CancerCompass message board discussion started by Cindy611 on 8/14/2007 http://www.cancercompass.com/message-board/message/all,15271,0.htm Sun, 23 Nov 2008 00:00:00 GMT Sun, 23 Nov 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Hi, just needed to write it all down.  On Sunday we (Tom and I) found out that Tom now has mets to the brain.  He has 3 tumors, 2 are close to each other and will have to be treated seperately and 1 all by itself.  All 3 are affecting his memory and balance.  What a mess!!!! But thank God he is at a cancer research hospital and has a GU oncologist.  I'm not sure when the radiation treatment will start, but I hope they do it soon!!!!! I can't even think of what to say anymore so thanks for letting me vent.  Please Pray for Tom.Thanks,Cindy Cindy611 Tue, 14 Aug 2007 00:00:00 GMT Cindy,I'm so sorry to hear about Tom. I will keep you both in my prayers. Donna  Dworth Tue, 14 Aug 2007 00:00:00 GMT Cindy,Sorry to hear the news. Here's a recent post on Gamma Knife proceedure for brain mets by Davis Foster. It may help you both understand what's ahead and realize there is hope with this treatment. Plus Dave throws in a little much needed humor. Shaun http://mpablog.typepad.com/david_foster/2007/08/they-put-the Recnac Tue, 14 Aug 2007 00:00:00 GMT Cindy, I am so sorry to hear about Tom's condition. I will keep him in my daily prayers,as well as you also. Try to keep your head up high as it will keep Tom fighting..                                                         Your friend, Lenny Lenny711 Thu, 16 Aug 2007 00:00:00 GMT  On 8/14/2007 Cindy611 wrote:Hi, just needed to write it all down.  On Sunday we (Tom and I) found out that Tom now has mets to the brain.  He has 3 tumors, 2 are close to each other and will have to be treated seperately and 1 all by itself.  All 3 are affecting his memory and balance.  What a mess!!!! But thank God he is at a cancer research hospital and has a GU oncologist.  I'm not sure when the radiation treatment will start, but I hope they do it soon!!!!! I can't even think of what to say anymore so thanks for letting me vent.  Please Pray for Tom.Thanks,Cindy Hi Cindy,Is Tom on sutent? Dally K Dally k Tue, 21 Aug 2007 00:00:00 GMT Yes Tom is on Sutent, 50mg a day, he's feeling a little better but still has head ache, he's still waiting on the GK but taking it 1 day at a time. Cindy611 Tue, 21 Aug 2007 00:00:00 GMT Hi Cindy,My husband and I went to Moffitt on Thursday, Aug. 30, and did not get the news we were hoping for.  We did see Dr. Fishmann and he impressed us greatly.  Tom is in good hands between the doctor and god.  I know that everything possible will be done.  Hang in there and tell Tom he has many caring people on this site pulling for him.  Anytime you need to just vent, talk, yell or cry, just do it here.  We all can understand the frustration and emotions that goes along with this desease.  My husband has chose to drop the dosage of sutent from 50 mg to 25 mg.  He has had a terrible time with side effects.  His tumors did not seem to get larger over the past three months while on the 50mg, however, they didn't shrink either.  Does Tom have the cancer in his lymph nodes also?  Dr. Fishmann said they have clinical trials going on at this time for RCC but my husband in too advanced to qualify.  He suggest that my husband lesson his does of sutent or consider IL-2 or one of the other treatments (toresil, nexvarre, etc..).  My husband said he is just tired of being sick and hurting.  He also has a rare form of arthritis that is only associated to RCC.  They often mistaken it for rheumitoid arthritis.Didn't mean to babble on, but just wanted to fill you in also, as we have communicated before about Moffitt and Dr. Fishmann.Good luck to you and Tom.  I'll keep you both in my prayers.Jeff's girl  Jeff's girl Mon, 03 Sep 2007 00:00:00 GMT