CancerCompass message board discussion started by Bscoggs on 6/28/2007 http://www.cancercompass.com/message-board/message/all,13871,0.htm Fri, 29 Aug 2008 00:00:00 GMT Fri, 29 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have been reading alot of liver cancer messages and tracking them...and some i've replied to...but then they just end...people I have learned about and corresponded with...they just dont answer anymore...where are you guys?   Corkycana and deets? i just want to hear from some survivors here...We are all strong and couragous in this battle for our lives and i have hope that u are still with us!!!  My husband passed his 1 year mark on june13 now docs are saying that we need to enjoy our time with him! I'VE ALWAYS ENJOYED MY TIME WITH HIM!!!!!!! Why do Doctors have so little faith? They crush peoples dreams and hopes and then we die of cancer cuz he said we would!!! we neede to be built up with positives and given hope so we CAN fight! It's hard to fight when u feel like it's useless! BUT we all will anyway because we love and are loved....My haert is with EVERYONE struggling with this diesese.   B Bscoggs Thu, 28 Jun 2007 00:00:00 GMT Yes, my son mark has survived 2 years and 4 months after a late diagnois. You can read about his current activities at a blog I write which is called thenextadventure. I would give you the exact link but i tried that one time and my message was not printed. Use Google and put in something like cancer  thenextadventure or Blogger thenextadventure.Mark has battled hard and continues to battle cancer. Betty  Miss Betty The Mom Fri, 29 Jun 2007 00:00:00 GMT HERE IS SOME VERY VALUABLE INFORMATION FOR ANYONE FIGHTING CANCER (INCLUDING LIVER CANCER) WHO IS INTERESTED IN LEARNING ABOUT ALTERNATIVE THERAPIES. http://www.vitamincfoundation.org/vitcancer.htm Shemay Fri, 29 Jun 2007 00:00:00 GMT Maybe that is because Doctors have no clue of how to actually cure cancer.  All they know to do, besides wring their hands, is try the barbaric and failed treatments methods of cutting, poisoning and irradiating the symtoms (tumors) away temporarily - and often fail at doing that.  And then leave the patient with an impaired immune system so that the cancer, other cancers and other diseases have an easier pathway into the body - it the patient does not die first of liver failure or other major organ failure as a result of the chemo or radiation.Liver cancer is not hopeless - far from it!  And the liver is the one organ in the body that is most capable of regenerating itself.  The person who used the original patent for the oleander based medicine Anvirzel to come up with a home remedy version, used it to rid his 84 year old mother of lung and liver cancer in only a few months.  He also used it successfully for his sister's Hepatitis-C.  Have you heard of Anvirzel or of the home remedy version called "oleander soup"?  I doubt it. Cancer and liver treatments are big, big business - and that has been a big, big obstacle for patients finding out about, or getting access to,  safe, natural alternatives that are cheaper and more effective. Have you heard of the Berkson Clinical Study?  Probably not, because it was never published in the United States, despite being 100% successful at avoiding chemo and liver transplants for "hopeless" liver patients.  You may find the study at:http://www.tbyil.com/Berkson.htm In my opinion, most people with liver cancer could cleanse and detox, change to a healthy diet and lifestyle, take something like Inositol/IP6 and colloidal silver to initially get rid of the cancer and tumors, then take priobiotics to establish good stomach flora and take the oleander remedy and/or other strong immune boosters to rebuild their immune systems and keep cancer at bay, AND take the three anti-oxidants in the Berkson Clinical Study to help protect and regenerate their livers (selenium, milk thistle and alpha-lipoic acid) and then go on to have many, many enjoyable and healthy years of life.Live long, live healthy, live happy!Tony Isaacshttp://curezone.com/m/profile.asp (my bio)author of "Cancer's Natural Enemy" Dquixote1217 Fri, 29 Jun 2007 00:00:00 GMT Hi This is DeetsI have been messaging on this site. You must have just missed my messages. I am doing OK, 2years of latest treatments and surgery was 4 years ago. No I am on Nexavar for about 13 weeks. There alot of side affects but counts have gone down and tumors in lungs have gotten smaller.Take care and hope all is Ok.Deets  Deets Sat, 30 Jun 2007 00:00:00 GMT  On 6/30/2007 Deets wrote:Hi This is DeetsI have been messaging on this site. You must have just missed my messages. I am doing OK, 2years of latest treatments and surgery was 4 years ago. No I am on Nexavar for about 13 weeks. There alot of side affects but counts have gone down and tumors in lungs have gotten smaller.Take care and hope all is Ok.Deets  I,do not even know where to start. my wife was diagnosed in june 05 with cholangio,they removed 60% of liver ,and tried a wait and see without chemo. in march 06 small lesions found on secum,surgery to remove rightovary and appendics along with secum .following that she recieved gemcitabine for about ten to twelve weeksduring which time she was very sick. I read the message board weekly and am always saddenned when i see peoples desperation and fear  after learning of either their own diagnosis or a loved one. I know what the statistics say. I know most people do not survive this monster. Ifollow postings and when they stop ihave apretty good reason why. my wife was 44 when diagnosed with a grapefruit sized tumor in her liver which went incorrectly undiagnosed for 2 yrs. This may sound trite, but for myself i have tried to enjoy every possible minute (some times not easy) with her the last two years because i am aware that her time could be short .we have a 11 yr.old daughter who has already lost her biological  father to another monstrous disease.we try to live a day at a