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    <title>CancerCompass Message Board: Tougue Cancer Discussions</title>
    <description>Latest Tougue Cancer discussions</description>
    <link>http://www.cancercompass.com/message-board/cancers/oral-cancer/tougue-cancer/1,0,119,25,46.htm</link>
    <pubDate>Sat, 19 Jul 2008 00:00:00 GMT</pubDate>
    <lastBuildDate>Sat, 19 Jul 2008 00:00:00 GMT</lastBuildDate>
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      <title>my mom has tongue cancer</title>
      <description>Im embarressed to talk about this but I have to so here goes...My mom has cancer in her tongue, she found what she thought was a sore on her tongue last october 2007. We dont have a open communication family and my parents tend to keep things private, why i dont know. Anyway, by December there was obviously something wrong. Loss of weight and unable to each much of any food or drink. In January my brother convinced my mom to go to his doctor. She did and he told her what he thought it was and wanted her to immediately go to the ENT for a biobsy. She never went back to the doctor again. She has chose the Alternative treatment for her cancer and actually refuses to admitt she has cancer. She is still with us God bless her strength, but I know she is in pain. My mom stopped eating in January and only drinks food now, She has lost an extreme amount of weight. She has tried several different alternative treatments which i believe have slowed the cancer down because she is still going to work, shopping hanging out with us and what not, But here is the deal she holds her face all the time, her ear hurts constantly and she has alot of mucus that she spits constantly out. You can barely understand her when she talks too. Why i am telling you this i dont know. I guess i want to know if&amp;nbsp;anyone could tell me what works to help reduce pain. I know my mom will eventually pass from this but if i could help her suffer less that would be nice. </description>
      <link>http://www.cancercompass.com/message-board/message/all,25829,0.htm</link>
      <author>ttmra</author>
      <pubDate>Tue, 08 Jul 2008 00:00:00 GMT</pubDate>
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      <title>After Radiation </title>
      <description>I have completed a radical lymph gland tumor removal (didn&amp;#39;t spread any where else)2/11/08, 35 weeks of radiation and 1 cistipaton, 4 eurbiex treatment all ending 5/14/08.&amp;nbsp; My surgeon has recommended that I not have my PET scan 14 weeks from last treatment.&amp;nbsp; Is that what others are being told?&amp;nbsp; They said you could get a false negitive if you don&amp;#39;t wait.Also, I still am not really eating I have had trush 2 Xs and rad sores on my tongue next to gold crowned teeth, is that something you have experienced?&amp;nbsp; What can I do, I am still on feeding tube and want to get back to work.&amp;nbsp; Today it feels like I have something stuck in my throat like maybe a scab or something, not sure.Any experience or suggestions?&amp;nbsp; Help!&amp;nbsp;</description>
      <link>http://www.cancercompass.com/message-board/message/all,25756,0.htm</link>
      <author>moresamshine</author>
      <pubDate>Sat, 05 Jul 2008 00:00:00 GMT</pubDate>
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      <title>New Source of Hope for Patients with Squamous Cell Tongue &amp; tonsil cancer</title>
      <description>I just found this message board and everyone out there who has been diagnosed with any type of base of tongue, tonsillar or oropharyngeal cancer should immediately call Dr. Gregory Weinstein, Co-Chair of Head and Neck Surgery and the Department of Otorhinolayngology at the University of Pennsylvania&amp;nbsp; in Philadelphia.&amp;nbsp; His office number is 215-349-5390.&amp;nbsp; I am a RN, who received her degree from Johns Hopkins, and, unfortunately, I am now a &amp;quot;lay&amp;quot; expert on SCC of the head and neck.On October 16, 2006, my 59 year old husband was told he had a good size squamous cell&amp;nbsp;tumor at the base of his tongue.&amp;nbsp; The usual treatment for this very aggressive cancer is either to split your jaw open to get at the base of the tongue so the tumor can be resected, or, because that surgery is SO barbaric (required 3 years of reconstructive work), most patients are usually sent for chemo and radiation.&amp;nbsp; As many of you know, especially for base of tongue and tonsillar SCC, the 5 year survival rate is not greatAlthough I have hi-up connections to Sloan Memorial, the Dana Farber and other top flight cancer centers, we went to Penn because Dr. Weinstein (and his co-Chair, Dr. Bert O&amp;#39;Malley) is the ONLY ONE IN THE WORLD who has adapted the Da Vinci Robot to perform resections of this type of cancer through the mouth without any scars or visible signs of having had the surgery.