Latest Small Cell discussions http://www.cancercompass.com/message-board/cancers/lung-cancer/small-cell/1,0,119,3,76.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I know my sister's tumor inher lung is in remission..YEAH!!!!  But what about the metastatic disease in her bones and lymph nodes? Her bone cancer has eaten away her femor  bone but just a hairline fracturen now if your in remission is that also? This cancer thing is very confusing...I cant even get excited when she is in remission cause she has to have another week of chemo and worried once the bone is ruined, how can chemo fix it? Now they want to do the radiation of the brain...she is pooped and wants to rest and so do I. She is mad at me for writing her doctor and all he would say is that he received a very disturbing letter from me so she didn't know what I said so she was furious and upset and that made me feel like a looser. I just asked why dont they give her Epogen for her anemic and fatique. I'm just worried about her and no one in my family will tell the doc that she is smoking a pack a day now and I'm scared she wont be in remission long doing that. (She dont know I wrote that but I kinda wanted the doc to lecture her about it) but he didnt cause i said please dont tell trudy that I wrote this letter) I just wanted her not to know it was me but he could of lectured her about all the smoking. So I accomplished nothing except getting everybody mad at me.  I feel like a big jerk! http://www.cancercompass.com/message-board/message/all,28862,0.htm Becky55 Wed, 01 Oct 2008 00:00:00 GMT Many Thanks to all who replied to my question regarding Vit C IV Injections, unfortuanally we never got a chance to give it to my mam. She passed away peacefully September 12th at just 52 years of age.    http://www.cancercompass.com/message-board/message/all,28701,0.htm cuningham Sat, 27 Sep 2008 00:00:00 GMT After reading several postings, I understand each person is different. But, my husband was diagnosed with Small Cell Lung Cancer in Jan, 08 I am lost confused and still scared. No one can seem to tell me a straight answer on a prognosis, I realize they cant be exact but I cant even get an approximate one. I hate to keep asking, It makes me feel very uncomfortable, but we have kids and grandkids, we all want to know what to expect, whats to come and how much time we have to share with him. None of us will ask again in front of my husband, but does anyone know of a easier way to get this information.After receiving all three treatments, Chemotherapy, Radiation and precautionary Brain Radiation. He finished all with very minimal side effects during treatment. But he is now experiencing nausea, vomiting, diahhrea, loss of taste, and a few other undesirable issues. Does anyone have info about this.We have also mentioned these things to the Dr.s and get a "O.K. well if it is still a problem next time...."Wondering if anyone knows of this delayed side efffects problem, or are we looking at a normal after effect. Does anyone know what else we might be looking at ahead of us.This is all new to me, so Im sorry if this does'nt come out right, or I offend anyoneThank you  http://www.cancercompass.com/message-board/message/all,28531,0.htm 14jonecat Mon, 22 Sep 2008 00:00:00 GMT Can anyone help me, were thinking of giving my mam IV Vitiman C. She has small cell lung Cancer that mets to the brain. Is their anyone who has tried this before??? Any info would be of grear importance.Cheers,  http://www.cancercompass.com/message-board/message/all,27610,0.htm cuningham Wed, 27 Aug 2008 00:00:00 GMT My sister was diagnosed July 3rd with sclc-exstensive stage and after a pet scan it already has metastasized to her bones and lymph nodes. She is at stage IV. Last week she lost all her hair, got a blackeye (doesn't know how) went anemic, and has all these bruises all over her. Yesterday she started round two of chemo and got a MRI test to see if her brain is ok...she had a sinus infection...thank goodness! Her first treatment she did 4 days with only 2 weeks off.   Does anyone know any survivors of stage IV sclc metastasized to bones and lymph nodes?  What I look up its the most agressive kind you can have and with chemo you have only 10 -12 months..She is only 49 years old!  I'm just sick about this...she quit smoking over a year ago, but not soon enough I quess. At first every time I would see her I would start crying, and she got mad at me saying I depressed her. So I was banned from seeing her, but she thinks she has 3 years to five. I not going to ruin her hope, so I said she will feel better after her 4 months of chemo is finished and you will go in remission for a long time. But I know thats not true...the other night she called me and was crying saying she can just feel like she is not going to last that long. She is breaking my heart...again I said its the chemo making you so tired, once thats over you will rebuild your cells and feel alot better. I'm praying this will happen...but the facts are not there...I need some hope! http://www.cancercompass.com/message-board/message/all,27337,0.htm Becky55 Tue, 19 Aug 2008 00:00:00 GMT My partner was diagnosed with a very rare "small cell cancer of the rectum which has metasticized to his liver and now lungs.  