Latest Vaginal Cancer discussions http://www.cancercompass.com/message-board/cancers/gynecological-cancers/vaginal-cancer/1,0,119,38,32.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Are there cases where Lichen Sclerosis has turned into cancer?ShirleyMc http://www.cancercompass.com/message-board/message/all,25425,0.htm Shirley Mc Thu, 26 Jun 2008 00:00:00 GMT Hi everybody,I'm new to the site and decided to sign on because your stories sound familiar.  I was diagnosed with estrogen receptor positive breast cancer in April 2004.  I decided on a mastectomy and chemotherapy for treatment.  I also take Arimidex which is prescribed for 5 years post treatment to prevent the reoccurrence of breast cancer.   Since my breast cancer was estrogen receptor positive, and my mom's sister died from ovarian cancer, the decision was made to have a complete hysterectomy.  This was done in July 2005.  The pathology from the hysterectomy showed no signs of cancer.  All my pap smears, both pre and post hysterectomy have been normal.  In July 2007, I got my first Low Grade SIL pap smear.  A colposcopy was done, nothing was found, no biopsy performed.  I had my 6 month follow up pap smear on 03/21/2008 and it came back as High Grade SIL and HPV positive.  A colposcopy was done on 04/22/08.  The Dr. found a couple of small lesions which were biopsied.  I am now waiting to hear the results.  I am about to go out of my mind!  I should be celebrating my 4th year cancer free.  But now I'm thinking I have to start all over again with treatment.  How does this happen so suddenly, is there something in the water!  http://www.cancercompass.com/message-board/message/all,23364,0.htm barbp Thu, 24 Apr 2008 00:00:00 GMT I was recently referred to an gyn/onc for dysplasia of the vagina and vulva.  I also have been diagnosed with lichen sclerosis.  The oncologist prescribed Effudex to be used twice a week.  After 3 treatments, the pain was horrible.  The burning everytime I urinated made me shake.  I waited for 10 days until my next appointment before doing another treatment.  I was told I had lots of redness still from the treatments, to wait another 2 weeks before continuing treatments, and prescribed lidocaine to help with the pain and itching.  I would be interested in hearing from anyone else who has undergone this type of treatment.  I just never dreamed it would be so painful. http://www.cancercompass.com/message-board/message/all,22971,0.htm trulyblue Fri, 11 Apr 2008 00:00:00 GMT I was DX'd with CinIII last May, had Hysterectomy in Aug...everything was going fine even had a clear pap 1 month after hyster....but now 7 months in..I have been having pain during "hubby and me" time for the last month. Also I have been having a pinching feeling deep inside...and I remember having this same pinching feeling before hysterectomy. Also my bladder will fill like it is full all of a sudden and then stop and go back to normal...not sure if this has anything to do with anything...but I know your body does things to tell you something is wrong. I am HPV positive with the cancer causing strain 16, 18, .I had everything removed except ovaries....so it was a complete Hyterectomy. But because of the pain during my intimate moments..I am concerned. I had the same pain before the hysterectomy and I also have a very tender spot on my muscle the is connected to my left hip. I have made an appointment with my GYNO but it isn't for a month (April..when he told me to come in for my follow up) He told me that they found CINIII high up in the cervical canal after the cervix was biopsied after hysterectomy..but said all was fine. But then again..he also couldn't remember who I was the meeting before the hysterectomy and had to look up my chart infront of me. Kind of thought he should of been on the ball about my issues before he walked into the room..LOL! He even saw a cyst on my ovaries from the MRI and didn't tell me about it. Kept asking if we where going to keep the left ovary...I couldn't figure out why until I saw my pics from the surgery. I asked for pics because I wanted to see my insides for myself.  