CancerCompass message board discussion started by lisa r. on 4/13/2004 http://www.cancercompass.com/message-board/message/all,1090,0.htm Thu, 04 Dec 2008 00:00:00 GMT Thu, 04 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My sister was diagnosed with renal clear cell carcinoma in June 2003. Her left kidney was removed, however, the cancer had spread to the lungs and nodes. She unerwent a trial med in Seattle earlier this fall. The treatment did show progress but her body could not tolerate the doses. Along with other factors she has returned to North Dakota and her lungs are now in pretty bad shape. She just started on oxygen yesterday and will be undergoing therapy with interferon and interluekin bio meds soon. She is a medical professional and is finding all of this hard to take. She has two teenage children and is 48 years old. I am looking for anyone who themselves or a family member in a similar situation. Thanks. lisa r. Tue, 13 Apr 2004 00:00:00 GMT Lisa, my husband has renal cell carcinoma with mets to the lungs and brain. Please go to Steve's website and scroll down to where it says kidney onc list...you will find a wealth of info and support by joining this wonderful mailing list. Tell your sister not to give up...my husband had surgery in March of 2002 and despite now being diabetic and on oxygen we are not giving up the fight. He did treatments of low dose IL-2 as well as radiation and we are still hoping for a surgical option with cyberknife for his brain mets. http://cancerguide.org/kidney.html Best Wishes, Val La Rue Valerie L. Tue, 20 Apr 2004 00:00:00 GMT I have been battling cancer since 1988. Been operated on 4 times. In 1997 it came back in left kidney, had kidney,adrenal gland and 2 ribs removed. Made it til 2001 it came back in lungs and lymph nodes in chest. I was told my situation was bad. I refused more surgery. I am now free of cancer. After 16 years of research and a lot of sleepless nights CTCA put me on the right track. Contact me at any time. I'll reply as soon as I get your message. Chase in Va. Chase L. Tue, 20 Apr 2004 00:00:00 GMT Hi Lisa R, My name is Jeff and I have adenocarcinoma. It was discovered in March 1999 while living in Minot, ND. It was thought to be primary liver and they removed my left lobe and while having surgery found out my gallbladder needed to be removed as well. This all happened at a hospital in MN. My wife and I and Son moved to Maine where I kept getting check ups and in January,2003 It was found that my cancer had gone to my lungs. I have been having 4 month check ups since then with my cancer showing spots on both lungs and slowly increasing in size, but very very slow progression. I have not had any treatments like chemo or radiation. I have been drinking Indian tea for the last 3 years and taking a mild 1Mg sedative daily increased all vitimins and minerals times three, with cod liver pills and 2 months ago started IP-6 with Inistol 4200mgs twice a day. I will be going for a check up the first week of June to see if this new added therapy has reduced or as least slowed down the tumors from growing. My Oncologist simply recommeded I keep doing whatever I'm doing as trying any chemo at this time could open a bag of worms. By the way We know live in Wichita KS. My daughter had our first Grandson just over 2 years ago and will be having a granddaughter in July I,m hoping and praying for a couple of miracles a healthy granddaughter and a grandfather who will be around to watch her grow up, even if it is only for a couple years would be great. My prayers and thoughts come with this message. Hope, Prayer, owning the cancer then take enough herbal, relaxtion, and vitimins and minerals to alter cells and genes a little is my approach I guess, and to stay positive and active and even close ones don't really know the internal rollercoaster it is to have a dreaded illness a this. Hope to talk with you soon or at least acknowledge my Email, I will understand. Keep your Chin up! Jeff Jeff G. Tue, 20 Apr 2004 00:00:00 GMT Hi My name is Janet. I'm 62 years old & was diagnosed with Renal Cell in June 2000. My right kidney was removed. Two years later in July 2002, my tests showed that the cancer was now in the remaining kidney & in the pancreas. It has since also gone to the adrenal gland. I did the Interluekin trial but could not tolerate it. I'm now on Interferon but at half dosage as full dosage caused an increase in enzymes in the liver. The Interferon I'm on is from China & is called Rinferon. There are absolutely no side effects after the first day. The leasion in my kidney has grown