time .If you love someone ,TELL THEM Bob b Sun, 01 Jul 2007 00:00:00 GMT my husband has survived one year and four months. we are still fighting. donot give up until the last minute! Laven Sun, 01 Jul 2007 00:00:00 GMT  On 6/30/2007 Deets wrote:Hi This is DeetsI have been messaging on this site. You must have just missed my messages. I am doing OK, 2years of latest treatments and surgery was 4 years ago. No I am on Nexavar for about 13 weeks. There alot of side affects but counts have gone down and tumors in lungs have gotten smaller.Take care and hope all is Ok.Deets so nice to hear that your tumors has gotten smaller, hope the same will happen to my husband. My husband is using some urea cream. btw, what do you mean that you have experienced three times of the hand foot syndrome? have you stopped the medicine for 3 times?laven Laven Sun, 01 Jul 2007 00:00:00 GMT Hi I was put on antibiotics twice and did stop Nexavar for 12 days due to complications. At that time I had been on it for 13 weeks, guess my body needed a break.My last bout with the sore feet is past the painful part now. Now I have the hard callouses where the hot spots where. But a least I can walk with out pain again and also work as a floral designer.Seen doctor today would have had another scheduled time off but with the side affects worse after starting again, so I will go on a reduced med plan. To all Take Care!Deets   Deets Mon, 02 Jul 2007 00:00:00 GMT  On 7/2/2007 Deets wrote:Hi I was put on antibiotics twice and did stop Nexavar for 12 days due to complications. At that time I had been on it for 13 weeks, guess my body needed a break.My last bout with the sore feet is past the painful part now. Now I have the hard callouses where the hot spots where. But a least I can walk with out pain again and also work as a floral designer.Seen doctor today would have had another scheduled time off but with the side affects worse after starting again, so I will go on a reduced med plan. To all Take Care!Deets  you still work? you are really tough!why did you use antibiotic? topically?or systemicly? was there secondary infection on your feet or hands? bacteria or fungi?you are really strong and tough , you know. My husband  could not bear the pains, he has reduced the dose. take care Laven Tue, 03 Jul 2007 00:00:00 GMT HiYou make Me sound so strong, I am just like the rest of us on this site just trying to keep a little normal in my life. I do not work every day and when I have fare up I don't or I should say I can't. I was on antibiotic for really bad colds. Take CareDeets    Deets Thu, 05 Jul 2007 00:00:00 GMT WOW!!!!! I decided to check the message board replies and was overwhelmed at all of the responses! You all have made my day! We had to take my husband to the ER on the 4th and they kept him over5night...had been sick (vomitting and stomack pain) for about 2 weeks but on the 4th it was just too much...He couldnt even hold doen a sip of 7up. All day he soooo sick and my 3 year old kept asking me why Daddy was throwing up and how come his eyes were so red...Breaks my heart. We also have a 15 month old.  Anyway they gave my husband fluids and nausea meds and morphine for pain...I put an annointed hankerchif under his matress and stayed the night with him at the hospital...Later that night he started feeling better and wanted to finally eat!!! Prayer answered! We got to go home that morning....(him being sick had nothing to do with treatment) Anyway, We have been trying and pushing for him to get SIRsheres again, and it's been a battle...BUT as soon as we got home our docs called and said we were approved to do it!!!!!!!! YEA!!!! AND the insurance people who told us a week ago that it was gonna take 30 days to get  it approved with them called and said everythhing was a go!!!! Another miracle!!!We are elated! Unbelievable!  Thank you all for replying! I have hope again! My prayer are with all of you...God is listening!   I have been wanting to check out NExavar...But the oncoligist told us that it wasnt any more effective than adriamyacin...which we did 1st..and it didnt do ANYTHING>>> Can you tell me what all you think about it?  Cuz it seems to keep popping in my head as an answer.....This sound crazy but I truly have love for all of you that are going through this too.....THANK YOU AGAIN for your messages!   B Bscoggs Sat, 07 Jul 2007 00:00:00 GMT Sorry I spazzed!=)    Bscoggs Wed, 11 Jul 2007 00:00:00 GMT Try homeopathy as an alternate treatment. My mother is suffering last three years and has survived on modern medicine and homeopathy. She is Child C patient with very low rate of survival. Still we have managed to pull her this far. She was diagnosed in april 2004 with 3-6 months survival rate. She suffers from HCC with multiple nodules of liver cancer. Thru radio frequency ablations, TACE and Homeopathy we have managed to improve her quality of life and overall health. How far this will go, i am not sure but definitely homeopathy can help  lot. In fact whatever i have seen, i recommend homeopathy as an supplement to cancer treatment including hepatitis. Unfortunately the doctors parctising modern medicine have no idea how homeopathy operates and hence dont encourgae paitreints to seek alternate help.  Navien Mon, 16 Jul 2007 00:00:00 GMT  On 6/30/2007 Deets wrote:Hi This is DeetsI have been messaging on this site. You must have just missed my messages. I am doing OK, 2years of latest treatments and surgery was 4 years ago. No I am on Nexavar for about 13 weeks. There alot of side affects but counts have gone down and tumors in lungs have gotten smaller.Take care and hope all is Ok.Deets  Deets,What stage of liver cancer did you have?  I am recently diagnosed with stage 4 liver cancer which orginated as Endometrial cancer 2 years ago.    I am wondering how the treatments go.  I think I am going to be on Chemotherapy in the near future.  Can you tell me anything about it?Lori  turtle23 Wed, 24 Oct 2007 00:00:00 GMT