, Radiation, then Temodar for 1 year. Recurrance of tumor 1/08, no radiation only Temodar. He has been having the shakes. I read all the side effects and the closest I can come is convulsions, but it's not that. Anyone else have these effects? http://www.cancercompass.com/message-board/message/all,23209,0.htm Worriedabouthubby Sat, 19 Apr 2008 00:00:00 GMT Anyone with experiece with Melphalan?  What kind of side effects did you have after the treatment and when did you start feeling it?  Did it make you feel soooo bad it felt like you were over medicated, spacy, head/ears ringing, off balance, weak and scared?  Did anyone have any numbness and tigling in the hands/legs??   Any comments would be appreciated.  Regards  http://www.cancercompass.com/message-board/message/all,23016,0.htm Rose & Neil Sun, 13 Apr 2008 00:00:00 GMT dia nov 21 2007 with gbm4 did the standard radiation and temadar with no problems what so ever. stopped Decatron 4mg 2x a day cold turky what a mistake im now on my 4th round of temador 440mg 5on 23 off with no problems until my last round  my stomach was a little upset but nothing I couldnt handle but would sleep 18 hours a day no energey what so ever doc repalced my decadron with hydrocortison 20 mg 2x a day. well in the moring I will ave completed this round but it has been the toughest very sick and sleeping all day no energy once again. My question is my surgeon said to keep me on a temador regiment for as long as my body will take it is this my body saying hey enough is enough or is it because I stopped the decadron I had no problems before I stopped. Even had to miss work this week. My onc. said at my last appt. that some people stay on steroids for ever and that he was going to run a blood test at my next appt. Sorry to be rambling on but I dont know if it matters but I am taking 1000mg of keppra and 10 mg of high blood pressure and its my understanding that can make you tired. Good news all mris have been greatthanks for your timePaul http://www.cancercompass.com/message-board/message/all,22940,0.htm pantherspaul Thu, 10 Apr 2008 00:00:00 GMT I have some redness on my right leg and it hurt. along with that my side hurts. My doctor gave me antibiotics acyclovir 800mg take 1 5x a day for 7 days. I have never had shingles, but it seems to be responding. I could not do any chemotherapy this week. I was on my 4th cycle. I see my doc on Monday, so she will possibly have me do chemotherapy if the redness, and my immune system is back up. So, far I have no major side affects.    http://www.cancercompass.com/message-board/message/all,22913,0.htm pinkbubbles Thu, 10 Apr 2008 00:00:00 GMT Hi,My mom has metasisized (sp?) breast cancer in her liver.She is going for round 3 of Doxil next week.  She is doing really well, no hand/foot syndrome, her CA125 went from 320 to 130 and she is tolerating it all.  The only thing right now is she has a really bad rash on her chest, spreading to her shoulders that is extremely itchy. She showed it to her Dr. last visit and he said it was sun damage but I think otherwise, as it is getting worse.Can anyone reccommend treatment for this rash?  She does not take hot showers or rub with towels.  She is 80 yrs old, God Bless her, and has such a great attitude, I'd like her to have some relief.Thanks,Dee  http://www.cancercompass.com/message-board/message/all,22810,0.htm Deirdre Tue, 08 Apr 2008 00:00:00 GMT Can anyone tell me the side effects of this type of radiation (IMRT) to the neck/throat area.  The radiation oncologist is talking about eight weeks of five days a week.  Any infor will be helpful.  Thanks. http://www.cancercompass.com/message-board/message/all,22638,0.htm Withgrace Wed, 02 Apr 2008 00:00:00 GMT I have been on tarceva almost a month. Seem to have a canker sore on my upper gum. Was wondering if anyone else has had this problem. It might not even be from tarceva but you gotta wonder.  marcia http://www.cancercompass.com/message-board/message/all,22627,0.htm marciaw Wed, 02 Apr 2008 00:00:00 GMT My son-in-law (he's 46) had mini-Whipple surgery 5 weeks ago, and while the initial recovery from the surgery was difficult (two weeks in the hospital) he is now struggling with night time (only) sweating that's like a bucket of water has been poured over him - 2 to 4 times a night.  Additionally he still has the drain in and while for the most part there isn't too much draining (less than 100 cc a day) sometimes he does generate 150 or so cc's particularly when he gets upset or frustrated with the speed of his recovery.On the drain, I've read some articules which talk about leakage of the pancreatic anastomosis, so I'm concerned that it may be taking too long to heal? His insulin levels are starting to stabilize (he is on supplemental insulin) and while the endocrinologist thought the sweating was do to his glucose numbers, he's not sure now.His blood pressure and temperature are normal, so there are no signs of infection.So, could you share any of your experiences with night time sweating or with the duration of the inserted drain?  