quite fast since my last test & so I'm am seeing a surgeon who will possibly perform radio frequency surgery on it. This should burn out the leasion without harming anything else around it. Don't know how the pancreas is doing as I cannot do a cat scan using the dye. After 4 years, I've suddenly become allergic to it! It makes it difficult to see the pancreas clearly. They may do a pet scan. I'm very active in my church, especially in our Evangelization ministry. My faith (I'm Catholic) has helped me tremendously through all of this. The only thing missing has been someone to share it all with that is going through the same thing. Please stay in contact & let me know how your sister is doing. I'll be praying for her. Janet Janet F. Wed, 21 Apr 2004 00:00:00 GMT To all Kidney Cancer Friends, My husband has metastatic renal cell CA in the lungs after having his right kidney removed in 2002. He has had immunotherapy which includes interferon and interleukin plus Lukine (to increase white blood cells). He currently in on the newest drug, Avastin, which is not approved for kidney CA, but showed good results during trials. Other than new onset high blood pressure, he feels very well and at times it is difficult to remember he has CA. His attitude it great and we have lots of friends all over the world praying for him. He has had three CT scans which show that there is stabilization...from the drugs or the prayers or just his body taking care of business??? We are contemplating stopping all treatments and just have periodic exams and scans to monitor the progression. I am looking forward to hearing from all of you, about your tretments and progress. It sounds as though everyone has a little bit different treatment regimen...don't we all wish that the medical community would find the magic bullet to cure everyone!!! Daniel T. Thu, 22 Apr 2004 00:00:00 GMT Please keep us posted on the results from Avastin. I think that was one of the drugs our onc mentioned and something else that starts with a T. The good news is my husband's MRI showed no new brain tumors and the existing tumors have not changed since January....this is wonderful news for us and he seems to have perked up just hearing that! I have him on vitamins and of course his diabetic diet and since he gained 10 pounds I am very happy about that. Never give up! Valerie L. Thu, 22 Apr 2004 00:00:00 GMT Chase L. I would appreciate any information you may have regarding your fight with cancer. Carolyn Carolyn D. Fri, 30 Apr 2004 00:00:00 GMT Hello Chase, I tried to get in touch with you before but it did not work. Have had a number of things happening since more original message. My sister has underwent low dose interferon and IL 2 for RCC. Has had a hard time with side affects. Just came from the hospital. The Dr. was not very encouraging and recommended low dose interferon 3 x week. Looking for other options? Thanks, lisa lisa r. Mon, 31 May 2004 00:00:00 GMT I have breast cancer, and recently saw a doctor on TV. She also had breast cancer in the advanced stages with mets to lymph nodes in the arm pits and neck and didn't want to undergo chemo or radiation. She didn't want to have surgery to remove the tumor either, but finally had part of it removed. This doctor cured herself through nutrition, diet, and herbal remedies. She said people with kidney, liver and pancreatic cancer were also cured through this method. I know she has a website where you can get more information, just do a search. Good luck! Lauren P. Tue, 01 Jun 2004 00:00:00 GMT My wife is being treated at Cancer Treatment Centers of America in Tulsa for Stage IV Lung cancer, w/ metastasis into her liver. We have been integrating Chemo with nutritional supplements from a company in Texas, as well as working on nutrition as recommended by Doctors and she is doing well, although she does get tired easily. I have a preliminary diagnosis of a cystic renal cell carcinoma on my right kidney, and have been consulting with the Doctors in Tulsa, as the local docs here in Oregon only seem to know one way to go, which is immediate removal of the kidney. At this point, since I have no symptoms, and the tumor growth seems to be stopped, I am choosing to attack it with nutrition, prayer and the aforementioned glyconutritionals. I will continue to monitor it very closely, and save the surgery for later, if it should be needed. I hope this helps, I will pray for you. Ed C. Mountainmanna Sat, 19 Jun 2004 00:00:00 GMT My wife Karen 46 yrs old was diagnosed with stage 4 metastatic renal cell carcinoma in march of 2003. She just passed away after a 16 month battle. Nothing that was available worked, we tried many. If it is possible look into this new combo treatment in clinical trial of Avastin with Tarceva they have had excellant results with renal cell. Both drugs are made by Genetech. their last study there was approx. 