Also he found a SPOT just by my bladder that he lazered off..about the size of an eraser top for a pencil...I asked him what the spot was and he said he didn't know...weird...and yes I am babbleing on..but I just don't talk to my family about this stuff..my Mom has a hard time with anything that involves me..and my hubby is not always listening...he has vidoe game deafness..can't hear a word I say when he is playing..LOLAnyone out there with Vaginal Cancer who can really think about your symptoms if any..please let me know. I know I have a great chance of having CINI, II, III again...but is seems like it is a never ending process. http://www.cancercompass.com/message-board/message/all,21892,0.htm Dragonfly2112 Tue, 11 Mar 2008 00:00:00 GMT i am 23 years old and i have a problem about my vagina i feel itching and there is yellow come out from my vagina almost 1 year i feel this kind of infection i am using BETADINE WASH i buy from medical store and almost 1 year i am using but only 2 or 3 days desapear then it will come again so please i want to know what kind of infection it is. and please give me advice what i have to do to desapear it is? http://www.cancercompass.com/message-board/message/all,21769,0.htm sweety Fri, 07 Mar 2008 00:00:00 GMT Hello all, My name is Debra. I'm new to this site.On the loss of femininity, I guess I should start with losing my only child in '86. She only lived 7 wks. I never tried again, feeling I could not handle that kind of loss again.I had a successful career in medicene, I poured myself into my work after losing my mom, dad, and sister.  I started having chronic fatigue and pain. I was diagnosed with fibromyalgia.Then I started having facial tics and tremors on the left side of my body. That was diagnosed as 2 meningiomas on my spine at the base of my brain. They shaved my long hair and removed the tumors.Next I started having to have my breast cysts, and having them drained at least once a month. Docs told me they could no longer read my mammograms due to density of my breasts. Two surgeons suggested bilateral mastectomy with reconstuction. I did it....Backing up a bit, I became disabled after meningioma surgery, so much for pouring myself back into my work.The heavy duty pain meds I was on caused "dry mouth", then I had to have my top teeth pulled...ugh, now I have dentures on top.I met a wonderful man that said,"Don't worry about your scars, they are only roadmaps of you life. They tell where you've been, not where you are going." WOW!So off to the gynocologist for birth control. Then I learned I need 2 biopsies, did that. HPV positive and it required a wide excision of my vulva.That was Jan. '07. My gyno told me this has to be checked every 6 mos. for the rest of my life.I went for my follow up visit and I was sent to a gyno oncologist. VIN2 can be multi focal. Now it's in my vagina and my cervix is enlarged. My rectum and lower back has been causing me pain. My new gyno oncologist said this can all be related.Now I will have a colonoscopy in 2 days, one week after that, a wide excision of my vaginal wall with a possible hysterectomy one week from then.My fiance still wants to marry me, but how can I put him through all this? I think he might be a saint....It may not read this way, but "carpe diem" is my new mantra. I do want to live till i die.I really feel positive about the results of all of this, it's just that I am so tired of being cut on. So when does a person cry "uncle" and say "enough is enough?"I'm not giving up yet!Thank you for reading this lengthy post.I'm just a bit weary and a bit scared,Debra http://www.cancercompass.com/message-board/message/all,21637,0.htm debra2 Tue, 04 Mar 2008 00:00:00 GMT I think if we pray and use this site we can make it through anything.I had 25 radiation treatments and four internal. It was no walk in the park. I was not alone.I had the best staff anyone could have. They walked me through it.Now in a Month I will know how we did. I pray for each one of you.  http://www.cancercompass.com/message-board/message/all,18872,0.htm MazeMazie Sat, 15 Dec 2007 00:00:00 GMT It seems like I might finally have an answer to the problems  I have been experiencing since my radiation therapy.  I went to my family doctor yesterday and she has referred me to a gastroenterologist for possible radiation proctitis.  Has anyone had this?  Do you know what the testing and treaments are like?  Are they usually successful in curing the problem?   I feel so frustrated b/c it just seems like one thing after another and I can't just get better.  My cancer is in remission though, so that is great news.  I worry that this rectal bleeding is colon cancer (metastatic) rather than proctitis...HELP! http://www.cancercompass.com/message-board/message/all,18559,0.htm Adoyle Sun, 02 Dec 2007 00:00:00 GMT  was treated with chemotherapy (taxol and carboplatin 1 infusion per week x 4 mos) and radiation & chemotherapy (cisplatin + 35 external and 5 internal) for vaginal cancer that was originally thought to be unknown primary.  Dx. was September of 2006 and after many, many checks, no cancer has ever been found elsewhere.  I had a 4cm tumor in my middle right vaginal wall - it also looked like one lymph node in the inguinal chain was involved.  