I have no illusions as to the gravity of what we're facing, but I also have some lingering doubts as to the diagnosis......although not sure why.  Four years ago, he had a "squamous cell" tumor cut off his leg, which they said was completely resolved.  Now he has a very rare cancer for which there is no cure, and from what I can read, there have been instances where "small cell extrapulmonary" cancers have been confused with other types of cancer which are more treatable.  I don't know what to do and was wondering if anyone has ever heard of a case of this.  Please help me if you can, time is not on our side.    http://www.cancercompass.com/message-board/message/all,26848,0.htm Beauchev Wed, 06 Aug 2008 00:00:00 GMT My partner has failed the first two chemo regimens and this horrible disease continued to grow rapidly.  We're on our third type of chem now and won't know if it's having any effect for another week at best.  Is there anyone out there who failed their first and second line chemos and had the third one work?  If so, what did you take ?  Please help, as you all know, time is in such short supply. Bruce http://www.cancercompass.com/message-board/message/all,26754,0.htm Beauchev Sun, 03 Aug 2008 00:00:00 GMT my mum was told she had small cell cancer, back in feb this year, it had gone to the brain which has been removed, but still in lungs, ive been trying to look it up is this going to beat her?? how long roughly does she have, i just cant come to terms with this i need to no is this the end or can she fight it?? shes on her second dose of chemo and has had radio, she can no longer drive, i just need some info please  many thanks  claire http://www.cancercompass.com/message-board/message/all,25753,0.htm tazmin Sat, 05 Jul 2008 00:00:00 GMT My mom was diagnosed with SCLC last November just days after her 65th birthday. She received chemo and was told she was cancer free. So for precautionary measures she received radiation to the the brain. Her last radiation treatment was May 9th. Shortly after radiation to the brain she was diagnosed with Radiation Induced Pneumonia and hospitalized. She nearly died. But by the grace of God she recovered. She is feeling great and has been cleaning out closets and re-arranging the house. It is amazing that she is feeling so good.Unfortunately, after receiving another lung CT scan her chemo doctor told us that the CT showed 2 spots on her left lung and 1 on the right lung. He believes the cancer has come back.However, her lung doctor seems to think she may have scaring from the pneumonia. Has this happened to anyone else? Could it possibly be scaring from the radiation? Oh God I hope that's all it is. But I know my sisters and I have to prepare ourselves for the other. Mom gets another CT scan July 17th to see if the spot has increased in size. She has had several CAT scans and is very concerned about all the radiation she is getting. Should she be concerned?It's really hard to believe that the cancer has come back since she is doing so well. I'm totally devistated from the news the chemo doctor gave us. I love my mom so much and if possible my sister and I would give mom one of our lungs so that she would have a better chance for life. Would a lung transplant be possible since the cancer is confined to the lungs and is it possible that the spots on her lung is just scaring from the pneumonia? http://www.cancercompass.com/message-board/message/all,25681,0.htm jarfly Thu, 03 Jul 2008 00:00:00 GMT My partner was diagnosed with small cell rectal cancer in January, and it had spread somewhat to the liver at that point.  Two different regimens of chemo (carboplatin/Etoposide, and Topotecan) both failed and it has spread to his lymph nodes and some to his lung.  We're terrified and the doctors in Kansas City say no hope.  Does anyone know of something that we don't know of or haven't tried?  Our oncologist was "less than aggressive" in his treatments I believe, and now time is of the essence.  We're going to Cancer Treatment Centers of America on Monday but we don't know what, if anything, they may have to offer.  Please help if you can, and God Bless all of you. Bruce   http://www.cancercompass.com/message-board/message/all,25418,0.htm Beauchev Thu, 26 Jun 2008 00:00:00 GMT Im 37 years old, just found out i have small cell bladder carcinoma.  I have 3 children.  How do i tell my children this. They want to remove my bladder completely.  im sooooooo scared, not just for me but for children. http://www.cancercompass.com/message-board/message/all,24948,0.htm janlynn Thu, 12 Jun 2008 00:00:00 GMT Hi,  I've been reading some older posts on this board from people who were diagnosed with small cell lung cancer.  Some of these posts date back to 2003/2004.  