21% had 50% reduction in tumors, another 21% had reduction of less than 50% and 20 something % were stable. Unfortunately for us they would not let us participate because of the mets to the brain. These are very significant results close to being approved by FDA. Avastin is approved, Tarceva is not. There are many new drugs now in trials that have significantly better results than what is available now. Onyx and Bayer have a drug called bay43 also very promising. God Bless. Joe L. Thu, 12 Aug 2004 00:00:00 GMT My husband had malignant melanoma in aug of 2002 and after having a cat scan they found he also had renal cell carcinoma. He had part of one kidney removed. He had no treatment and had check ups every six months since 2002. In April of 2004 he went for his regular checkup and his liver enzymes were elevated. A cat scan showed a spot on his bile duct. After trying twice to get biopies and could not they did a pet scan and it showed nothing. He was advised by the liver transplant surgeon that he need to have the bile duct removed along with half of his liver. this was done in May. The surgeon wanted him to go to M. D. Anderson cancer center and let them suggest a treatment since he had not spread. They did all of the scans again and found a tumor in his head and two in his pancreas. They could get one biopsy of the one in the tail of the pancreas. All three of these tumors had the signs of renal cell. the doctors at M. D. Anderson decided to put him on Chemo once every two weeks for three months for the cholangecarsconma. After three month of Chemo we opted for the Stero tactic rariosurgery on the tumor in his head. one month after the surgery he was put on Interfuron 2 x per day for six weeks. We went back to M. D. Anderson on Nov 1 and the tumor in his head had shrank 25% but the ones in his pancreas are the same and doctors decided to keep him on the interufron until Jan 1. My husband thru all of these cancers has never had any symtoms and has never been sick and the chemo never made him sick nor did he lose his hair. The doctors at M. D. Anderson says he is a very complex case as they have never seen one person with three types of cancers and one has metastasized in his head and pancreas. My husband is 64 years old and has never smoked or drank and always took care of himself. We are hoping that the Interfuron works but if not the next step would be the Avastin If anyone out there has ever had anything similiar I would like to hear from you. I have looked at ever site and have yet to find anyone with mastisized renal cell in the pancreas. Would like to hear from you. Betty W. Horse Mon, 08 Nov 2004 00:00:00 GMT My husband has been diagnosed with renal cell cancer. He had his kidney removed this month and just started treatment with Interferon. It has spread to his lungs and upper right chest. The oncologist tells us this is an incurable cancer, but can possibly be controlled with Interferon and possibly Thalidomyde (not sure is spelled correctly--but it is the drug used in the 1950's for pregnant women which caused many birth defects in their children. He tells us there has been some good results with this treatment. Can anyone advise if they ever used this treatment and what the results were. Any advice on other treatment options for this cancer would be appreciated. thank you Marlee Sun, 27 Feb 2005 00:00:00 GMT Dear Chase, My mother-in-law was diagnosed with kidney cancer 5 years ago. They removed her left kidney. She had been doing fine until last week when a routine X-ray showd a mass between her lungs. Futher testing resulted in more bad news. She is in stage 4 and the doctors are saying that there is nothing they can do. Can you help me? How did you beat "it"? What do we need to do? Holding my breath...Please respond soon. Thanks, Susana Susana Wed, 02 Mar 2005 00:00:00 GMT If you know the web site of the Dr. you saw on t.v. who who used nutrition, diet and herbal remedies for her cancer....Thank you Helen W. Mary W. Fri, 11 Mar 2005 00:00:00 GMT A friend emailed this website a few months ago on this doctor plus I have seen her on TV. The website is www.drday.com. It is quite interesting. I have stage IV RCC (clear cell). Lost R kidney and four months later the upper left lobe of my lung. I have tumors in the lower lobes of both lungs. I started on a