No one would stage the cancer, however, when I pushed my oncologist, she said "well, I suppose we would have to call it stage III b/c of the lymph node involvement". My last treatment was radiation in April. At the end of the treatment plan I was declared cancer-free.  The tumor has completely resolved.  I am in active remission.  I have had checkups every three months (so far a total of 2, one in June and one in September).  The pap smears and biopsies obtained from the tumor site are clear.  I am scheduled for my next follow up in January.  So far, only one CAT scan has been performed, about three weeks after treatment stopped in April although there were many imaging studies taken before treatment began as well as other diagnostic tests, colonoscopy, GI studies, LEEP, etc.BUT, here's the problem.  I have fairly constant pain in my thighs, buttocks, and abdomen (this is the area that was treated with radiation).  This pain is often around a level 5 of 10. It is pain that seems to be muscular or pain in tissue.  I also have fibromyalgia and it is like that type of pain.  Sometimes, for a day or two, it improves but generally it is bothering me most of the time.  I asked the radiation oncologist and he says that "it wasn't him".  I talked with the gyn oncologist and she says that "it wasn't her".  Which I guess rules out the chemo and radiation although I think that is what is causing it - one or the other.  Or perhaps these treatments simply have aggravated and worsened the fibro.   The other problem I am experiencing is hemorroids.  They have been bleeding for over a month now.  Is this normal? Does anyone have any similar experience or is there a doctor or nurse out there who can recommend what to do? Thanks...hoping to hear from someone! http://www.cancercompass.com/message-board/message/all,18276,0.htm Adoyle Fri, 23 Nov 2007 00:00:00 GMT I constantly itch down below. I use the kgel and replens but it still itches how do you relieve that.First I thought it was yeast. The Dr said no that is dryness from the radiation...how bad is the internal radiation http://www.cancercompass.com/message-board/message/all,17998,0.htm MazieKarnes Thu, 15 Nov 2007 00:00:00 GMT I was treated with chemotherapy (taxol and carboplatin 1 infusion per week x 4 mos) and radiation & chemotherapy (cisplatin + 35 external and 5 internal) for vaginal cancer that was originally thought to be unknown primary.  Dx. was September of 2006 and after many, many checks, no cancer has ever been found elsewhere.  I had a 4cm tumor in my middle right vaginal wall - it also looked like one lymph node in the inguinal chain was involved.  No one would stage the cancer, however, when I pushed my oncologist, she said "well, I suppose we would have to call it stage III b/c of the lymph node involvement".My last treatment was radiation in April. At the end of the treatment plan I was declared cancer-free.  The tumor has completely resolved.  I am in active remission.  I have had checkups every three months (so far a total of 2, one in June and one in September).  The pap smears and biopsies obtained from the tumor site are clear.  I am scheduled for my next follow up in January.  So far, only one CAT scan has been performed, about three weeks after treatment stopped in April although there were many imaging studies taken before treatment began as well as other diagnostic tests, colonoscopy, GI studies, LEEP, etc.BUT, here's the problem.  I have fairly constant pain in my thighs, buttocks, and abdomen (this is the area that was treated with radiation).  This pain is often around a level 5 of 10. It is pain that seems to be muscular or pain in tissue.  I also have fibromyalgia and it is like that type of pain.  Sometimes, for a day or two, it improves but generally it is bothering me most of the time.  I asked the radiation oncologist and he says that "it wasn't him".  I talked with the gyn oncologist and she says that "it wasn't her".  Which I guess rules out the chemo and radiation although I think that is what is causing it - one or the other.  Or perhaps these treatments simply have aggravated and worsened the fibro.   Does anyone have any similar experience or is there a doctor or nurse out there who can recommend what to do? Thanks...hoping to hear from someone!  