Latest Uterine Cancer discussions http://www.cancercompass.com/message-board/cancers/gynecological-cancers/uterine-cancer/1,0,119,38,31.htm Wed, 09 Jul 2008 00:00:00 GMT Wed, 09 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have been given the hormonal pill, Arimidex, to treat recurring endometrial cancer. Has anyone had any experience with Arimidex for endometrial cancer?  If so, what are the results and what are the side effects of Arimidex? http://www.cancercompass.com/message-board/message/all,24621,0.htm four 168 Tue, 03 Jun 2008 00:00:00 GMT Up until the age of 48 I've had normal paps.....When diagnosed the first time less than a year ago with Mild Dysplsia, I was going in every 4 months to have a repeat pap.  Until 2 paps come out as NOT changing...it's considered "normal".  I am 49 years old and am NOT going through menopause (blood test confirmed that 2 weeks ago). I had a uterine albation done a year ago to blood obessive bleeding that was making me anemic.  Worked like a charm....no more periods since the procedure.  I am to go back for a repeat pap in August (4 months after my last pap).  When at the doctor for my wellness woman ck up, I noticed under the adnormal pap, all was typed in red ink, making me look twice. Doc quickly flipped through the pages so I didn't get a chance to READ what the print was in red.  Does anyone know what the level is when MILD becomes Severe?  I believe that once you have dyplasia you always have it but the degree of severity changes with the cells advance rapidly.  Can anyone shed light on this?  Thanks!! http://www.cancercompass.com/message-board/message/all,23958,0.htm Subriagirl Mon, 12 May 2008 00:00:00 GMT Hi. I have been having spotting that lasts until my period starts for the past 4 months.(it usually lasts about 2 weeks) It starts out as streaks and then gradually turns to actual spotting. I also am fairly crampy when this happens and I now have strange leg pain, that I am not sure has anything to do with any of this. I went to my gyno after the second month and before she even examined me she said it was nothing. After a very brief exam she said to call in 6 mos if it was still happening. I am 39, and I have 4 children. I have never had mid-cycle spotting before and said I am not going through menopause.(also my period started on day 47! this month) She ran no tests whatsoever. My question is, should I push for testing or should I wait? Is there something about my symptoms that signals everything is okay that she feels it is okay to wait? When I went to my regular pc about the leg pain she suggested I see a new gyno, which worried me even more! I did have a leg doppler(it was fine) and an x-ray(leg-pelvis) that I do not have the results of.Can anyone shed any light on any of this. I do not want to push for second opinions if what I am experiencing is nothing.   http://www.cancercompass.com/message-board/message/all,23005,0.htm sunny1016 Sun, 13 Apr 2008 00:00:00 GMT I have just been diagnosed with this form of rare aggressive cancer and need all the information I can get on it and support from people who have it.  PLEASE respond http://www.cancercompass.com/message-board/message/all,22517,0.htm imaqt15414 Sun, 30 Mar 2008 00:00:00 GMT Hi! My name is Kathy and I am hoping someone might be able to answer some questions I have in reference to possible uterine cancer. I had heavy perimenopausal bleeding with my periods from 2002 to 2005. My gyno  biopsied me each year and the tests and Paps always came back negative. He did note in 2002 that my uterus was enlarged which he said could be related to my weight and borderline high blood pressure.The past few years the bleeding has been normal and my periods are now about 3 months apart. However, I had an abnormal Pap for the 1st time in my life last year, but the gyno said it was not of concern as it was probably hormonal as I enter menopause.I went for my annual Pap this week and he scared me by asking me (after the exam) if 'I would be upset' if he ordered an ultrasound. He pointed out he had not done one since 2002 and wanted to see if my uterus had enlarged any. I was caught off guard and didn't question this request except to ask 'what if the uterus has enlarged since 2002?' His response is what scared me as he said 'then it could either be fibroid tumors or a bad tumor." I said 'a bad tumor as opposed to a regular tumor?' and he just shook his head.I am now