&amp;nbsp; The surgery took about 3 hours and my husband was in the hospital for about 5 days.What Drs. Weinstein and O&amp;#39;Malley have done is to specially adapt this robot so that its 4 arms fit in the mouth of patients.&amp;nbsp; They can see much better using the robot&amp;#39;s microscopes and therefore, get much better results than the regular surgery (called a mandibulotomy).&amp;nbsp; Their clinical results have been outstanding!So, my husband is now 19 months post op--he had a good size tumor and one positive lymph node (making him a Stage III A) and was patient #75 in a clinical trial.&amp;nbsp; Dr. Weinstein removed the lymph nodes in my husband&amp;#39;s&amp;nbsp;neck in a second surgery (3 weeks later) and he has been clean ever since.&amp;nbsp; No tumor recurrance, no radiation, no chemo. He has no difficulty swallowing and although he has lost alot of taste, it is very slowly returning.Also, you all should know that there is a rash of SCC head and neck cancers being diagnosed in people who are not heavy smokers and drinkers.&amp;nbsp; Many of these cancers are HPV-16 (Human Papilloma Virus) positive--this is the same virus that causes cervical cancer.&amp;nbsp; My husband was not a smoker and did drink, but not heavily.&amp;nbsp; His tumor was HPV-16 positive.&amp;nbsp; Some early clinical trials at John Hopkins and in Germany are suggesting that HPV-16+ cancers are not quite as badd as the regular SCC and actually are more sensitive to radiation and chemo.&amp;nbsp; But head and neck radiation is hell and to be avoided whenever possible.&amp;nbsp;So there is my story--a bit simplified, but true.&amp;nbsp; I am here as a support person to answer any questions, or just to offer support.&amp;nbsp; This is a devastating illness, but not many people know about the work being done at Penn and I do hope this has been a help.God Bless you all and stay strong.&amp;nbsp; You can email me if you want mor info.&amp;nbsp;&amp;nbsp;</description>
      <link>http://www.cancercompass.com/message-board/message/all,24760,0.htm</link>
      <author>Dennys Wife</author>
      <pubDate>Fri, 06 Jun 2008 00:00:00 GMT</pubDate>
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      <title>Survivor</title>
      <description>Hi, it has been three year&amp;#39;s since I found this cancer site. Ii has helped me a lot. I had tongue base cancer three year&amp;#39;s ago with a large tumor on the right side of my tongue. I went to Emory in Atlanta Ga to the greatest ENT. The tumor was so big they could not operate so I had 35 days of very powerful radiation &amp;amp; 3 rounds of chemo every three weeks. I had a full 8 hr&amp;#39;s of chemo on a Thur&amp;#39;s, came home with it at a slow drip &amp;amp; then it was removed on Mon. morning. I was never sick or lost my hair. I was just burnt up badly in my mouth and neck. &amp;nbsp;The radiation Dr. was woderful. I didn&amp;#39;t talk for 6 month;s, I have had a feeding tube for 3 year&amp;#39;s ( I have a button ) I have been thru every speech &amp;amp; swallow therapy, but my tongue was destroyed. If the tumor had not shrunk enogh to take out, I would have lost the tongue. It shrunk totally &amp;amp; I am cancer free and a live, thanks to the great Dr. above. He walk with me every step of the way &amp;amp; &amp;quot; I STAND FIRM ON MY BELIEF I AM HEALED&amp;quot; My saliva glands were totally destroyed as I was algeric to the shots for that. My mouth is horribly dry &amp;amp; new things are happing from radiation, which everyone radiation side effects don&amp;#39;t go away. The scare tissue is bad under the good side. I have to use a baby toothbrush because my gums &amp;amp; cheeks are so burnt &amp;amp; sore after 3 year&amp;#39;s. I do talk, but not well &amp;amp; my tongue rubs on a tooth &amp;amp; hurt&amp;#39;s. Tooth can&amp;#39;t be removed because mostly I will not heal.I am sorry this is so long but I just want people to know you can beat tongue caner with faith &amp;amp; healing form the great Dr. above. I have never smoked , drink or had family cancer. I believe things happen for a reason.For all who have cancer or know someone, know there is healing &amp;amp; miracles and have strengh &amp;amp; peace. Remember &amp;quot; YOU CAN DO ALL THINGS THRU CHRIST WHO GIVES YOU YOUR STRENGH&amp;quot;Blessing &amp;amp; peace on everyone,Debi (gatorgirl)</description>
      <link>http://www.cancercompass.com/message-board/message/all,24261,0.htm</link>
      <author>gatorgirl</author>
      <pubDate>Thu, 22 May 2008 00:00:00 GMT</pubDate>
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      <title>Unkown Ulser on my Tongue</title>
      <description>I'm a 33 year old Male. I've had this ulser on my tongue for over 2 months now. 