product called Immunocal which has helped tremendously. Jan 2005 I went through a process called stereo tactic body radiation therapy that is not invasive. It was done at CTRC in San Antonio Texas. I am hopeful that it will slow things until a miracle comes. I am very thankful for the great quality of life I have been able to sustain. I will use interferon and IL only as a last resort. I hope this will help someone. Carol Alaskancaol Thu, 17 Mar 2005 00:00:00 GMT Susana, Do you have a support group in your area? They can help in many ways. Sometimes there is so much information to sort through it is overwhelming. The best thing you can do is keep researching. Never give up. Keep asking questions and demand answers. Get a second opinion. Look at other facilities or doctors for help. Since you have access to a computer I included a few websites that might help. My prayers for you to find the answers you need. Judi http://cancer.gov/cancertopics/types/kidney http://www.cancerconsultants.com http://www.cancer.org/ http://www.mdanderson.org/ http://www.nci.nih.gov/clinical_trials/ Never_give_up Fri, 01 Apr 2005 00:00:00 GMT My husband had his right kidney removed 7 years ago. He has renal cell carcinoma. Two years ago it came back in his liver, pancreas, lungs, and one place on his brain. We went to M.D. Anderson. Should have gone there 7 years ago. They did stero tatic radiation and the one in his head,which is now gone. For the others they put him on Interferon Alfa, which he has been on for 19 months. We just got back from a check up and they said the cancer might hae grown some and want to put him on Avastin. If anyone has been put on this drug we would like to hear from you. Gin Mac Sat, 02 Apr 2005 00:00:00 GMT Hi Janet F. My mother is 63 Yrs. old. She was diagnosed with renal cell carcinoma in September 2003. She had her right kidney removed along with the football sized tumor on it. In January 2005 the cancer came back to her remaining kidney. She had the tumor removed and partial of her kidney removed. Now we are told she has metastatic renal cancer and perhaps signs of it spreading. I'm worried and read your message. How are you now????? Sigisite Tue, 05 Apr 2005 00:00:00 GMT Hi, You have finally found someone else with caner in his pancreas. My husband had his kidney removed 7 years ago. Two years ago we found out it had come back. This time in his liver, pancreas, lungs, and brain. We went to M.D, Anderson.There they radiated the one in his brian. Then they started him on Interferon. It has worked for 19 months with no growth . Last week we went for another check up. The doctor told us it looked as if it might have grown some and wants to start him on Avastin. Everything I have read on this seems positive,even some shrinkage from this drug. Like your husband, mine has never been sick. Just to look at him you would never know he has it.He has lost some weight due to the medicine but that is all. Have they ever given you a time spand for this type of cancer.I would like to hear from you. Good luck to your husband and may God bless him like he is doing for mine. Bless him like he is doing my husband. Gin Mac Tue, 05 Apr 2005 00:00:00 GMT Chase, My name is Diane, My bestfriend has been diagonesed with Renal Cell Carcinoma. The Doctors have told him to go home there is nothing they can do. Chase, he is a 57 year old healthy man. Who can I contact. Your message back to me would be greatly appreciated. Retired Thu, 21 Apr 2005 00:00:00 GMT I have been diagnosed with Renal Cell Carcinoma. I am to have the massive tumor that was my kidney removed. They have done bone and organ scans have have not seen evidence that it has mat (spread). What is the best route to take. What is CTCA? Sometimes I wonder if I would have just as long to live if I don't do anything at all. Does anyone know which is worse, medications, surgeries etc. or Just do nothing? Does all the meds etc extend life and is it worth it? Thank You, Rose Ladyrose Tue, 26 Apr 2005 00:00:00 GMT My 58 year old husband of 39 years passed away 3 weeks ago from renal cell carcinoma. He was a very healthy man prior to his cancer. He put up an amazing 18 month fight with this horrible, voracious disease. He was willing to do anything he could to survive this cancer. He had his right kidney removed and the lower lobe of his right lung which it had spread to. They thought he was cancer free, but within 2 months the cancer had returned to his right lung. He then started doing biotherapy, Interleukin 2. He did 2, six day, hospital stays in which he received 17 high doses. It was said to be stablized