scared that he felt something during the exam and it is a huge, terminal tumor he is looking for on the ultrasound! My logical side is saying he meant cancer when he said 'a bad tumor' -not necesarily a terminal and huge one.My questions are: has anyone had a similar experience? Why would he wait 6 years and suddenly decide he wanted to check the size of my uterus again? And when he noted the uterus was enlarged in 2002 should he have been monitoring it with ultrasounds yearly in case something did develop?I would appreciate any words of wisdom anyone can share. My ultrasound isn't for another week and I can't get his words off my mind!Thank you! http://www.cancercompass.com/message-board/message/all,22429,0.htm Greenkat Fri, 28 Mar 2008 00:00:00 GMT Does anyone have any experience with using the agaricus blazei mushroom extracts known as RAAX 11 and the newer version RAAX 12? Has anyone had any results with them? I've seen them selling on the Green Pharmacy website and it's pretty pricey. My wife has recurrent endometrial cancer and we decided to try this extract out, but the cost is very high for a 100ml bottle which lasts only a few days. We would like to keep using these products and were hoping to hear from anyone out there who has been using them? Thanks http://www.cancercompass.com/message-board/message/all,22018,0.htm proteus Sat, 15 Mar 2008 00:00:00 GMT Could anyone tell me what the symptoms of early stage MMMT are?Thanks much  http://www.cancercompass.com/message-board/message/all,21381,0.htm pattyb Wed, 27 Feb 2008 00:00:00 GMT Hi everyone.  I'm new to this site.  My Mom was recently diagnosed with MMMT.  She is scheduled for surgery March 4.  Could anyone please tell me what you or your loved ones symptoms were, and how long was it from the onset of symptoms until surgery.  I'm terrified for her because I've only read horrible things about this type of cancer.  Thanks much. http://www.cancercompass.com/message-board/message/all,21379,0.htm pattyb Wed, 27 Feb 2008 00:00:00 GMT My mother recently had surgery, pelvic exenteration.  She's 61 years old.  Sugery was on Feb. 11.  Due to recurrent uterine ca, pelvic exent. was basically the only option.  Because of past radiation and hysterectomy, and the extent of the ca, chemo wasn't a promising option to even consider.  My mom is home now, after 11 days in the hospital.  Undoubtedly, she is in a lot of pain, extremely weak, has no appetite...but those are side effects to be expected after this extreme surgery.  Her gyn/onc surgeon was able to save her bowel, so no colostomy needed; however because the cancer surrounded her bladder, it had to be removed.  She now has a urostomy.  Along with the emotional set-back, my mother is having a difficult time with body function issues.  Her doctors stated that she would regain bowel movement control after a while.  Is there any one out there who has had this procedure?  If so, can you tell me how you did after the surgery?  We were told that it would be a long road to recovery, but just wanted to know about how long did things start to look brighter?  When would one expect to notice a gain in strenth?  And how long did it take until you were truly back to a somewhat normal day to day life?  D. http://www.cancercompass.com/message-board/message/all,21268,0.htm FirstDaughter Sun, 24 Feb 2008 00:00:00 GMT I had a d&c last week. My doctor called me yesterday with the news. What can i expect? http://www.cancercompass.com/message-board/message/all,20976,0.htm cupid2008 Fri, 15 Feb 2008 00:00:00 GMT I was diagnosed with uterine cancer 9/05. Had radical hysterectomy, 6 weeks of radiation and then 6 sessions of chemotherapy. Lost lots of weight with radiation and felt nauseous all the time. Had some diarrhea, but it was manageable. Just a few weeks after chemo, I started to have horrible bloating and cramping. Finally went into the hospital and had a small bowel obstruction most probably due to scar tissue from surgery and radiation. Went on TPN for a month. Seemed better after that, but every time I ate food, I would get bloated and crampy. Would have severe vomiting about once a month. Went to an acupuncturist and seemed to have some improvement, but if I over did it with food or stress related activities, would have a set back and each time it was harder to get control. No one could tell me what to do. I finally went to see a holistic doctor who basically told me to cut