I first thought it was a canker it was hurting when i ate salty foods ect. but i've never had one before. After 3 weeks i called my Dentist to have him look at it. He saw my Ulser at the 4 week mark and told me that if it wasn't getting any better in three weeks to call an oral surgeon and he gave me a refferal. 

over the next several weeks i noticed it less because it stop'd hurting as much. Also some days the area would look just a bit red and others it would have a white look to part of it. (like the skin lifted up in that area) 

I saw the oral sergeon and he told me that it most likely isn't a canker because they don't last that long. He has sceduled me to have a piece of the area cut off to be anylized. 

One of my worries is that it might be cancer but i'm not a smoker or drink all that much. I feel like i don't fit any of the risk factors for it. 

When i feel my tongue i feel no lumps and when i touch the ulser its smooth. the best way to describe the pain is when you burn your mouth on hot pizza cheese and 1 to 2 days later its still irritated. 

I took a picture to show a nurse friend of mine and here it is. It was taken at the 4 week point of the ulser. this is when it hurt the most. today 6 weeks later It doesn't look as bright red and the white spot comes and goes. One day the white spot is there then the next its smaller or gone. 

Note: I have Geographic Tongue (i think the white line above the ulser is due to that condition and not part of the ulser?)

http://i32.photobucket.com/albums/d22/Gurik/Tonguecanker.jpg 



Thanx for your help in advance!</description>
      <link>http://www.cancercompass.com/message-board/message/all,23853,0.htm</link>
      <author>Kevin1275</author>
      <pubDate>Thu, 08 May 2008 00:00:00 GMT</pubDate>
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      <title>Brachytherapy vs. Longer Tomo Hi-Art Treatment</title>
      <description>My husband is D1, T1 base of tongue w/ cervcial node metastasis.&amp;nbsp; He has had 4 cycles chemotherpy (5FU, Doxetaxel, Cisplatin) &amp;nbsp;and 28 daily chemo/radiation sessions at a Long Beach, CA hospital.&amp;nbsp; The option now is to continue with a more focused Tomo Therapy for 21/2 more weeks or do the Brachytherapy for 4 days.&amp;nbsp; Brachytherapy involves hospitalizatin and surgical insertion of rods and dropping of pellets directly into the tongue and cervical node tumors, including a temporary tracheostomy. We are trying to decide.&amp;nbsp; Has anyone faced this scenario?&amp;nbsp; The dr.&amp;nbsp;explained that&amp;nbsp;the survival is the same for each and that brachytherapy has almost been replaced by the Tomotherapy&amp;nbsp;for tumors such as my husband&amp;#39;s.&amp;nbsp;He said there are&amp;nbsp;no final statistics/studies yet because brachytherapy has been the protocol for 35 years and the newer Tomo therapy is not used in as many places in the U.S.&amp;nbsp;Comments appreciated.</description>
      <link>http://www.cancercompass.com/message-board/message/all,21595,0.htm</link>
      <author>Hacksaw</author>
      <pubDate>Mon, 03 Mar 2008 00:00:00 GMT</pubDate>
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      <title>Hope I can help someone with same experience</title>
      <description>In June 2007 while being treated for Oral Lichen Plantis (autoimmune disease) I asked for a biopsy of a hard painful sore on my tongue. It came back malignant. I was then scheduled for consult with a ENT specialist who scheduled me for surgery. The tumor was removed in July 2007. I was told that the radiation couldn&amp;#39;t proceed until all of my dental work was complete as the radiation would cause any bad teeth or gum disease to complicate therapy. I was very upset about this because I felt the cancer should be the first priority. In the end, I had to get a certificate from the dentist that the dental was complete. Before radiation, I received a PET scan which involved a radio active injection mixed with glucose. The science of this test is that any cancer cell or damaged or healing&amp;nbsp;cells in my body is growing faster than all the rest of the normal cells and would readily grab onto the glucose mixture that was now circulating in the blood stream. This test was to show where and what amounts of cancer cells remained after surgery and if metastisis (spreading) had occurred. When the test was analyzed it showed only the location on my tongue where the tumor was removed. I did finally&amp;nbsp;begin the radiation treatments. Six weeks of 30 treatments. Beginning