I would be most appreciative of your thoughts.I've read some of the postings and now know how difficult the surgery is, and how difficult the recovery can be, and that so many have lost love ones and friends.Please accept my prayers for all who have suffered from this terrible disease and for strength and comfort for all caregivers and their families. http://www.cancercompass.com/message-board/message/all,22529,0.htm Marty456TTT Mon, 31 Mar 2008 00:00:00 GMT my mother has rectal cancer,she started 5 days of radiation & chemo over 3 weeks ago. she was getting in the port 5 days a week 24hours straight-heparin/sod chloride/fluorouracil     and on thursday she would go to the center for 2 hours and get   aloxi/bendryl/decadron/ oxaliplatin 75mgshe became very flushed after thursday treatments, she started having diahrea very bad, lost her appitite, and drank very little. the dr. was informed and said it was a side effect. i had her put in the hospital a week ago she is not much better. her system is completely out of whack and we are not getting any kind of answer. has anyone else had this happen to them and what did they do to help???? thank you. http://www.cancercompass.com/message-board/message/all,22512,0.htm Billiee Sun, 30 Mar 2008 00:00:00 GMT I have been on Tarceva now for two and a half months after  four months of IV  chemo, which began to fail towards the end. I feel very positive effects of my lung power and breathing and being able to  walk a long distance , much of it uphill, in the  early mornings. My skin 'rash' and dryness is a daily problem and I appreciate reading other peoples solutions to hydrating and treating the skin. I also cannot bear to be out in the sun as I get terribly prickly all over. I have times of anxiety and stress which seems like drug reaction...My hands feel numbish and I feel 'out of control' and unable to focus my energy. Do other people feel this with Tarceva or is it related to the lung cancer and previous chemotherapies?? I wonder if anyone experiences a time frame during the 24 hours  between Tarceva pills where they have more body stress and exhaustion.I have been taking Ativan ever since I began chemotheraphy and this seems to get me  functioning through the day in 4-5 hour segments. I'm very interested to hear other peoples experiences,especially related to anxiety,memory and body reactions ,as well as hearing from people who have been doing well for a long time on this medication .Its very exciting to me to find this message board with people who are facing the same challenges..Thanks for all comments! http://www.cancercompass.com/message-board/message/all,22499,0.htm Jane M Sat, 29 Mar 2008 00:00:00 GMT I have gone through two series of chemotherapy by infusion and I am now on Tarceva.  Shortly after I was diagnosed with stage 4 NSCLC in March of 2007,  I started chemotherapy in May of that year.  I noticed after a while that I had some numbness from time to time on the right side of my body in the waiste area; and still do at times.  Towards the end of last year, I noticed a stiffness in the right lung area (that's where I have the cancer) from time to time.  Since the beginning of this year , I have had discomfort and sometimes pain in the rib cage area and my back; and at times waking me from a sound sleep.  Recently I stumbled upon an article on paraneoplastic peripheral neuropathy; and on the list of chemo drugs that could bring this ailment on, was two of the drugs I received in my first round of chemotherapy being, carboplatin and taxol.  I was wondering if anyone has experienced the discomforts and pain I feel from time to time in the same areas I am experiencing these sensations in.  The article that refered to neuropathy, it only addressed the hands and feet, of which I haven't had discomfort, numbness or pain in those areas.  The cancer has spread into some of my ribs and spine, so I don't know if the discomforts I feel is from the cancer, or may be from neuropathy.    http://www.cancercompass.com/message-board/message/all,22485,0.htm PALMA Sat, 29 Mar 2008 00:00:00 GMT Go to emotional support section,,, and then I hate Arimidex.  http://www.cancercompass.com/message-board/message/all,22397,0.htm eyelash Thu, 27 Mar 2008 00:00:00 GMT Go to emotional support section,,, and then I hate Arimidex.   http://www.cancercompass.com/message-board/message/all,22396,0.htm eyelash Thu, 27 Mar 2008 00:00:00 GMT My daughter had surgery, partial hysterectomy, for cervical cancer. The post scan showed the tumor was too close to the remaining reproductive organs so she had to go through 3 months of radiation. She is 26. She finished radiation beginning of Nov.07. My concern is she is still not feeling well.  