out all foods except vegetables, good fats and chicken, turkey or fish. No deli meats though. I lost 10 lbs within 6 weeks. I was already losing a pound or two a week from cutting back on foods (lost taste for alcohol and if I was bloated couldn't eat anyway). I went from about 150lbs to 98 lbs. Was dehydrated, fatigued and depressed. Did I mention that I have 3 kids. I was a complete wreck. The holistic pushed more good fats and protein shakes. I would still bloat up. Finally, 2 years after my diagnosis, my oncologist brought me in the hospital for a port in my chest so I could do TPN. I received the nutrition 7 days a week. I've done that since September and now am down to 2 days a week, but having trouble maintaining weight. In September, the doctor also hooked me up with the gastroenterology team that finally put a name to my suffering - Radiation enteritis.Within a few weeks, I had gained about 10 lbs back, but now had constant diarrhea. This was not a symptom prior to trying the holistic diet. I've had 2 major accidents with the diarrhea. Was mortified. Fortunately, I don't think anyone was around, but it was horrible for me. Now I'm told I should take immodium every day. I don't know why I have an issue with that, but now I guess it's what I have to do. I am currently considering anti-depressants as well. My clinical psychologist (part of the gastroenterology team) tells me people with radiation enteritis have had some success with anti-depressants. Some have also suggested the hyperbaric chamber to increase oxygen and blood flow to the radiated areas. Has anyone tried that? Has anyone had success with anti-depressants?Now that I've written this book, has anyone had these same symptoms? I want to start living again and have energy for my kids. I'm constantly telling them I don't feel well, my stomach hurts or I'm afraid to go out because I might have an accident,When is the medical profession going to figure out how to treat the side effects of cancer treatment so that we can lead somewhat normal lives? Don't get me wrong, I'm grateful to be alive, but I'm just having a hard time enjoying that life.Even the slightest improvement would help. http://www.cancercompass.com/message-board/message/all,20799,0.htm dalimama Sun, 10 Feb 2008 00:00:00 GMT Hi, my name is Melinda and my mother (age 72) was diognosed with cancer 2 years ago.  I just use cancer because it started in her uterus and spread to her colon and is pretty much everywhere in abdomen (including specks in her liver).  When it was discovered 2 years ago it had already incased her colon and they had to remove the colon and had to have a colopstopcy (I don't know the spelling, but it's a bag on the outside of her stomach that attaches to a opening in her stomach to what's left of her colon).  She was given 3 months to live at that time.  2 years later now she has been fighting the cancer with chemotherapy and still maintaining her job which is the reason why I am posting this message.  Normally my mom weighs 135-140 lbs. she now weighs 95 lbs. She is very weak but is forced to continue to work because if she doesn't work she will have no insurance to pay for her chemotherapy and her blood work and without that will probably die almost immediately.  She was not working for the whole month of December, 2007 because of complications.  Those complications are gone now and now she's returned to work. She works 10-11 hour days, 5 days a week and her employer is now saying all employees must work 6 days a week for awhile.  She barely gets rested after working 5 days and she knows she cannot work 6 days - she will die of exhaustion.  This job is really helping her to die faster but with out insurance it will be even faster.  Is there anything a person at this age can do to continue her treatments without insurance.  By the way, my mom lives in Tennessee where she can't even get on the State's insurance program.  Please, if anyone knows how my mom can quit work but continue treatment - I beg of you to let me know or give me some advice.  This is tearing me up and I I am a single mom and can't afford to pay her insurance if she quits working.  