in the first of Sept and ending at the end of Oct. For the next two weeks I was really, really sick. Couldn&amp;#39;t eat much and couldn&amp;#39;t stay awake more than a couple of hours at a time. I had a follow up examination in Nov (one month after therapy). The Dr. said everything looked good and he was recommending a CT scan of my mouth area in 6 months. The radiation irritated or damaged my thyroid gland and I have to take medication until the cells heal. About a month ago my tongue and lower neck began to swell up real bad again. I have been prescribed steroids and antihistamine until I can be seen by the ENT Dr. to find out about the relapse. I was told that it could take up to 6 months to recover from the radiation therapy. A week after my therapy ended, I discovered many exema sores over my legs and arms. The skin on my lower face and chin looked really scary. It&amp;#39;s much better now but still not like it was. Today is&amp;nbsp;Jan. 5th 2008.When we find out we have cancer the next question is how bad, right? These are the things I&amp;#39;ve been told. Usually oral, tongue cancer isn&amp;#39;t detected until the glands of the neck start swelling and get tender. That&amp;#39;s why it&amp;#39;s so difficult to treat because early detection is past. But it&amp;#39;s still very treatable none the less. The higher on the neck involved nodes are located, the less likely of wide spread of disease. The middle to end of tongue tumor location, the less likely of gland involvement. What I went though in the last 6 months was pretty bad but I made it. If I have a recurrance I will do it again. There will be a cancer cure soon. It&amp;#39;s about getting from here to there. I&amp;#39;ve talked to so many cancer survivors with much worse cases than mine. There is a cure in the future. Meanwhile, today was a great day and I&amp;#39;m pretty sure I&amp;#39;ll be here tomorrow. I&amp;#39;m very greatful for that....just for now. My best impression to share with anyone having a hard time is try putting the fear behind. Not easy, I know but it sure can mess up the time we have here however long that is.God Bless Rita</description>
      <link>http://www.cancercompass.com/message-board/message/all,19400,0.htm</link>
      <author>RiSikors</author>
      <pubDate>Sat, 05 Jan 2008 00:00:00 GMT</pubDate>
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      <title>im afraid please help</title>
      <description>Hi I am a 21 year old afraid of having cancer i have this blister looking thing under my tongue the problem is I dont have health insurace so if anyone can help me i would really really really appreicate it alot!!! ill send a pic &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp; &amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp; -sheraz  </description>
      <link>http://www.cancercompass.com/message-board/message/all,18756,0.htm</link>
      <author>Sheraz99</author>
      <pubDate>Mon, 10 Dec 2007 00:00:00 GMT</pubDate>
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      <title>Swollen Tongue</title>
      <description>New to this board.... My wife has recently been diagnosed with tongue cancer with involved lymph nodes (33 years old non-smoker ect...not pre-disposed&amp;nbsp;,cancer does not play favourites). She has had surgery: hemi-glossectomy (free-flap reconstruction) and bilateral neck disection. She has just finshed 6 weeks of radiation to the oral cavity and neck. She is recovering nicley but after radiation treatments her tongue has become very swollen. Has anyone out there with similar treatments experienced this side effect and if so do you have an indication what causes and its duration.Johnny</description>
      <link>http://www.cancercompass.com/message-board/message/all,17133,0.htm</link>
      <author>johnny438</author>
      <pubDate>Tue, 16 Oct 2007 00:00:00 GMT</pubDate>
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      <title>new diagnosis, total confusion</title>
      <description>My husband was just diagnosed with squamous cell carcinoma, poorly differentiated with basaloid features at the base of the tongue.&amp;nbsp; He had a neck dissection and one of three lymph nodes as the same diagnosis.&amp;nbsp; Our ENT recommends radiation and chemo.&amp;nbsp; My husband is an otherwise healthy 64 year old man who has lived his life staying clear of doctors, eating a healthful diet.&amp;nbsp; He is a bit of a health nut!&amp;nbsp; Just today, he expressed doubts about pursuing the recommended treatment plan, seeking an alternative medicine cure.&amp;nbsp; Has anyone had any experience along those lines.&amp;nbsp; Help!</description>
