CancerCompass message board discussion started by harley boy on 8/29/2007 http://www.cancercompass.com/message-board/message/all,15717,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have been on Nexavzr for 8 days now and my scalp is really itching and hurting as if someone pulled my hair out--has anyone had this same reaction and if so what did you do about it to relieve it? harley boy Wed, 29 Aug 2007 00:00:00 GMT My husband had the same effects w/Nexavar. We bought him a mild baby wash that he used to wash his hair with and it helped. Then he got this clever idea to use Head and Shoulders which I thought would be to strong but he said it helped him with the itching. Eventually this side effect stopped but they say when you get this effects the medicine is working.Best of Luck   Wilmabc Wed, 29 Aug 2007 00:00:00 GMT Harley, I don't know if that is your real name but it is the name of my daughter's horse and he is a champion, and that doesn't mean just walking around the pasture. I never knew a Harley who wasn't kick ass person. Good to get to know you. I hated Nex. Hated it, hated it. I could barely walk, food had no taste, which didn't really matter since I had no appetite. I gave it up for Sutent after three treatments. But, I will have to say that one thing I did (in a perverse way) enjoy was the itching scalp, well when I was in the shower. Having the water "scratch" the top of my head was about the only pleasure I got the entire time I was on it. I also used H&S and it did help. But in the end I wimped out. You might visit my blog (www.mpablog.typepad.com/david_foster) to read more about mine (and others) history of the stuff. It is kind of fun, but you will get the point. Best Dave www.mpablog.typepad/david_foster Or just search David Foster kicks cancer. It will be right at the top. Davidf Thu, 30 Aug 2007 00:00:00 GMT I'm on Nexavar for melanoma in the liver. I was on 200mg 2 x daily. My scalped itched but when it started getting so tender I couldn't sleep, I called the doc. She reduced me to 1 pill a day. Now I just deal with the "runs". The itching scalp is normal and it may be a sign the hair is thinning. I noticed the hair in the shower drain. Cheech Thu, 30 Aug 2007 00:00:00 GMT  On 8/29/2007 harley boy wrote:I have been on Nexavzr for 8 days now and my scalp is really itching and hurting as if someone pulled my hair out--has anyone had this same reaction and if so what did you do about it to relieve it?I was diaganosed with RCC June, 2001...15cm tumor on rt. kidney, stage 2, with no apparent mets.In Dec. 2004 I was diagnosed withmets to the spine, L1, and I had radiation. July, 2006 I had mets to the pelvis with progression in the spine and I was started on 50mg of Sutent. I had a terrible reaction after 2 weeks ...I was then put on 25mg and tollerated that dose well. After 4 months my scans showed progression and I was started on Nexavar in Nov. 2006. I had almost every side effect that one can get on this drug. My hair loss started several months after I started Nexavar. It was predeeded by terrible scalp pain. The pain subsided after 2-3 weeks. This past July my scans showed progression...a spot on my scull,soft tissue invovement, increase in one of the spots on my pelvis (had radiation for that) and a tumor in my rt. arm. I have just completed my 5th treatment of torisel. I am experiencing severe muscle pain in my thighs,buttocks and lower back. Since the drug is so new and I am the first patient my Doc. has on torisel he doesn't know about this side effect. The literature doesn't have any info on this . Dr. Figlin at the City of Hope recomended that I start torisel so I put a call into his nurse and left a message asking about this and I have not gotten a response.Have any of you had any muscle pain with torisel???Ginger Gingerp Thu, 06 Sep 2007 00:00:00 GMT