She is thin, lots of nausea and cold all the time. She is pale and tired all the time. On her post 3 month exam she is still burnt internally. We are not sure where to go from here. I am worried for her. She takes pills for the naseau but they are not helping. Is there a vitamin she may be lacking, iron? Should she be resting more, we are not getting all the answers we need.  She returned to school 2 weeks after radiation stopped and now she is almost finished so I am wanting her to take a month or more to rest up before she looks for work.  Any help or advice? Thanks  http://www.cancercompass.com/message-board/message/all,22198,0.htm islandcat Thu, 20 Mar 2008 00:00:00 GMT I should also add that peritoneal cancer is a relatively new diagnosis, is similar to ovarian cancer (which my mother does not have) and treated the same way but it is "terminal, 100% morbidity, not curable but treatable with good quality of life possible for even several years...perhaps". My Mother knew she was going to die. She was prepared for that, faced it with dignity, even anticipation...but this? Nobody told her anything about all this. Nausea, hair loss, fatigue...yes. But not one word about total incontinence, peripheral nerve damage, increased pain and brain damage. But it is all over the internet. Look up taxol/carbo side effects. Would my Mother have chosen this over the "mild, vague abdominal symptoms" she has been questioning for years...and eventual death? I don't know. And now I don't know if she can know. Help me! Is there anyone out there with comparable side effects who recovered enough to make it worth it? My mother doesn't have 2 to 3 years to recover from brain cell loss of 70 to 80%! Can you help me? http://www.cancercompass.com/message-board/message/all,22096,0.htm donnaquixote Tue, 18 Mar 2008 00:00:00 GMT Help me! My Mother has peritoneal cancer (diagnosed on her 89th birthday) and is undergoing taxol carbo chemo. Her first cycle was too strong and she ended up in the hospital with nausea and weakness, shortness of breath and racing pulse. They gave her 4 weeks to recover and began again at a lower dose. She had already begun to complain of pain in her legs, then of inability to manage her left foot. Her doctor said this could be neurological side effects of the chemo. Then she began just mentally slowing down. Her speech, her response to others...everything...just slowing down. She has gone from her normal notice everything, comment on everything, want to be the center of everything to just sitting in her chair, smiling pleasantly. She responds to stimulation, slowly. Answers questions, slowly. provides requested information, slowly. Extremely slowly. As if it is a great effort to think of...anything. She just sits and stares and if you speak to her, she smiles and with great effort attempts to converse. Is this going to get worse? Will it be permanent? What is happening? To me this is worse than the cancer. She was bloated, short of breath and had abdominal pain and we were told that she could only be expected to live 9 months without treatment, but now SHE is gone. It has been less than 9 WEEKS. Nobody told me that along with cancer cells chemo kills brain cells. I would rather have seen my Mother die than to watch her deteriorate mentally...the untimate fear of her entire adult life. What is happening to my Mother? Can it get any better? I am broken hearted. Please, please, anyone with experience with this, real experience, I do NOT want false info or false hope....PLEASE...tell me what is happening to my Mother! http://www.cancercompass.com/message-board/message/all,22095,0.htm donnaquixote Tue, 18 Mar 2008 00:00:00 GMT I posted a message on 3/2 worrying about starting Tarceva and the side effects. I had actually started that day, and by the next Sunday, 3/9, the rash had developed pretty well -- on my face, head, chest, arms and back. By Thursday I met with my oncologist who said, "Great, it's really working. But we're going to take you off the drug for a couple of weeks to clear you up." I don't know when I've ever had a rash more uncomfortable than this one. I also suffered the fatigue, diarehal, nausea, and complete loss of appetite. I went off Tarceva on the 13, and here it is the 17th and I'm still feeling the effects. I can handle everything but the rash, since it really hurts, especially on my face. I've read through the messages and will try some of the remedies other people have tried. I found Gold Bond works well, so much so that I'm not even embarrassed doing errands with white powder all over my face. He's going to start me back on April 3 with a 75 mg dose, and I hope I can handle it. I've been through chemo twice, and