http://www.cancercompass.com/message-board/message/all,17566,0.htm Adoyle Wed, 31 Oct 2007 00:00:00 GMT HI... I am a 38 yr old female who had a hysterectomy 7 yrs ago. I had my uterus removed and  my cervix at that time due to a benign rare "stromal" nodule in the uterine wall...anyway all along I go to the Dr and always have had a  normal pap...Well this Feb I got my 1st abnormal one which lead my 40 yr old Dr who thence retired  ( this is Dr number 2 who retired)  to do a colposcopy and she only saw one lesion and then she  of course biopsy;d and  that came back negative for HPV but had squamous changes.... she did not mention pre cencerous..So I go to a new gyno well recommened  who just did the 2 nd   pap..that came back abnormal and today I had a  colp again...and that one she took 3 biospy's from..she told me that it indeed was pre cacnerous cells...what the heck is the difference between precancerous and cancerous other than it can and could become cancerous... I have no cervix... I am very nervous... I think my spouse had a infidelity back about 10 yrs ago..I have not been with anyone in  like 18  yrs....  I am angry nervosu and scared. I have been sobbing half the night..I don't understand how a neg HPV can come back as positive??? I thought if it was neg it was neg? But she  told me I would have results in 7 to 10 days... I am very nervous and have a thousand  questions..if she finds  I guess the HPV and cancer than  she would refer me to a specialist..I thought it was a good thing that I don't have my cervix...but ervythign I read tongiht made me even more nervous..anyone ever been in this boat! If so email me at omystarieid@yahoo.com http://www.cancercompass.com/message-board/message/all,13623,0.htm Sundown Tue, 19 Jun 2007 00:00:00 GMT Hello, I am 29 years old. I have had abnormal pap smears in 1996 and 1997. My doctor did the crosurgery. I have been having normal pap smears until April. My pap smear came back as LSIL with mild HPV deplasia.  I just had the colposcopy done thursday, May 24th.I was so nervous about it. I did hurt alot. My doctor took a really big piece of tissue out because I could feel everything she was doing. Now that part that is wooring me so much is not knowing what the biopsy will show.  My doctor said if it came bak with a CIN 2 or CIN 3 we would do the LEEP procedure. I do feel bad now knowing I do have an STD. I feel bad for my husband. I have three kids and now I am just worring about them too. Has anyone been through the same steps? Does the Leep hurt as bad as the colpscopy did? Has anyone had LSIL then it turned into cervical cancer ???  http://www.cancercompass.com/message-board/message/all,12423,0.htm Rebecca03 Sat, 26 May 2007 00:00:00 GMT  I recently went for my annual exam where i brought up what i noticed for the past 4 years on my labia minora. I had seen 4 different docs in that time that all muttered the same thing , "it was aging and normal" ...I am 27 now.. so I asked again, this time he didn't notice til I pointed it out, because he was too fast with the exam to begin with..then he came back worried and said that needs to be biopsied asap for a melanoma.  since I didn't trust him anymore i went for a second opinion, which told me the same but was more relaxed about it and said i could make sure it didn't get worse and maybe wait til fall to have it done. since the biopsy she warned would make things sore and irriated for months.. (im questioning if this caues permanent pain since its below the clitoris on the lip about a 1 cm in length. she made it sound simple- i thought for a vaginal biopsy maybe but labia minora seems rather small to go around cutting things up.  I dont know whether I should wait, justbecause like she said my health isn't well from nutritional defiinces from a stomach ulcer at present. Moreso I dont know should i contact sloan kettering cancer place to have this done at. Considering the area is so vulnerable being clitoral section shouldn't i have someone who has seen this before do this, rather then someone who just has done biopsies in general of other areas???  I trust this doc opinion however her calmness i feel was reassuring me to think okay about it. She just said it was under my decision to wait now or later.  I feel both people who saw this already just aren't experieanced in seeing this cancer if so to know what to do or tell stages really unless late stage in obvious nature.  