      <link>http://www.cancercompass.com/message-board/message/all,17041,0.htm</link>
      <author>manager</author>
      <pubDate>Fri, 12 Oct 2007 00:00:00 GMT</pubDate>
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      <title>Treatment ending</title>
      <description>father, 88, stage IV base of tongue cancer, lymph node involvement both sides of neck&amp;nbsp;My father is completing seven weeks of radiation, M-F, with weekly chemo of Erbitux.&amp;nbsp; He started out having seven weeks, which should end today, plus three makeup days (Labor Day, and two days in the hospital).&amp;nbsp; However, he is now scheduled to have one additional week, as he told me on Wednesday that he has 8 more treatments.&amp;nbsp; That would take him to a week from Monday.Why do you think a week would have been added?&amp;nbsp; Any ideas?Also, he is so encouraged, saying, &amp;quot;I think the cancer is gone&amp;quot; because his two oncologists examined his throat visually and said they could not see anything.&amp;nbsp; This, of course, is different from what his throat looked like before treatment started.&amp;nbsp; I am afraid he might have&amp;nbsp;his hopes up prematurely, as he has not yet had any scans.&amp;nbsp; But I am not doing anything to dash those hopes.Anyway, I am interested in what he might expect once his treatment ends.&amp;nbsp; How long will it be until he has a PET scan or somesuch to determine the effects of treatment?&amp;nbsp; How will he feel?He has had a PEG tube since before treatment?&amp;nbsp; Will he continue to need it?&amp;nbsp; Will he feel better?&amp;nbsp; Worse?He has had minimal, but bothersome, side effects.&amp;nbsp; His voice is raspy, he has been quite tired, his mouth is dry, he has no saliva.&amp;nbsp; These were all expected.Also, I would like to ask this question.&amp;nbsp; His abrasive personality has become much moreso.&amp;nbsp; Do you think this has anything to do with the cancer?Thank you for your time.Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,16176,0.htm</link>
      <author>Memah</author>
      <pubDate>Fri, 14 Sep 2007 00:00:00 GMT</pubDate>
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      <title>May I hear from you?</title>
      <description>Lamby, I would look forward to hearing from you again.&amp;nbsp; I know you are busy today, but when the time is right for you I would really like to talk again.Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,15894,0.htm</link>
      <author>Memah</author>
      <pubDate>Wed, 05 Sep 2007 00:00:00 GMT</pubDate>
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      <title>Behavioral changes</title>
      <description>Can anyone speak to this?&amp;nbsp; I am wondering whether radiation and chemo can cause behavior changes.&amp;nbsp; I have noticed that my father is becoming&amp;nbsp;increasingly angry,&amp;nbsp;abrupt, interruptive,impatient, uncooperative, and unpleasant.While these traits are usual for him, they seem be getting much worse.He has stage IV base of tongue cancer and just started radiation and chemo this past Monday, so is at the beginning of treatment.&amp;nbsp; He has radiation M-F for seven weeks with (Erbitux) chemo every Tuesday.&amp;nbsp; So far so good, except that he&amp;nbsp;gets screamingly mad about every little thing.He also has a mass on his pituitary, which is not a new finding.&amp;nbsp; He takes Bromocriptine for it.&amp;nbsp; Maybe that has something to do with his behavior?He just got over pneumonia, and the more he is angry and raises his voice the more he coughs.&amp;nbsp; When he is calm he does not cough.&amp;nbsp; He has finished the medication he was given for the pneumonia, but as far as I know he hasn&amp;#39;t been back to his doctor to determine whether the pneumonia is in fact gone.&amp;nbsp; Would it make a difference receiving radiation and chemo if the pneumonia is still there?The pneumonia was discovered about two or three weeks ago during a visit to the ER.&amp;nbsp; He went to ER because his heart was racing, slowing, then racing and slowing, six times in all.&amp;nbsp; He was very frightened.Any input?&amp;nbsp; I thank you in advance.Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,14947,0.htm</link>
      <author>Memah</author>
      <pubDate>Thu, 02 Aug 2007 00:00:00 GMT</pubDate>
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      <title>chemo side effects</title>