Are there any updates on these posts as to how these people are doing?  Just curious and always looking for miracles.   http://www.cancercompass.com/message-board/message/all,24903,0.htm chef4u Wed, 11 Jun 2008 00:00:00 GMT Has anyone heard of shingles being internal and mimicing cancer? http://www.cancercompass.com/message-board/message/all,23394,0.htm lanse Thu, 24 Apr 2008 00:00:00 GMT Husband dx w/small cell and/or combination w/adenocarcinoma, mets to spine, hip, spot on liver, masses on both lungs.  Tx is chemo, possible rx to brain for preventative spread.  1st round of chemo, kidney function took a dive downwards, cough improved, constipation a real issue from codeine, calcium and IV treatment to bones.  Started second round of chemo yesterday.  We are trying to prepare for any new side effects.  The chemo changed to carboplatin for ease on kidneys.  After 3 rounds, then evaluation for the treatment effect on disease spread or improvement.  I didn't see many messages posted on small cell lung Cancer.  Can anyone comment on their treatment and outcomes.  Thanks. http://www.cancercompass.com/message-board/message/all,23347,0.htm Husband4keeps Wed, 23 Apr 2008 00:00:00 GMT After 20 months from the time he was first diagnosed with stage 4 sclc my father passed away last week. I am lost and so so so sad. For 17 out of those 20 months he did well. No pain, no symptoms...he seemed ok. But the last 3 months were bad, he was hit with everything at once.  I miss him and I will miss him always. My heart is broken. This all still seems like a dream, it does not feel real. I do want to say: keep hoping and fighting this disease. God Bless all those touched by cancer.   http://www.cancercompass.com/message-board/message/all,23236,0.htm Ne_ne_125 Sun, 20 Apr 2008 00:00:00 GMT i find it hard to believe that i can not find any information on my sisters cancer. she has what the docs call an undifferentiated neuroendocrine tumor, in her perionatal cavity. it acts like small cell cancer because it is so aggressive. she has had a full hysterectomy and a small bowel resection, she has completed 14 rounds of chemo and it is still there her oncologists said they really have never seen this before, she is forty years old 3 small children she is taking an active part in her care, she started an all raw foods diet but had to stop because of going to the bathroom is a hugh problem from chemo this made it worse. she takes something called protocel. is there anyone out there who can help or does this sound like anything anyone has heard about, please help thanks loving sister http://www.cancercompass.com/message-board/message/all,22222,0.htm shopaholic Fri, 21 Mar 2008 00:00:00 GMT Hi to anyone and everyone out there. My sister inlaw has survived small cell cancer and her treatment thus far and is doing very well. we would love for her to meet and talk with others that have shared this experience. although i am the one doing this for her.  i hope that there are those of you out there that would like to share with her. i am testing the waters to see how it goes and then let her know.  i am hoping that she will want to get on line and have people and experiences she can relate to. i feel this would be very important and helpfull to her.                                                                          nightsky                            http://www.cancercompass.com/message-board/message/all,21584,0.htm nightsky Mon, 03 Mar 2008 00:00:00 GMT Hey All, iam Allie, iam 23 and my mum was diagnosed 2 weeks this coming tuesday with small cell lung cancer. iam so scared about it all, and iam trying to be supportive for my mum, and iam listening when she needs and giving her a hug when she needs one, and have been to all of her hospital appointments,and am going to her first appointment with her oncologist on tuesday.iam so scared they are going to tell us they cant do anything, we already know they cant operate, and if her lungs are up to it they want to do chemoradiation, but she's been a smoker for the last 45 years, and a heavy one at that, and she's not really in good health before this, that iam scared they wont beable to do it and tell us its not going to be long.we all want to know how long they think it might be with and without treatment, cause at the moment, she's at the 'im in no pain or anything, so why go through treatment' stage and as much as ive tried to tell her it probably wont stay that way it just doesnt seem to go in. iam worried that because she is also suffers from schizophrenia and bipolar that its really going to affect her and she will get ill again, when she has been well for 6 years.i mean whatever she decides i will support, even if its going to upset me to do.can anyone give me any advice? i never thought id have to go through this, watching my mum go through this at such a young age.i dont think it helps that her own dad died of lung cancer at 68, and my mum is nearly 61, so its just reminding us all of him etc.iam so scared and i feel so