CancerCompass message board discussion started by Boliver on 6/23/2007 http://www.cancercompass.com/message-board/message/all,13721,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I am 78, no incidents with ET for 8 years. Treated with Hydrea for 7 years with Platelets in 300-600,000 range and Hgb 9 - 10. Lately Hgb down to 8, started Agrylin, terrible side effects, then Interfuron, terrible side effects, now no treatment at all except asperin. Now feeling 100% again but worried about platelets going too high. Dr. says many do not need treatment only to be watched if platelats get to 2 million range. Please comments on no treatment with platelets so high. I did get transfusions when Hgb got down to 8. Any comments very much appreciated. Boliver Sat, 23 Jun 2007 00:00:00 GMT For access to a host of people with myeloproliferative disorders including ET, and for answers to frequently asked questions about this family  of diseases, try mpdinfo.org. There is a link to a listserve where people post questions and get answers from other patients and health professionals. They may have someone with a history like yours. Momesq Mon, 25 Jun 2007 00:00:00 GMT