after the first 6 day stay, but then after the second 6 day stay the cancer had spread. The treatment was discontinued by his doctors. He then did several doses of Avastin. While on Avastin his cancer "more than tripled". He lost so much ground on that therapy. He then went on combination chemotherapy using Gemcitabine and oral chemo called Xeloda. It stablized it for a couple of months. They had also added in a drug called Thalidomide. But, then without warning his blood pressure seriously dropped. When I took him into the hospital his blood pressure was 61/34. He had blood clots in his left lung. He lived for only 1 more week. In retrospect I don't know if I would suggest anyone do the Interleukin 2. It only works 20% of the time and the damage it does to your body just isn't worth it. My husband was an extremely strong man and after Interleukin 2 his muscle mass was completely destroyed. I think if he had not tried anything he would not have made it 18 months. Tell your friend to try the combination therapy of Gemcitabine and Xeloda. We truly believe if my husband had started on that in the beginning he would have remained very much stronger to be able to continue his fight at least a little longer. Ladydee Sun, 01 May 2005 00:00:00 GMT Rose, I was diagnosed with Sacarnatoid Renal Cell Cancer and had a kidney removed. The cancer had spread to the bones and my lungs. After a visit to M.D. Anderson, I am being treated by an oncologist in New Orleans with Xeloda and Genszar. I go this Thursday for CT scans to compare to the baseline scans done at Anderson. I would advise you find a good oncologist and follow their recommondations for treatment. I was told early on by one oncologist that renal cell cancer is never cured, but rather the doctor looks to preserve the quality of life. Good Luck to you and you are in my prayers for all cancer patients to become cancer survivors. Bo Louisiana bo Mon, 16 May 2005 00:00:00 GMT My name is Annie. I would like to get in touch with you if possible. My husband also has renal cell cancer. He started his treatment today and wish to talk with some one that has been through this. Annie Quickdraw Tue, 31 May 2005 00:00:00 GMT Hi, my name is Annie M. My husband found out that he had kidney cancer feb 27/04. He went for the operation to take the kidney out. They succeeded but it came back to the chest area. They say he has three tumors there. That one of them had grown 3cm in a month and a half. So now he is trying the interferon today. They hope that it will shrink it but they are not promising us anything. They said that we should know in about 2 months to see if it had shrunk at all. We have three kids ages from 17 ,11, 8. The oldest knows what's going on but the other two just know that he is sick. We haven't told them from what. I'm scared because I don't know the outcome will be. I haven't talked to anyone else except for his family and mine. What I'm looking for is someone that has gone through this and might be able to help me through it. I thank you for your time if you decide to be my friend and help me to understand what will happen. Your friend, Annie M. Annie Quickdraw Tue, 31 May 2005 00:00:00 GMT My husband just got back from M. D. Anderson and this time found his tumor in his head had completely disappeared but he had swelling around the spot. He has to keep watching this and will be scanned again in three months The tumors in his pancreas the one in the head and tail have slightly grown and the radiologist report says there are now three. The largest is 2.3 cm. My husband has been on interferon 2 x per day for 8 months and the doctor has now dropped him back to one injection a day. He has also put him on an anti depressant that will increase him appetite and also help him with sleep. My husband still has no physical effects from this but mentally he is not very good. I am hoping the medicine will help with this. He is to be scanned three months from now and then will see what we will do next. Keep me posted on your husband and my God bless both of you. I find it getting really difficult to help my husband with our job, go to all of the appointments and keep everything going. The spouse really has to be strong but I sometimes find it very difficult. I will keep both of you in our prayers. Horse Mon, 20 Jun 2005 00:00:00 GMT Hi, My name is Ginger. My husband has renal cell cancer. He took interfuron for 18 months.His cancer did not grow until these last few months. Now they have started him on avastin and tarceva. We go in two weeks to see if this is working. They want to do a stem cell transplant