CancerCompass message board discussion started by Jonesey on 4/13/2007 http://www.cancercompass.com/message-board/message/all,11271,0.htm Tue, 07 Oct 2008 00:00:00 GMT Tue, 07 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Has anyone with Mucosal Melanoma which has spread ever taken part in a Experimental Program with the Medication called Gleevec?I would appreciate hearing from you.Jonesey Jonesey Fri, 13 Apr 2007 00:00:00 GMT  On 4/13/2007 Jonesey wrote:Has anyone with Mucosal Melanoma which has spread ever taken part in a Experimental Program with the Medication called Gleevec?I would appreciate hearing from you.JoneseyHave you begun treatment on Gleevec?  My mother is looking into this treatment next week.  She has Stage 4 mucosal melanoma.  I would be very interested to hear how you have down with this medication.  Thanks! Stefhef Thu, 14 Jun 2007 00:00:00 GMT  On 6/14/2007 Jonesey wrote: On 6/14/2007 Stefhef wrote: On 4/13/2007 Jonesey wrote:Has anyone with Mucosal Melanoma which has spread ever taken part in a Experimental Program with the Medication called Gleevec?I would appreciate hearing from you.JoneseyHave you begun treatment on Gleevec?  My mother is looking into this treatment next week.  She has Stage 4 mucosal melanoma.  I would be very interested to hear how you have down with this medication.  Thanks!  I am in stage 1V also, and without treatment I have been holding my own.  I considered Gleevec, but my Dr. advised me that it would not be worth going through the medical testing prior to finding out if I qualified.  Only one person qualified for the treatment, who had Mucosal Melanoma, so it wasn't advisable for me to proceed.  I have lived for 2 1/2 years  without treatment, and so far I am not sick.  I see my Dr. at Mass General, Boston, MA., every 6 weeks, and he is amazed that I am doing so well. I follow a healthy diet, and get my rest, no smoking or drinking in my lifetime. the Melanoma on my nose causes some breathing difficulty when I lay down at night, so I use two pillows to raise me up.  No surgery for this 2nd ocurrence, it would be too radical. I have decided not to enter in any studies or further treatment.If your mother does take the treatment and qualifies to take it I would like to hear how things went.  It is designed for people with Leukemia primarily, and is not a cure, just to slow it down and keep it from spreading, but not really successful for people with Mucosal Melanoma.Good luck if your Mother does take it.Jonesey Jonesey Thu, 14 Jun 2007 00:00:00 GMT