CancerCompass message board discussion started by Stephanie on 6/26/2004 http://www.cancercompass.com/message-board/message/all,1192,0.htm Mon, 06 Oct 2008 00:00:00 GMT Mon, 06 Oct 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Anyone know how or where to get into a program or trial with rexin-g? If you know a hospital or clinc anywhere that is currently using it please let me know. Stephanie Stephanie Sat, 26 Jun 2004 00:00:00 GMT Stephanie, My brother-in-law just got accepted for a trial using Rexin-G at the Mayo Clinic. Apparently, he was the first one in the states accepted for this trial. He has pancreatic cancer. He started his treatments today, 10/19. Mason Wed, 19 Oct 2005 00:00:00 GMT Did your brother-in-law get started? How was the first treatment? Hope things are going well. Bjarne Thu, 03 Nov 2005 00:00:00 GMT What convinced you to take part in this study Mason? Information seems to be directly from the company making it. Curious to know what other information you may have found. We are considering. Thx Stone Thu, 08 Dec 2005 00:00:00 GMT Mason, My father has advanced pancreatic cancer and I have been looking for a good clinical trial or whatever will work best for him. Mayo clinic called me today to talk about this trial for Rexin G, they are having now. Any word on how your brother in law is doing in this, since I'm deciding if I should get my father into this. Thanks, Patrick101 Patrick101 Wed, 22 Feb 2006 00:00:00 GMT Mason- How is your brother-in-law doing with the Rexin-G trial at Mayo? Has positive progress been made since he started in October? My brother, age 45, was just diagnosed with stage 4 PC and I'm looking for a miracle. Jersey Girl Mon, 31 Jul 2006 00:00:00 GMT My mother has 4th stage colon cancer w/mets to the liver. She has not had any chemo since nov.2005 and started Rexin G in Dec. 2005. She has had several cycles and is doing well to date. She is not on clinical trial, instead she has had escalated dose to maximize efficacy of the vector. Rexin G has no bad side effects like chemo. It was well worth the cost. Mayo is doing clinical test specific to pancreatic cancer. Theresa5 Sat, 12 Aug 2006 00:00:00 GMT Contact Mayo Clinic in Mn. They have 25 spots with 6 taken. My wife has PC and we are on gemzar an olixaliplaton (sp) which showed the tumor was smaller than 8 weeks earlier. We have investigated rexin g and see that as our next option. One limitaiton is that you can the 3rd gemzar combination therapys can eliminate you as a trial canadate. Please let me know how things are going with the search or if you get on the rexin g. Jack Jpscoach Sat, 02 Sep 2006 00:00:00 GMT Theresa5. You said your mother had Rexin G outside of a clinical trial and that it was worth the cost. Where? What was the cost? And what were the results? I understand that the Mayo clinical trial results have not been spectacular. Sidney01 Fri, 06 Oct 2006 00:00:00 GMT Please contact epeius biotechnologies. They are the makers of Rexin-G. They will be able to explain everything. Theresa5 Sun, 08 Oct 2006 00:00:00 GMT Thanks for your prompt response. I've been in touch with Epeius Biotechnologies and had a long discussion regarding the efficacy of the drug. I've also discussed the drug with the clinical trial researcher at Mayo Clinic. Neither discussion gave me a warm feeling that Rexin G was a slam dunk for pancreatic cancer. Since Mayo Clinic will not accept anyone into the trial that has more than 3 chemotherapy regimens, I've discussed various alternatives with Epeius, one of which was paying for the drug outside of a clinical trial. The price quoted was particularly costly, and before I opted to pay for the drug I was curious as to how your mother was doing approximately 1 year after starting treatment and whether the FDA threw any roadblocks in obtaining the drug on an individual basis. Sidney01 Mon, 09 Oct 2006 00:00:00 GMT Do you, or anyone else have further information on current results or availability of Rexin-G Hamish Wed, 28 Feb 2007 00:00:00 GMT  On 10/9/2006 Sidney01 wrote:Thanks for your prompt response. I've been in touch with Epeius Biotechnologies and had a long discussion regarding the efficacy of the drug. I've also discussed the drug with the clinical trial researcher at Mayo Clinic. Neither discussion gave me a warm feeling that Rexin G was a slam dunk for pancreatic cancer. Since Mayo Clinic will not accept anyone into the trial that has more than 3 chemotherapy regimens, I've discussed various alternatives with Epeius, one of which was paying for the drug outside of a clinical trial. The price quoted was particularly costly, and before I opted to pay for the drug I was curious as to how your mother was doing approximately 1 year after starting treatment and whether the FDA threw any roadblocks in obtaining the drug on an individual basis.Hi Sidney,my daughter is quite ill with cancer and i also want to buy the Rexin G can you please email me the cost and where i can get it. regards,Andrew    Andrew 4 my Daughter Sun, 11 Mar 2007 00:00:00 GMT Greetings from Japan. Epeius Biotechnologies Web site now mentions four single-use clinical trials sites: MD Anderson, TX Pittsburgh Hillman Cancer Center, Sarcoma Oncology clinic, Santa Monica, and the Epeius Clinical Reseearch Unit, San Marino. Asian Hospital and Medical Center in Metro Manila is another option. A Japanese liaison person has recently made a trip, and reported it is an "advisable option." She met a few US patients there. You can probably email Epeius Biotech for the costs in the Philippines. Meek935 Sat, 24 Mar 2007 00:00:00 GMT thanks for your help. i will try those options for further information.  