on him, which he is seriously considering doing it. The Lord has really blessed him. He has also given Doctors the knowledge to find new drugs that has lenghted his life. Keep praying and do not be afraid to try these new meds. God bless you. Gin Mac Sun, 26 Jun 2005 00:00:00 GMT Hi, My name is Ginger. My husband is 65 years old and has renal cell cancer. In June 1997 he had his right kidney removed. They told him at that time that no radiation or chemo would work on his type of cancer, and that if it came back it would come back in his lungs. In 2003 he went for his yearly check-up and they found it in his lungs and liver. They told him that he had only 6 months to live. That is when we decided to go to MD Anderson. They also found it in his pancreas and in the cavity where his kidney was removed and in his brain. They started him on interfuron injections 2xday. He took those till a couple of months ago. They said his cancer was starting to grow some so they started him on avastin and tarceva. We go back in two weks to see if the medicine is working. They want him to do a stem cell transplant, which he is thinking about doing it. The Lord has kept him alive this long and the Lord has given the doctors the knowledge to find new drugs to lenghten his life. Keep praying and do not be afraid to try new drugs. God bless you. Gin Mac Sun, 26 Jun 2005 00:00:00 GMT Susana, My name is Ginger. My husband has renal cell cancer.When he found out he had it he worried and was afraid he was going to die. Then one night he prayed to the Lord and told him that this thing was jsut to big for him and that he was turing it over to him. That has been 7 years ago. He goes to MD Anderson and was on interfuron until recently. His cancer had started to grow some so now he is on avatin and tarceva. We are going in two weeks to see if this medicine is working. They want him to do a stem cell transplant and his is thinking about doing it. Please don't give up. The Lord has blessed him and let him live this long and has given the Doctors the knowldege to find new drugs to help fight this thing. Just keep praying and We will pray for you also. Don't be afraid to try new drugs. Gin Mac Sun, 26 Jun 2005 00:00:00 GMT Hi Diane. My name is Ginger. My husband was told he had renal cell cancer 7 years ago,and they told him the same thing then. That he had 6 months to live. Yes, there is some one to contact. We go to MD Anderson in Houston, Texas. We have been going there for 2 years. He was taking Interfuron until just recently and his cancer has started to grow some. He is now on avastin and tarceva. We go back in two weeks for a check-up to see if the medicine is working. They want him to try a stem cell transplant. He is thinking about doing it. We will be praying that you can find someone to help your friend. god bless you for being such a good friend to Chance. Gin Mac Sun, 26 Jun 2005 00:00:00 GMT My husband has just started treatment for RCC at CTCA. He was diagnosed in May 04, we have been at MD Anderson recieving treatment for several months. He was recieving chemotherapy of Gemzar and xeloda and had also recieved Avastin and Irressa. We felt as though they were not looking outside of the box and I had researched tomotherapy radiation and made the decision to come to CTCA in Tulsa. He is a stage 4 and it has spread to his psoas muscle, right lung and lower spine, has horrible pain, due to nerve, muscle and bone involvement. So far we have found that they are very compassionate and have worked hard to reduce his pain. He is taking tomotherapy treatments, but will not start chemotherapy until after 5 weeks of tomotherapy. His regime will be avastin and tarceva. I have prayed that we have made the right choice in our choice to transfer to CTCA from MD Anderson. Can you give me your thoughts on this facility and the treatment that you have recieved? Nurse7 Sun, 28 Aug 2005 00:00:00 GMT My dad too is suffering from RCC. Could you pls tell us briefly how you went about it? Thanks much Saadiyah Tue, 30 Aug 2005 00:00:00 GMT I saw your message today and as my brother-in-law, age 50, NEVER smoked, is going to Buffalo soon to start interleukin 2 treatments. What do you advise? He is all for this, but I am beginning to have doubts. His cancer started in his kidney in 2004, had that kidney removed, and the hospital NEVER gave him a check up for 1 year! Now he has it in his lungs. Prissey Prissey Thu, 08 Sep 2005 00:00:00 GMT Gin Mac, My husband got back from M. D. Aug 6 after being on interferon for 10 1/2months. His tumor in his head is gone but now has swelling from the