      <description>Would you please respond with what&amp;nbsp;your reactions to chemo have been?&amp;nbsp; My father is having weekly chemo with Erbitux, with concurrent radiation.&amp;nbsp; He just began chemo today.&amp;nbsp; If you have had tongue cancer, I would be especially anxious to hear from you.Also, do chemo side effects necessarily begin with the first treatment?&amp;nbsp; He said it went fairly well today.&amp;nbsp; Or might I expect that with further chemo treatments he might experience some side effects?Thank you.Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,14894,0.htm</link>
      <author>Memah</author>
      <pubDate>Tue, 31 Jul 2007 00:00:00 GMT</pubDate>
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      <title>New Cancer Diagnosis Advanced Stage</title>
      <description>I just heard from my father&amp;#39;s doctor with the results of his biopsy.&amp;nbsp;&amp;nbsp;He has base of tongue squamous cell carcinoma staged&amp;nbsp;T4 N2C.&amp;nbsp; Can someone help me understand this more fully?&amp;nbsp; He begins radiation Thursday, a combination of radiation with &amp;quot;bursts&amp;quot; of chemo.&amp;nbsp; Radiation will be five days a week for five or six weeks.&amp;nbsp; Thank you.Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,13162,0.htm</link>
      <author>Memah</author>
      <pubDate>Tue, 12 Jun 2007 00:00:00 GMT</pubDate>
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      <title>Radiation</title>
      <description>My 87-year-old father has just been diagnosed with base of tongue cancer with enlarged lymph nodes in the neck, and will be beginning radiation very soon.&amp;nbsp; He is to have a radiation treatment once a day, five days a week, for five or six weeks.&amp;nbsp; He now weighs about 140 pounds at 6&amp;#39; tall.&amp;nbsp; He does not eat well nor regularly.&amp;nbsp; He is a rather uncooperative person, and I fear for him after what I have read on the message boards about what others have experienced.&amp;nbsp;&amp;nbsp;About eleven&amp;nbsp;years ago he had successful radiation for prostate cancer, and he thinks that this should be the same.&amp;nbsp; Already he coughs, is hoarse, has the sore throat, and I suspect a feeding tube will become necessary.&amp;nbsp; Can anyone give me ideas about what the radiation will be like?&amp;nbsp; He lives alone but has someone to do the cooking for him.&amp;nbsp; Also, does having enlarged lymph nodes in the neck necessarily mean metastases?&amp;nbsp; I have been told by two nurses that it is strongly indicative of metastases.&amp;nbsp; I would really appreciate anyone who can speak to my concerns.&amp;nbsp; Thank you.&amp;nbsp; Maggie</description>
      <link>http://www.cancercompass.com/message-board/message/all,13116,0.htm</link>
      <author>Memah</author>
      <pubDate>Mon, 11 Jun 2007 00:00:00 GMT</pubDate>
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      <title>help!</title>
      <description>A while back now i noticed a lump under my tongue, i didnt take much notice as it was small.I have now had a sore throat,neck,ears for 3 weeks so i had a good look in my throat &amp;amp; mouth, my throat looked clear but i was&amp;nbsp;very scared to find that the lump under my tongue&amp;nbsp;had increased in size.i have booked in with my doctor for an appointment to get it checked tomorrow. I am so scared, i am 28 years old with a wonderful partner(my soul mate) that i have been with for 13 years,we have 3 beautiful young sons, the thought of getting ill now really frightens me! im too busy with my sons to get sick! i hope and pray i am just being paranoid, i will find out more tomorrow wish me luck `&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp; Gemma x</description>
      <link>http://www.cancercompass.com/message-board/message/all,12493,0.htm</link>
      <author>Gemsm42</author>
      <pubDate>Tue, 29 May 2007 00:00:00 GMT</pubDate>
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      <title>Need Your Help...husband so anxious</title>
      <description>Doug was diagnosed last month with tongue cancer.&amp;nbsp; He&amp;#39;s had 1 Chemo round and got feeding tube installed this week.&amp;nbsp; Begins agressive radiation next week.&amp;nbsp; He is so ANXIOUS.&amp;nbsp; Even valium doesn&amp;#39;t calm him.&amp;nbsp; This is his first illness ever, I&amp;#39;m trying to help him but am at a loss right now.&amp;nbsp; We&amp;#39;ve been married 36 yrs.&amp;nbsp; Any ideas will be greatly appreciated.</description>