Help!! http://www.cancercompass.com/message-board/message/all,20123,0.htm MelindaKay Fri, 25 Jan 2008 00:00:00 GMT My dear friend was just diagnosed with advanced Uterine Ca. She had breast cancer over 20 years ago and docs kept her on tamoxifen for about 15 years. For the past 7 years she had d&c's due to thick uterine lining. No bleeding or pain. Docs kept doing biopies and nothing, until this latest one. We are going to a gynecological  oncologist today. Can anyone please tell me of their experience with Uterine Ca??? I happen to be stage 4 ovarian ca, but not too educated in Uterine. I want to be as knowledgable and supportive as I can. Thanks for any info you can give.Diane T http://www.cancercompass.com/message-board/message/all,20046,0.htm Diane t. Thu, 24 Jan 2008 00:00:00 GMT in july i experienced a very slight spot - having had menupause for 24 years this activity raised my eyebrows - my gyn died a couple of years ago, so i called a girlfriend and she recommended her gyn - i got a quick appointment, he did a pap and informed me that i had vaginitis and prescribed an extremely expensive cream - i used it and hopped on the plane for europe - then on my birthday of all days in late august spotting began again and a few days later slight blood - then it disappeared and i prayed that i could last until i returned to the states mid-september - two days later i was back at the gyn and another pap - three days later he called and told me that i had uterine cancer and that i should have an ultrasound (unfortunately, my husband was listening since i made the mistake of having the speakerphone on...i had to pick him up off the floor!!!) and that he could not do it in his office and to plan on having a hysterectomy - a day later i called the gyn and told him to fax a prescription for an mri to my friend's offices - he faxed for an abdominal and pelvic exam (first week of october) - two days later my mri friend interpreted everything for my husband and myself - i had a very large fibroid and the shadow of another one in the background (fibroids are usually reduced in size in older women - he also saw cysts on my right ovary and advised me to have a hysterectomy asap - so i immediately located another gyn to schedule the hysterectomy (waited four days for the appointment) - i brought her the mri and she did an ultrasound in her office (anything to make more money) - she looked and searched and looked and searched (you can view the ultrasound as it is being performed) and saw absolutely nothing (remember - she had a copy of the mri and therefore knew where and what to look for...) - she decided to refer me to a gyn oncologist - the first one did not take my insurance - the second one did and i scheduled an appointment in the next few days in mid-october - he looked at the mri (maybe the ultrasound was faxed to him, i did not bother to get a copy of it) - did a quick exam of me and we scheduled the surgery for the 3rd wk of october - three days later i left the hospital with my uterus, ovaries, tubes, lymph gland, appendix, and a small portion of my colon removed and a prescription for 6 months of chemotherapy every 21 days - i have never had to move so fast in my life with anything - best thing is i 'lost' ten pounds - i have had two chemo treatments and so far minimal side-effects (lost my hair and have a lot of sleepless nights) - i feel so lucky that i was able to have such success in finding the right doctors (my mri and my surgeon) - good luck to everyone http://www.cancercompass.com/message-board/message/all,19165,0.htm adriatic Fri, 28 Dec 2007 00:00:00 GMT I have been post menopausal for a year when this happened. I had a clear jelly discharge witha tinge of blood, read it could be sign of cancer.  Went to a local ob/gyn she did biopsy nothing showed, said nothing on ultrasound.  I didnt give up and didnt believe the PA I saw that day since I couldnt see a real dr,  Went to a real ob/gyn the followuing month in July, she did  vaginal ultrasounds and said lining wasnt thick and did those blood test.  Did another vaginal ultrasound in Oct said nothing showed, I read about the symptoms and there they are about uterine cancer, clear discharge. Now today end of Dec I started having a dark bloody discharge, not heavy but there. I called her office and talked to the dr on call. she said it wasnt from my ovarian cyst, which I found out I had but she said it was getting smaller and not worry about it. If  any of you had these symptoms of clear jelly discharge with a tinge of blood, ovarian cyst that wasnt very big and bleeding 6 months later, please let me know. I am scared this is cancer, Colon cancer runs in my family and I know this gene can also cause uternine cancer. Wish I would have went to another gyn a more aggressive one, but after seeing two you want to start trusting one of them. Did anyones uterine cancer or edometrial cancer start this way?  