tissue around the tumor so stopped interferon for the three tumors in in pancreas and started on steroids. He finished the last one yesterday and will be going back to M. D. Sept 13 to start AVASTIN for the Pancreas tumors. I will keep you posted and let me know what your husband progress is. Also our Doctor now is Jonasch. My husband has also had Meligant Melanoma and Cholangiocarsconma Renal Cell and Mestatic Renal Cell. All of these with no symptoms. The problem now is the depression from the Interferon and the depression caused by the swelling in the head. I have a great feeling about the Avastin. Will keep you posted. My thoughts and prayers are with both of you. Betty Horse Fri, 09 Sep 2005 00:00:00 GMT Where is your husband being treated? We are going to M. D Anderson . We are now fixing to start to the Avastin. Thanking you and our prayers are with both of you. Betty Horse Fri, 09 Sep 2005 00:00:00 GMT Betty W. My husband went back for his check-up in july after being on avastin and tarceva for three months. He had a very good check up. Dr. Tannier told us his cancer had shrunk 15-20%. He is still losing weight and his face is still ruddy looking and also some shortness of breath. But, hey, he can live with all that if the medicine keeps working. He goes back in october for another series of tests. Hope they have shrunk some more. We go every 2 weeks for his avastin treatment. We live in louisiana and go to m.d. anderson on tues. And get his treatment on wed. I hope everything is going okay for ya'll. We will keep praying for ya'll because prayer and the lord is what has brought my husband this far. Keep in touch. Gin mac Gin Mac Mon, 12 Sep 2005 00:00:00 GMT Hi, Ive just found out my mum has renal cell carcomia at 41, this has devastated our family, im the eldest child of 5 at 21 and the youngest are twins at 9. We found out yesterday from a cancer clinic in Belfast's city Hospital that chemo and radiotherapies would be out of the question, never explained why, which is why i seek information from people like yourselves in my situation. They said that it was a very aggressive cancer which has spread to some lymph nodes and her lungs, they didnt suggest removing the kidney as i thought would be one of the 1st things they would have suggested?! I was wondering whether treatment in America etc would be the same treatment in Belfast, N.I? The suggested a treatment that only 1 in 5 people are suitable, im very confused and would appreciate anyone who mite be able to help me, thanks x Ellembee Thu, 13 Oct 2005 00:00:00 GMT My husband has been going to M. D> Anderson since June 2004. He has one tumor in his head and three in pancreas. Did sterotatic on head and it is gone Did 10 1/2 months on interferon and had to stop because of depression. He then started on Avastin Sept of 2005 and took every two weeks till Jan 24 2006. He was rescanned and found one tumor in pancreas is stable and the other two are slightly larger. We are getting a two month break from treatment till March 23 and then will be rescanned and started on SORAFENIB. We are working on the depression as it is a major concern: Who is your doctor at M. D. ? His is Dr. Jonasch. Keep us posted. Betty W Horse Sat, 04 Feb 2006 00:00:00 GMT Dear Betty W. (Horse) My husband is still doing good. We went back to M.D. Anderson Jan 2,2005 and Dr. Tanier stopped his avastin. He said the drug company stopped paying for renal cell patients taking it. They started him on the Sorafenbid (nexavor). He just started taking it on Feb.06. He has been on it for a week. The only side effects he has is knots on his neck. We go back in march for a check up. Let me know how your husband is doing on it. It takes along time to get a reply back. Hope to hear from you soon. We will keep praying for your husband. gmac Gin Mac Sun, 05 Feb 2006 00:00:00 GMT Hi... Could you please tell me....what is Steve's website and where in the kidney onc list? Thanks so much. sewingnana Sewingnana Sun, 19 Nov 2006 00:00:00 GMT It surprised me to get your e-mail as I lost John to RCC and pneumonia in October of 2004. Steve has also passed away but I believe his kidneyonc list lives on with Robin's help. If you wish to e-mail me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- I will forward your e-mail to Robin so she can point you in the right direction. I belong to the yahoo group for widows of RCC patients and it has helped me...but please e-pmail me so I can get you in touch with Robin. Hugs, Val Valerie L. Mon, 20 Nov 2006 00:00:00 GMT can you tell me a little more about ctca Pauliemf Sat, 27 Jan 2007 00:00:00 GMT