      <link>http://www.cancercompass.com/message-board/message/all,12137,0.htm</link>
      <author>Dougs Wife</author>
      <pubDate>Wed, 16 May 2007 00:00:00 GMT</pubDate>
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      <title>Is this tongue cancer?</title>
      <description>Just today had what seems to be a pre-cancerous white &amp;#39;scab&amp;#39; removed from my inner lip where I bit myself months ago and where the cut did not heal.Tonight I remembered that from the same bite realignment, after having teeth pulled,that I also bit my tongue on its underside! It is still painful to touch and I detected the same sort of white scab growth, only this was really tiny (the one removed today was only about 0.5 cm). This site info confirmed my fears. I will phone the hospital tomorrow as the local doctors told me that my tongue cut was nothing! Is the tongue more liable to cancer than say the inner lip?Read about the beneficial effects of drinking Green Tea for oral cancers.After one pot (four mugs) of Green Tea per evening a few days ago the swelling in the growth removed today went down and the size of the white patch seemed to shrink somewhat. I truly believe that Green Tea has healing properties for the mouth. The article was on google.com.au -- &amp;quot;oral cancer&amp;quot;.</description>
      <link>http://www.cancercompass.com/message-board/message/all,11802,0.htm</link>
      <author>Grunty</author>
      <pubDate>Thu, 03 May 2007 00:00:00 GMT</pubDate>
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      <title>what do i tell my kids?</title>
      <description>My 28 year old ex-husband has been diagnosed with tongue cancer. They&amp;#39;ve already removed 1/3 of his tongue, but it has now spread to one lymph node. They admitted him to the hospital to do a round of chemo before he will have surgery. He is not being very communicative about it with me. My boys (8, 6 and 5) know that he is sick, but they keep asking me questions, like &amp;quot;Is daddy going to die?&amp;quot; Do I just let him do all the talking? If so, what should I say when they ask me? Thanks so much for your help.</description>
      <link>http://www.cancercompass.com/message-board/message/all,11108,0.htm</link>
      <author>Jacquer</author>
      <pubDate>Sat, 07 Apr 2007 00:00:00 GMT</pubDate>
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      <title>About Surgery</title>
      <description>My husband has squamous cell cancer at the&amp;nbsp; base of his tongue. I would like to know if anyone here has or had&amp;nbsp;the same type and if you had surgery on your tongue. If so, what was it like, can you speak and eat? Surgery is not an option for him. He will not have surgery, but I am curious.Thank You,Corinne</description>
      <link>http://www.cancercompass.com/message-board/message/all,9591,0.htm</link>
      <author>Aremid</author>
      <pubDate>Tue, 13 Feb 2007 00:00:00 GMT</pubDate>
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      <title>tongue cancer in 18 year old</title>
      <description>Please, can someone give me any information, good or bad, regarding the possible outcomes for my niece?&amp;nbsp; She&amp;#39;s been diagnosed with tongue cancer, which was missed completely by her family doctor and two dentists.&amp;nbsp; She&amp;#39;s had symptoms for over 8 months, but it&amp;#39;s so rare in young people--the dentist she saw last told her she just had a canker sore.&amp;nbsp; They know it&amp;#39;s in her tongue and mouth, and has spread to lymph glands on both sides of her face.&amp;nbsp; She&amp;#39;s had teeth removed to begin the radiation therapy, and they&amp;#39;re planning chemo but not sure of the regimen yet.&amp;nbsp; My sister is completely overwhelmed, and not communicating with us very effectively--this is a beautiful young lady, inside and out, and her firstborn.&amp;nbsp; They are very close, and so are my husband and I.&amp;nbsp; I adore this child, and am always very up and positive when I see her, but would like to know the truth about her chances.&amp;nbsp; I know it&amp;#39;s not good that it&amp;#39;s spread to her lymph glands.&amp;nbsp; She&amp;#39;s never smoked, doesn&amp;#39;t drink, and is otherwise very healthy.&amp;nbsp; Is her age a plus?&amp;nbsp; Has anyone out there had any experience with such a young tongue cancer patient?&amp;nbsp; She&amp;#39;s such a tiny thing--chemo and radiation are going to be very hard on her.&amp;nbsp; Any information would be much appreciated.&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp; Much thanks,&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp; Betsy</description>