Has anyone had this out there on the labia minora or had a biopsy of that area?? any opions on who i should see to have this done i apprecciate. I feel very comfy with this old dr I saw,I just question their expertise. I dont want permanent pain because it was done wrong or not often. then afterwards told it could have been done another way. my email is --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----  if you wish to reply. Thank you for reading. Good bless you all, good health. http://www.cancercompass.com/message-board/message/all,12237,0.htm Justpeachy Mon, 21 May 2007 00:00:00 GMT Have any of you had problems with lymphedema of your lower extremities after radiation to your tumor? I had radiation to my lymph nodes in my inguinal area bilaterally as well as the tumor in the lower portion of my vagina and now 2 months after tx my legs are swelling from the hip down.Also, do you find it uncomfortable to sit at times? and have intense itching occasionally? Sorry if these sound crazy but my doctors told me what to expect during tx but little of what to expect afterwards.Thank you for your help.  http://www.cancercompass.com/message-board/message/all,11517,0.htm Primchic Sun, 22 Apr 2007 00:00:00 GMT Hi Everyone,Some history on me.1972  cancer of cervix (hyst), 1990 ovaries out....no cancer,2002 breast cancer.....now doctor has found a 3cm mass at vaginal vault. Said it may be scar tissue but i am scared it is cancer. This was discovered when he did pap test exam.  Anyone here with this kind of cancer. thanks jinky   http://www.cancercompass.com/message-board/message/all,11464,0.htm Jinky Fri, 20 Apr 2007 00:00:00 GMT Hi,  I'm new to this, but I feel I need help.  For two years now I have been being treated for Vaginal Dysplasia possibly caused by HPV.  I have had 5-FU treatment with no positive results and subsequently two laser surgeries.  I stll have grade 2 VAIN.  Previously (12 years ago) I had a hysterectomy and radiation (external) and vaginal implant for endometrial cancer.   My last visit to the doctor yesterday left me very confused.  He proposes either doing more laser surgery or excising the area.  But, he won't commit to either and says it has to be my choice.   He feels that excision is the best course of treatment but he is concerned that healing won't occur due to my history with radiation.   He also said that the dysplasia might re-occur with either procedure.  I am lost.  I think I need a second opinion but have no idea how to go about finding someone who is an expert in this field.  From what I have read it is not common and therefore new treatments don't seem to be forthcoming.  I also asked what if I did nothing..no treatment and my doctor said that I probably would develop vaginal cancer at some point..maybe 5 to 10 years.Any help or suggestions would be so very much appreciated.  Thanks.Anne http://www.cancercompass.com/message-board/message/all,11068,0.htm Annedave Fri, 06 Apr 2007 00:00:00 GMT Just diagnosed with Small Cell Vaginal cancer... Can anyone tell me anything about this? Anyone had it? Something like it? What is the treatment? How about the survival rate? HELP! Any responses appreciated. I am very scared. http://www.cancercompass.com/message-board/message/all,10664,0.htm Spiderhead Sat, 24 Mar 2007 00:00:00 GMT I have been diagnosed with vaginal cancer.  Well, I guess that's the final dx, although intially it was cancer of unknown primary.  It was felt that the vaginal lesion had metasticized from another area.  In spite of continued testing and searching, no primary site has been found.  I have only the vaginal lesion and possibly one lymph node in the iliac chain involved. I was first diagnosed last September.  I have had 6 months of chemo (taxol and carboplatin) and am now having 35 external and five internal radiation treatments with chemo (cisplatin).  I have had a really hard tmie getting any info b/c everyone seems to think that this type of cancer is rare.  I have adenocarcinoma but it is not related to DES exposure.  I am writing to see if there is anyone else out there who may have had a similar experience.  I also am not able to get a stage or prognosis.  The doctors just keep telling me it is unusual and they don't know what to expect,,,during chemo my tumor (initally 4cm) completely resolved.  I am in the middle of the radiatin cycle and finding it hard to stay positive about the outcome.  Does anyone have any info they can share regarding their experience with vaginal cancer? http://www.cancercompass.com/message-board/message/all,10354,0.htm Adoyle Wed, 14 Mar 2007 00:00:00 GMT I am 15 years ols and i think i have had vaginal cancer for 2 years. My mom does not seem to take me seriosly when i say i need to be checked out. how can i ask her to take me to the doctor without her laughing it off? How can I tell my mom without feeling imbarised? How can i make the doctor take me seriosly? http://www.cancercompass.com/message-board/message/all,9079,0.htm K9cat13 Wed, 24 Jan 2007 00:00:00 GMT  I am 32-years old and live in Las Vegas, Nevada, USA. I don't smoke and I excercise. I did my first sprint-distance triathlon at age 30 and love to train for the sport. One year ago (Nov. 2005) I had my first abnormal pap. The indications were moderate to severe dysplasia. My Doctor immediately brought me in for a culposcopy and the results