it was no picnic, but this face rash ranks right up there with my bad chemo days.I'm a really positive person, and I haven't let lung, bladder, and prostate cancer get me, so I'm not going to be stopped by a few side effects. http://www.cancercompass.com/message-board/message/all,22084,0.htm Craig1 Mon, 17 Mar 2008 00:00:00 GMT Hi i am new to this. My husband just started treatment for aml. He has gone through the first seven days of chemo and he is covered with a rash. The dr.'s are telling him it is a reaction from the chemo and it is normal. By the looks of some of the posts on here it is something new. I would be very interested in hearing from some of you that have found relief from this rash. Right now they have stopped giving him benadryl and are giving him something else for the itching. I can't remember the name of it right now. He also said he feels like he has the creepy crawly's all over his back and stomach. It was a little better tonight but he has numerous places that are open now and i am petrified of infection. He has also had a lot of petechiae and they have given him two transfusions of platelets so far. Anything info anyone could give me right now would be helpful.     http://www.cancercompass.com/message-board/message/all,22039,0.htm GINGER5 Sat, 15 Mar 2008 00:00:00 GMT I was sent this website from my mother as I was just recently tested for Lukemia and ET. My Dr. said it is more than likely ET. I see I am not the lone ranger here but I don't really understand as everyone is speaking of this ET as a cancer? It was not explained to me as a cancer just a Platelette issue as mine is making 900 something and I was told it is to high should be between 1-200. So I am asking for someone to explain this to me so that I may have a better understanding as it seems by the looks of all the comments that maybe my Dr. is not telling me what all I need to know. We are waiting for my blood results to come back from the City of Hope. I am currently on Hydroxyurea 1000 mg daily and baby asipirin.I will be waiting for a response from anyone, someone. Now I feel like I should be worrying.  http://www.cancercompass.com/message-board/message/all,21944,0.htm TammyT Thu, 13 Mar 2008 00:00:00 GMT I have been on femara for 2 months and have experienced joint pain especially in the mornings.  Has anyone with the same symptons found certain exercises to help?  http://www.cancercompass.com/message-board/message/all,21868,0.htm Leenie1 Tue, 11 Mar 2008 00:00:00 GMT I had a squamous cell skin cancer over my eyebrow about two years ago. My dermatologist successfully removed it via Moh's surgery but she gave me a stern warning that I would grow more cancers if I did not follow a course of treatment to remove the extensive sun damage from my scalp, face & neck. To make a long story short I embarked on a protocol of using Efudex 5% in January 2008 on my scalp and forehead. Both areas turned bright red over two weeks and eventually crusted and flaked off and the new skin underneath was like I was 30 years old(I'm 64). There was pretty good discomfort but nothing compared to the discomfort I had treating  the remainder of my face in the last couple of weeks. I was supposed to use Efudex twice a day for two weeks or 28 applications. I got through 25 applications and just could not take any more of the severe burning sensation I was suffering from. My dermatologist told me to get an over the counter tube of cream called Aquafor made by Eucerin(they make a lot of over the counter skin care products) The relief provided by Aquafor was unbelieveably fast and thorough and I highly recommend it to anyone who has just finished Efudex therapy. Do not use Aquafor during the period you are applying Efudex because it will interfere with what Efudex is supposed to do. But 12 hours after finishing your last Efudex application put on Aquafor and you'll be truly amazed by the almost total relief you will experience. Also my dermatologist advised me to wash the area Efudex is applied to with a bacteria fighting soap twice a day to prevent small infections from forming in some of the treated skin. After washing the area apply Aquafor for almost total relief from pain!! http://www.cancercompass.com/message-board/message/all,21626,0.htm goguff Tue, 04 Mar 2008 00:00:00 GMT I posted a message about my mom earlier and received no reply. Please tell me if there are similar cases of Tarceva side effects. Mom was told to stop the Tarceva now at 75 mg because of intense rash, burning, itching and pain. She looks scalded and her skin in so tender it bleeds very easily when she rubs it ---scratches gently. She can't sleep due to the itch --. The rash is everywhere yes-everywhere.  Any advice. http://www.cancercompass.com/message-board/message/all,21245,0.htm mildred Sat, 23 Feb 2008 00:00:00 GMT