CancerCompass message board discussion started by angier on 7/14/2007 http://www.cancercompass.com/message-board/message/all,14346,0.htm Thu, 28 Aug 2008 00:00:00 GMT Thu, 28 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Anyone out there living with EHE? I'd love to exchange information. My brother has it and we are researching all options. Blessings, Angie angier Sat, 14 Jul 2007 00:00:00 GMT There is unfortunately a very real shortage of information about EHE ... I have stated a blo about myself that you are welcome to look at and comment on ... I don't know what this feels about adding links to posts etc so I'll put the address in lower down so a mod can delete it without having to edit the whole post ... if they do delete it go to google and search for living with EHE ... it will return a wordpress site .. and that mine  Darran address is http://darran1066.wordpress.com/ darran1066 Sat, 28 Jul 2007 00:00:00 GMT Thanks, Darran! I'm looking at your site now. Seems like you know Cynthia in Australia too? The registry is fabulous. Feel free to email me:  --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--My brother started chemo last night in LA. We plan on beating this! All the best... angier Sat, 28 Jul 2007 00:00:00 GMT