were that it was a "false positive." I'm sure you know this is very odd for a pap to find abnormal cells and for the follow-up culposcopy to find nothing. I wasn't even positive for HPV.I went in for my follow-up pap in April 2006, thinking very much that I was just going through a routine - this time the pap was LSIL with some severe dysplasia. My doctor performed another culposcopy that confirmed the pap and that I was positive for HPV. I had a LEEP procedure within 2 weeks that found CIS - but the margins were "clean." My doctor was confident the situation was handled - after all 90% of patients are treated with this procedure.I went in for my first post-LEEP pap in August 2006. Results came back LSIL with mild dysplasia. My doctor was extremely alarmed that I had an abnormal pap so soon after my May LEEP. I was very disappointed and alarmed as well. My trust in the "normal" procedures was lacking. The normal protocol would be to perform a culposcopy and if it was just LSIL with mild dysplasia, then they would wait 3 months and test me again. Since the culposcopy I had in Dec 2005 had given me a false negative, I was not willing to take that chance again. My anxiety had reached a whole new level even though I was going to counseling. I requested and my doctor agreed to perform a total hysterectomy (complete removal of uterus and cervix) in October 2006. My hospital stay was only 36 hrs and since it was performed vaginally, my recovery was very smooth. I kept my ovaries, so there was no hormone adjustments.  I did not have any infections and no post-surgery complications. The results of my pathology confirmed the pap: LSIL with mild dysplasia - clean margins. I had a surgery that is usually reserved for stage 1 cancer when I only had mild dysplasia. I felt confident that this was behind me.My extremely cautious doctor requested I have one more pap in Jan 2007 before returning me to yearly exams. I was pretty upset with her - the waiting 2 weeks for another pap test so soon was very difficult for me - my anxiety about my health really takes over my ability to enjoy life while waiting for the test results. However, it's a good thing it was up to my doctor to have another test ... I may have blown it off just to avoid the anxiety alone.I found out last week (Jan 18th, 2007) that the pap on the vaginal vault was LSIL-H (low grade squameous intraepithelial lesions - can not rule out high grade) - same as the result on my cervix last May. My doctor (gynecologist) has now referred me to a gynealogical oncologist. Not because I have cancer, but because she feels the oncologist might be able to do more for me so I don't develop cancer.I am extremely frustrated because it seems that I'm way outside the statistics. It is very difficult to feel confident when you can't really believe the test results all the time. I'm scared and don't know how to let my new doctor do his job and feel confident about my future.I feel very lucky to have had this pap test so soon after my hysterectomy and that I have several options for treatment of my vaginal dysplasia - but realizing that cancer could be in my future is frightening and I'm terrified. I have a great group of friends and family, but no one really knows how to relate to this sort of thing if they haven't gone through it.I would appreciate any support or information any of you have that might help.-Stacey http://www.cancercompass.com/message-board/message/all,9001,0.htm Stacey32 Mon, 22 Jan 2007 00:00:00 GMT what kind of anesthesia do they give u for vaginal  cancer http://www.cancercompass.com/message-board/message/all,8496,0.htm Mazie Fri, 29 Dec 2006 00:00:00 GMT You all do not know how good it is to be here. I am losing a friend this week in Hospice. She is dying. We were friends for 25 years. Hospice has been so good to her.I really do not think she would have made it this far without them If anyone walks to send me a message please do. I am taking one day aat a time. Has anyone been thru a  PET Scanner???  http://www.cancercompass.com/message-board/message/all,8492,0.htm Mazie Thu, 28 Dec 2006 00:00:00 GMT I had a pap done and it came back mild dysplasia so dr did a scope and another biosp.  and it came back moderate dysplasia on the inside of my cervix, so now he wont's to do a leep,  I'm scared  can anyone let me know what is going to happen http://www.cancercompass.com/message-board/message/all,8466,0.htm Moses1 Wed, 27 Dec 2006 00:00:00 GMT I was wondering if anyone could tell me the types of side effects that they have experienced post radiation therapy for vaginal cancer. http://www.cancercompass.com/message-board/message/all,8006,0.htm Maggy Sun, 26 Nov 2006 00:00:00 GMT