I cant do anything until Monday and hoping I can get in right away.  Thanks http://www.cancercompass.com/message-board/message/all,18903,0.htm DDntn Sun, 16 Dec 2007 00:00:00 GMT I am 46 yrs old and started with heavy periods 3 yrs ago, after being very regular my entire life.   I was put on birth control pills and told I was perimenipausal.  I was off them this past year and periods became heavy again with clots, and this past month I have had a period for over a month straight with pelvic pain at times and back aches. I have also started back on the pill.  I was also told my uterus is enlarged.  Should I be worried, or just continue with the pill and see if my cycle becomes regular?   Just wanting some advice.  http://www.cancercompass.com/message-board/message/all,18875,0.htm rks515 Sat, 15 Dec 2007 00:00:00 GMT     My aunt, who recently turned 50, was diagnosed with uterine cancer a week ago Monday. She had been experiencing unusual vaginal bleeding since early September and also developed a staph infection from a cat bite in her calf area, around this time. She was hospitalized for the staph infection and during the same time, was seeing a gynecologist in the Alexandria, Virginia area, for the post-menopausal bleeding. In the course of the last several months, my Suzanne's (my aunt) appointments were re-scheduled not once, twice, three or even four times. Her gynecologist canceled on her five times for varied reasons (IE: deliveries, etc.) Suzanne was told by her doctor that she suffered from fibroids, which are malignant tumors that typically do not show symptoms or need surgery, in order to correct. Suzanne started experiencing abdominal pain and as this was all occurring around the time of her staph infection, it was thought that it was related to that particular problem.  She saw her gynecologist a week or so before the Thanksgiving holiday and had a series of tests run, in order to further investigate the reason for her abdominal pain and unusual vaginal bleeding.  The abdominal pain got so severe and her urinating became so spastic that she was admitted into the hospital and while there, her gynecologist came to inform her that she had uterine cancer. After this diagnosis made by her, the gynecologist then told Suzanne that was inconclusive and that she could just be suffering from large fibroids in her reproductive area. Another family member tried to contact this gynecologist and obtain information from her about the course of treatment for my aunt and the severity of the cancer and she never returned their calls.  The hospital released Suzanne and prescribed her to oral pain medications, although she continued to writhe in pain and could not stand straight. At this point, my aunt was transferred from the Alexandria hospital to the Pitt Memorial Hospital in Greenville, North Carolina, in order to receive the necessary treatment to rid her of cancer and be closer to her family.  The CT scan, which was taken at the Alexandria hospital late last week, prior to her discharge, was just obtained by Pitt Memorial yesterday morning and the results are devastatingly negative.  She has the worst possible form of Stage IV cancer; not only is there a grapefruit-sized tumor in her uterus, cancer was found in her intestines and abdominal lymph nodes, as well. The tumor in her abdomen is too large to operate on at this point and the cancer has spread too far for surgery to be effective, as of now.  In doing research on the severity of Stage 4 uterine cancer, only 20% of diagnosed women live a full year after diagnosis; only 25% of those living past five years. Assuming those numbers are accurate, that is only a 5% survival rate of 5 years+. She starts her chemotherapy treatment tonight and will have 3 rounds, 3 weeks apart. Hopefully, this will reduce the tumors and stop the spreading so she can have them removed surgically and the cancer will go into remission.       