CancerCompass message board discussion started by Kbookcat8 on 7/13/2007 http://www.cancercompass.com/message-board/message/all,14326,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi!  I really need some feedback from anyone who has experienced ascites.  I was diagnosed last August with Stage IV, Leiomyosarcoma, and have been determined to beat it despite the "statistics"!  I've done pretty well, and just had a hysterectomy on 6/26 since the original tumor was the only real site left with activity in it.  We'd also hoped that removing that would stop the fluid build-up, ascites, that I've had for months now.  I've been going in to get tapped about every 5 days, for months, with the usualy amount drained being in the 4-5 liter range!  Now I have a temporary drain which I detest!  I'm still producing a lot of the ascites, and my oncologist seems to be baffled at its source, even though I'm being treated at Northwestern Memorial in Chicago, considered to be a top-notch cancer center!  Has anyone had similar experiences with ascites?  If so, PLEASE let me know how you resolved it.  Thank you, Karen Kbookcat8 Fri, 13 Jul 2007 00:00:00 GMT sometimes this can be an ongoing problem.  There are some reports that Octreotide may be effective in controlling malignant ascites, but the drug has not been tested in a clinical trial.  You could ask your doc about it. Oncrx Fri, 13 Jul 2007 00:00:00 GMT How is it going with the ascites? I noticed your message from July. My father has been at Northwestern as well and they recommend a permanent catherer,he is having that done tomorrow. How has been your experience so far? Bebita Thu, 02 Oct 2008 00:00:00 GMT