CancerCompass message board discussion started by Ejw00100 on 9/2/2007 http://www.cancercompass.com/message-board/message/all,15810,0.htm Mon, 08 Sep 2008 00:00:00 GMT Mon, 08 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I have had tube in for four months and just learned it will be in for a lot longer.  Has anyone had experiance with long term feeding tube issues?  Ie: I have twice had to replace the tube plug due to wear, do you know of simple fixes for this problem.  Also, are there any ways to protect the tube via a strap or such in order to allow greater exercise and bike riding ability.  Tks. Ed Walsh Ejw00100 Sun, 02 Sep 2007 00:00:00 GMT  On 9/2/2007 Ejw00100 wrote:I have had tube in for four months and just learned it will be in for a lot longer.  Has anyone had experiance with long term feeding tube issues?  Ie: I have twice had to replace the tube plug due to wear, do you know of simple fixes for this problem.  Also, are there any ways to protect the tube via a strap or such in order to allow greater exercise and bike riding ability.  Tks. Ed WalshHi Ed,I had treatment earlier in the year and had a peg tube for about 3 1/2 months. There was a couple of things I did to alleviate the discomfort or awkwardness of having a 18" tube projecting from my stomach. First, I took one of my son's old baby socks ( he is now four) and covered the end that had the pinch clamp with it. I found the constant irritation of it rubbing against my stomach was stopped immediatley. I also took a lanyard ( neck thingee ) that is typically attached to a sports pass, press pass , or trade show badge that has a little spring clip on one end and wore this around my neck. I looped a rubber band around the tube about 4 inches up from the end and clipped the lanyard to the rubber band. This was a far better solution than tucking the tube into a pocket or leave it dangling inside my shirt. As lightweight as the tube was the little bit of pressure pulling against the plug inside my stomach, made a tender / sore spot at the point where it pressed against my stomach on the inside. This especially happened at night, when I would roll over onto it, causing it to be be pulled harder. The lanyard and sock contrpation helped more than anything else my nurses or docs could suggest.I hope this helps,Matt   Mattnmiami Sun, 02 Sep 2007 00:00:00 GMT Hi Matt (and Amy), How are you doing now? How is recovery? I've read your and your wife's posts about tonsil cancer, and would very much like to know a year later how it's going, physically and emotionally.  Zeebra Thu, 03 Apr 2008 00:00:00 GMT