      <link>http://www.cancercompass.com/message-board/message/all,9459,0.htm</link>
      <author>Betsylyn</author>
      <pubDate>Wed, 07 Feb 2007 00:00:00 GMT</pubDate>
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      <title>information please</title>
      <description>I have a beautiful niece, inside and out, 18 years old, whohas just been diagnosed with tounge cancer.&amp;nbsp; It went undetected and then misdiagnosed for at least 8 months (her dentist told her twice it was just a canker sore).&amp;nbsp; We know that the cancer is all through her tongue and mouth, and that it has spread to her lymph glands on both sides of her face.&amp;nbsp; Today they removed teeth to begin the radiation process and of cource chemo is a must.&amp;nbsp; My sister is overwhelmed and just can&amp;#39;t keep intouch with all of us about what&amp;#39;s going on.&amp;nbsp; Can someone give me a realistic outcome for all of this?&amp;nbsp; I love this child so much and am always up and positive around her but I want to be prepared for the worst.&amp;nbsp; Iknow it&amp;#39;s a very aggressive formof the cancer and it is rare in people her age.&amp;nbsp; Is her age a plus? I know she&amp;#39;ll be disfigured but alive is what&amp;#39;s important.&amp;nbsp; She&amp;#39;s been a part of my life since the day she was born and Iwant to know the truth so I can be prepared to be every bit of help and support to her and my sister when they need me.&amp;nbsp; My heart is broken, but for me the truth gives me the strength to do what ever is needed from me.&amp;nbsp; Thanks to all who can help.</description>
      <link>http://www.cancercompass.com/message-board/message/all,9325,0.htm</link>
      <author>Betsylyn</author>
      <pubDate>Fri, 02 Feb 2007 00:00:00 GMT</pubDate>
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      <title>Very Scared </title>
      <description>I go tomorrow for a biopsy of a few ulcers under my tongue. I am on steroids for the 10 time in 3 years, have been going back &amp;amp; Forth to ENT&amp;#39;s , Dr. &amp;amp; Neurologist for the three years, they all said neuraga from nerve damage to my ear in a surgery three years, ago, I kept going back with numbness in my tongue check and under my eye. I even went to an Oral Surgeon for a second opinion on the neuralga, I was convinced I was getting cancer of the check or tongue, but he did an exray, and looked around very intensively and said no, that was only 4 months ago! Now I have a few ulcers under my tongue and am in so much pain in my jaw and ear. Does this sound familar to any of you. Yes I was a smoker for 20 years, a pack a day, under alot of stress, raising 5 children and a very stressful job as an administrator. I would love to have a friend to talk to as I go through all fo this testing.</description>
      <link>http://www.cancercompass.com/message-board/message/all,8367,0.htm</link>
      <author>Scared Mom of Five</author>
      <pubDate>Wed, 20 Dec 2006 00:00:00 GMT</pubDate>
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      <title>Tongue&amp;tonsillar</title>
      <description>With lesion enhances with gadolinium, small cervical lymph nodes, and primary squamous cell carcinoma. Undefined if lymphadenopathy is appreciated. 

Hi Everyone,

I just found out that I had the above condition, I am scheduled to have the tumor between my tongue and tonsillar removed on May 22, 2006; then have it checked if its cancer (most likly.)
 
I don't know to much about this, but I am expreniening pain/numb/eye jumping and swelling in the on the right side half way up to my head down to my neck, and my right arm is almost completly numb.
When I turn my head back from left to right, I have pain shotting from the neck up to the back point of the head and over to the ear. 

All of the inflamed areas of the head/neck and the skin in the front of my right side of my face areas up to the eye are VERY TIGHT.

They say I only have a 2mm tumor, but it seems to be alot more being effect then just the tongue and tonsillar.
If anyone out their knowns what I am in for, please responde back to me. So, I will at least will prepare myself (whats really going to happen.)
God Bless you, Mary</description>
      <link>http://www.cancercompass.com/message-board/message/all,5334,0.htm</link>
      <author>Mary1960</author>
      <pubDate>Sun, 14 May 2006 00:00:00 GMT</pubDate>
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