This is devastating to me because if my aunt knew the warning signs and had a gynecologist that knew what to look for, then her probability of survival would be a lot greater. If a patient is experiencing all the symptoms of uterine cancer and was at high risk for it, then the doctor should immediately run tests (such as pelvic exams/biopsy/trans-vaginal ultrasound) to identify the problem and avoid worse consequences and not dismiss the symptoms as being related to fibroids.I am very concerned about the health and survival of my aunt and worried that she may not make it to her next birthday. She is a lobbyist in Washington, D.C. for IPAA and lives on her own, has made her own successful career through hard work and determination.  I'm keeping hope and we have a great family that is supporting her every step of the way and with prayer, I believe that she can fight the statistical likelihood and beat this cancer.     In doing research on uterine cancer, I discovered that it is the FOURTH most common cancer in American women and the most invasive gynecological cancer, as it affects 36,000 women a year.   No one deserves cancer ever but if it can be caught in time, it is pretty treatable in most cases. For being such a prominent cancer in women, the risk factors and symptoms of this disease are sadly not publicized as they should be. Women, especially post-menopausal and over the age of 50, need to be more aware of this cancer, as they have a 1/40 chance of developing it.     It would be really great to hear success stories from women who have beat this and regained a normal life and it is encouraging to scan the message boards and see the many survival stories.         http://www.cancercompass.com/message-board/message/all,18787,0.htm arymayvanseay Tue, 11 Dec 2007 00:00:00 GMT Hi All, My mom is 65 y/o and was dx w/Adenocarcinoma of the endometrial lining in  Sept 2007.  she had the hyst on 10/23 and one lymph node was involved, but the rest was contained in the uterus.  She's now a stage IVB, grade 2-3 because she has lung mets.  She has like 10 all about 1.2cm and the ct scan showed that as the only spot she has mets since her hyst.  She had her first taxol/carbo on Wed. and is doing okay with that.  She is in very good health/shape other than this.  Are there any long remissions out there for this?  The docs say its treatable but always comes back. She says she has one patient who has been in remission for 5 yrs too.  Thanks http://www.cancercompass.com/message-board/message/all,18587,0.htm jen1204 Mon, 03 Dec 2007 00:00:00 GMT I have been bleeding abnormally for quite some time in between periods and after sex.  I'm 39 with 4 boys.  Went to a new Dr. cuz my 90 yr old one said it was nothing to worry about......upon examination instantly said I may have cancer...I have some polyps and to get an ultrasound.  Did that and got the results.  I have "quite a few" fibroids and my uterine walls are very thick....he wants me to come in for a "talk" then schedule a D&C to have the uterus tested.  Of course he is so busy I can't go until the first of October so now I sit and wait......my thoughts are outrageous.  Do I have cancer?  Could it be just an infection?  Has anyone ever gone through this at my age that did have cancer?  did not, just an infection?  Any stories help anyone could give would be great......thanks!  http://www.cancercompass.com/message-board/message/all,16325,0.htm tarzan68 Thu, 20 Sep 2007 00:00:00 GMT I have never dealt with cancer with anyone. I am a caretaker to my best friend whom was diagnosed 2 months ago with Uterine cancer, she is also a spinal cord injury. Her surgery to remove everything was on June 28th. Her first dose of Chemo was just last Friday, and this Monday, she was fatiqued and didn't want to get out of bed. (very unlike her) Her BP was very low. I called EMT's, she wouldn't go. By the time I finally got her there. She was told she had a UTI. By the time she was transported to the larger hospital the infection had spread to kidneys and the blood stream. Today, she is doing better. But she was giving up the fight. And now she says she has some decisions to make. I am thinking she is thinking that the Chemo isn't for her. She is in stage 3 grade C, of course I don't know what all of this means I have been doing my own research this far. As her caretaker and her best friend. I want to do all the right things to assist her the best I can, and what is in the best interest of her. Please, I really do need some support here.. Andie http://www.cancercompass.com/message-board/message/all,15383,0.htm andieshope Fri, 17 Aug 2007 00:00:00 GMT Has anyone been successful, on initial attempt or appeal, in getting an insurance