alone aswell.ThanksAlliexxx http://www.cancercompass.com/message-board/message/all,21511,0.htm AllieT23 Fri, 29 Feb 2008 00:00:00 GMT My husband was diagnosed with small cell cancer in the lungs, bones, and lymph nodes. It is also in his brain. My question is how much time he has left, will there be any feel good days? http://www.cancercompass.com/message-board/message/all,21319,0.htm racmic Mon, 25 Feb 2008 00:00:00 GMT My husband has small cell cancer in his lungs, brain, bones, lymph nodes. He is undergoing chemo and other stuff. Has he any chance of having any length of good time left? http://www.cancercompass.com/message-board/message/all,21318,0.htm racmic Mon, 25 Feb 2008 00:00:00 GMT Without a doubt the Lung Cancer Survivors Community (google it)is more active. It, in my opinion is the best designed board for those who have questions and need help. Our members/survivors are great. Try us!! Wendy  http://www.cancercompass.com/message-board/message/all,20952,0.htm Flossy Thu, 14 Feb 2008 00:00:00 GMT Is there anyone out there who has had PCI over 5 years ago?I would like to know the side effects of PCI on your mental state, quality of life, dementia, memory, etc. I would like to go back to work, but I am not sure if I will be able to do my job if I receive PCI.I am almost at the end of my lung radiation and must make the decision to have PCI or not.Can anyone help?   http://www.cancercompass.com/message-board/message/all,20925,0.htm cruisin Wed, 13 Feb 2008 00:00:00 GMT My father in- law was diagnosed with stage 4 Small Cell Lung Cancer on 10/2/07. He is 72 years old. He has tolerated Chemo quite well and just completed his 4th round. The Dr's and nurses are amazed at his resilence and strength considering he has a full head of hair still and continues to go to work 3 days a week. The medical staff calls him the Russian Bear, since he immigrated in 1980 to the USA. The internet is a wonderful thing for family to get info on this scourge disease. Unfortunately, the more you know about it, the more concerned you become. Ultimately, on a statistical basis, the outcome is horrible. I keep my family in the dark as much as I can, especially my wife. They all think Mike will live a long and reasonably healthy life even with this diagnosis. Anyway, I found some cool info on a drug called DCA. You can research the internet yourself using search engines with words DCA, Cancer. It seems this year in Alberta they discovered that this inexpensive unpatentable drug reduced tumors on Average 80% in rats and test tubes. It had worked on nearly every tumor type, bone, brain, liver, lung. Especially, Lung!!!!  Since Drug companies cannot make any money on this (old drug so no patent), they will not fund any trials or additional research. Thankfully, the Canadien government did fund a trial and a cancer center is already using it! I have bought some of the chemical (blackmarket) in the event my father in law takes a bad turn for the worse. I am not sure if I will give it to him when the time comes. It is not FDA approved and I wont have medical supervision when dosing him. But if he is likely to die otherwise, I will feel compelled to strongly consider it. Seems wrong that I am put in this position. The medical community is too slow to react to this potential life saving drug. Anyone wish to offer me advice? Many sites and postings talk about a significant improvement in cancer patients. In fact the cancer clinic in Canada talks about a 67% improvement in patients who are not able to take any additional conventional treatments.  http://www.cancercompass.com/message-board/message/all,19255,0.htm taxmeless Mon, 31 Dec 2007 00:00:00 GMT Hi,My father was just diagnosed with extensive small cell cancer. It began as lung but has spread to his liver and bones. He has always been a heavy drinker (more than 3 drinks an evening--every evening) and although he stopped drinking after he was diagnosed, he’s begun his regular routine of drinking again. I’m worried of the affects it might have on his chemo treatments as well as the medication he is on.  I’ve searched and searched for some information on the affects of chemo and alcohol and not really finding anything.  Can someone help me find some good information that I  can share with my Dad so that I  can get him to stop drinking? Thanks so much!Stephanie--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--   http://www.cancercompass.com/message-board/message/all,17828,0.htm smittykat Fri, 09 Nov 2007 00:00:00 GMT I was wondering if there was anyone out there who could help me, I need information on small cell cancer, my aunt was diagnosed yesterday, they are doing tests tommorow to see if it spread anywhere else.  What is the pronosis and the survival rate?  What about helping to take care of her, what should I know? Please send all replies to: --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- Thank You http://www.cancercompass.com/message-board/message/all,17496,0.htm KarenAnne Sun, 28 Oct 2007 00:00:00 GMT