does anyone else know any more, particularly on the japanese side? or on anyone who has been to manila Hamish Sat, 24 Mar 2007 00:00:00 GMT See also: Rexin-G for Pc message Board. Meek935 Mon, 26 Mar 2007 00:00:00 GMT how is your mother doing and how did you go about obtaining the drug rexin g for her?  My father has stage 4 bladder cancer that has spread to the liver and we are looking for a miracle.  Even another 6 months or so would be a miracle to us.  Any info you have would be appreciated. Thanks. debjay Tue, 11 Sep 2007 00:00:00 GMT  On 8/12/2006 Theresa5 wrote:My mother has 4th stage colon cancer w/mets to the liver. She has not had any chemo since nov.2005 and started Rexin G in Dec. 2005. She has had several cycles and is doing well to date. She is not on clinical trial, instead she has had escalated dose to maximize efficacy of the vector. Rexin G has no bad side effects like chemo. It was well worth the cost. Mayo is doing clinical test specific to pancreatic cancer.My husband is on Rexin-G and has just finished the first course of 4 weeks.  His PETct was not very good with respect to any positive results thus far.  My husband has the same cancer and mets as your mother.  I would really appreciate hearing from you on how your mother did with this drug.  Thank you.  Group Therapy Thu, 13 Sep 2007 00:00:00 GMT How did you get access to rexin g.  My father has stage 4 bladder cancer and I am trying to get rexin g for his use with no avail.  I contacted the co to get a compassionate use of the drug but they have not responded.  Any help appreciated. Debjay debjay Sat, 22 Sep 2007 00:00:00 GMT How did the rexin g work and how did you get it without the trials?  I am desperate for it as my father has stage 4 bladder cancer.  Please let me know. debjay debjay Sat, 22 Sep 2007 00:00:00 GMT How did you get access to RExin g??  My father has stage 4 bladder cancer and we are trying desperately to obtain it.  Any help would be appreciated. Debjay debjay Mon, 24 Sep 2007 00:00:00 GMT I contacted Manila a couple of days ago. The charge 6000USD for the treatment but the patient needs to purchase Rexin-G from Epeius. I'm also trying to find the cost from Epeius. Manuel Tue, 02 Oct 2007 00:00:00 GMT California, Epeius Biotechnologies My son is flying out on the 19th of January.  He has metastatic osteosarcoma and we are getting him involved in the trial for Rexin G.There is a foundation in California that can help.  Let me know if you want the contact person.  (My son's hospice nurses are putting together a benefit and we are going to start fundraisers to help people also.)rose rose9591 Fri, 11 Jan 2008 00:00:00 GMT  On 10/19/2005 Mason wrote:Stephanie, My brother-in-law just got accepted for a trial using Rexin-G at the Mayo Clinic. Apparently, he was the first one in the states accepted for this trial. He has pancreatic cancer. He started his treatments today, 10/19.mason, can you tell us the progress of your brother in law  re. rexin-g?thank you eberle Wed, 20 Feb 2008 00:00:00 GMT  On 1/11/2008 rose9591 wrote:California, Epeius Biotechnologies My son is flying out on the 19th of January.  He has metastatic osteosarcoma and we are getting him involved in the trial for Rexin G.There is a foundation in California that can help.  Let me know if you want the contact person.  (My son's hospice nurses are putting together a benefit and we are going to start fundraisers to help people also.)rose Can you give me some information on the foundation in California? Who is the contact person to talk to? I would appreciate any help you can offer. Thanks!ninawa ninawa Tue, 26 Feb 2008 00:00:00 GMT  On 10/2/2007 Manuel wrote:I contacted Manila a couple of days ago. The charge 6000USD for the treatment but the patient needs to purchase Rexin-G from Epeius. I'm also trying to find the cost from Epeius.Hello,Do you have any update about the recent pricing? Have you contacted Epeius and if so do they have the same price?Will they give this to a patient having only stage1 cancer instead of suffering from Chemo Therapy?Thanks,Eric   ericv2 Mon, 03 Mar 2008 00:00:00 GMT The grand total is about 35000 doller, Hu..ge...I received email from Epeius. daytona Tue, 03 Jun 2008 00:00:00 GMT