company to pay for Avastin treatment? If so, what company? http://www.cancercompass.com/message-board/message/all,15369,0.htm BrianW Thu, 16 Aug 2007 00:00:00 GMT my name is ANA,i had a leep surgery on november,now i need to have my uterus removed,cancer is present.i'm scared,i am the care giver for my husband who in april was diagnosed with,lukemia acute.thi alone it's been so hard on us and now this.only the lord knows his plans,if someone outhere has gone thru something similar.please talk to me thank you..god bless everyone http://www.cancercompass.com/message-board/message/all,15007,0.htm anamaria Sun, 05 Aug 2007 00:00:00 GMT  Hi. A friend of mine has Stage 1C Grade 2 uterine cancer. She doesn't have computer access and, now, following her hysterectomy, she has questions about her options which I said I'd post for her to get some info from other survivors with similar cancer/experience. After the hysterectomy the pathology came back saying that the cancer was 'just past halfway into the uterine wall,' and that the cancer cells had penetrated blood vessels. She is trying to decide whether or not to do the surgery to have lymph nodes removed from her abdomen and groin and analyzed. She has concerns about the effects/impact of lymph node removal and is trying to weigh them against the usefulness/importance of the info that they will yield. Here are her questions: For women who've done this procedure--what have been the side effects you've experienced following the lymph node removal? What's known (or has been experienced by survivors out there) about the long-term effects of lymph node removal? What are the odds of re-occurance of the cancer elsewhere when cells have penetrated blood vessels? Any statistics or studies on this would be great to know about. Finally--given what is known, is it better to wait for re-occurance vs. removing 20% of the lymph nodes from her abdomen/groin? Thanks to any and all who can provide info, share experience, or point me to studies, sites or stats. http://www.cancercompass.com/message-board/message/all,14610,0.htm RubeG Sun, 22 Jul 2007 00:00:00 GMT I am 51 years old and just diagnosed with stage 4 clear cell uterine cancer.  They found some cancer cells near my rectum and took it all when they did a radical hysterctomy.  Although they do not see any more cancer, the doctor is concerned cell may have migrated elsewhere.  I am going to Sloan Kettering next week for a 2nd opinion and waiting for a 3rd opinion from MD Anderson in Houston.  They are not too many people who understand or familiar with this disease.  My doctor in VA Beach said most oncologists only see 2-3 cases per year.  I had my surgery about 3 weeks ago and have not yet started treatment.  I actually feel great and look great too.  I am a Christian and am believing for the Lord Jesus Christ to heal me because it is promised in the scriptures.  But that doesn't mean that He may not use medical science to heal me.  So I would appreciate any information that anyone has about this disease and if there are any doctors or institutions that you have had a good experience with...obviously, I am willing to travel.  God bless all the women and their families on this site that are battling this disease.  BY HIS STRIPES, YOU ARE HEALED!  Isaiah 53.5 http://www.cancercompass.com/message-board/message/all,14547,0.htm Mommycopper Fri, 20 Jul 2007 00:00:00 GMT Hi!  I really need some feedback from anyone who has experienced ascites.  I was diagnosed last August with Stage IV, Leiomyosarcoma, and have been determined to beat it despite the "statistics"!  I've done pretty well, and just had a hysterectomy on 6/26 since the original tumor was the only real site left with activity in it.  We'd also hoped that removing that would stop the fluid build-up, ascites, that I've had for months now.  I've been going in to get tapped about every 5 days, for months, with the usualy amount drained being in the 4-5 liter range!  Now I have a temporary drain which I detest!  I'm still producing a lot of the ascites, and my oncologist seems to be baffled at its source, even though I'm being treated at Northwestern Memorial in Chicago, considered to be a top-notch cancer center!  Has anyone had similar experiences with ascites?  If so, PLEASE let me know how you resolved it.  Thank you, Karen http://www.cancercompass.com/message-board/message/all,14326,0.htm Kbookcat8 Fri, 13 Jul 2007 00:00:00 GMT