CancerCompass message board discussion started by locomare on 9/17/2007 http://www.cancercompass.com/message-board/message/all,16226,0.htm Thu, 24 Jul 2008 00:00:00 GMT Thu, 24 Jul 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ HI,6/06 I was diagnosed was a 4 cm fiborid.8/29/07 I went to surgery for a partial hysterectomy due to the enlarged fibroid. Dr. found an 12cm sarcoma within a 18x27cm fibroid. Dr. had an OBGYBN/Oncologist join the surgery and they did a total abdominal and took some lymph nodes as well, although they were healthy. Stage 1Grade 3Tumor was negative for estrogen receptorsPositive for invasion of myometrial veinsMitoses 9-50/10CT Scan was performed and no other tumors were found.My oncologist is recommending immediate abdominal radiation treatment and chemo consisting of Doxorubicin(Adriamycin)/Ifosfomide. Has anyone received these?Everything I have read says chemo treatments don't work as a preventative measure only if it has already spread and will just damage me prematurely. Where would you go for a 2nd opinion? I am in Oregon.ANY ADVICE WOULD BE GREATLY APPRECIATED.Thanks,KC  locomare Mon, 17 Sep 2007 00:00:00 GMT You should get a 2nd opinion from a sarcoma center. Md Anderson in Houston I hear is good. Theres also a place in Boston. I suggest surfing the net and try to find something close by. There may be a place in SanDiego or SanFransico. yavall Mon, 17 Sep 2007 00:00:00 GMT  On 9/17/2007 locomare wrote:HI,6/06 I was diagnosed was a 4 cm fiborid.8/29/07 I went to surgery for a partial hysterectomy due to the enlarged fibroid. Dr. found an 12cm sarcoma within a 18x27cm fibroid. Dr. had an OBGYBN/Oncologist join the surgery and they did a total abdominal and took some lymph nodes as well, although they were healthy. Stage 1Grade 3Tumor was negative for estrogen receptorsPositive for invasion of myometrial veinsMitoses 9-50/10CT Scan was performed and no other tumors were found.My oncologist is recommending immediate abdominal radiation treatment and chemo consisting of Doxorubicin(Adriamycin)/Ifosfomide. Has anyone received these?Everything I have read says chemo treatments don't work as a preventative measure only if it has already spread and will just damage me prematurely. Where would you go for a 2nd opinion? I am in Oregon.ANY ADVICE WOULD BE GREATLY APPRECIATED.Thanks,KC I know I am a little late in responding to your message, and you have probably already made your decision, but I thought I would still drop you a line and tell you a little bit about me.I was diagnosed with ULMS in 1993, and had adjuvant chemo of Doxorubicin(Adriamycin)/Ifosfomide like you mentioned above.  I told my doctor to "give me as much as you can, and I will deal with it."  Well, he did.  I had the maximum dose of both of these.  It was hard, but I did not have any recurrence for almost 8 years.  He told me at the start if I made it to 1 1/2 - 2 years my chances would go up a lot.  I am now in the 15th year of recovery/survival.I never gave up and have been known to disagree with a doctor or two...<grin>.  I believe in being very proactive in my own healthcare, and working closely with my doctors'.  I also thoroughly believe in surgery vs leaving tumors in and just watching them.  I have had a lot of tumors, and a lot of surgeries.  I believe in "ah, a tumor - take it out!!"  I am going to try and not "talk" too much here, so will just leave it at that.This is very rare cancer, but I am here to encourage you to fight, listen to yourself, do everything you can to survive.  I have.  It is worth it.  If you have any questions, please drop me a private note and I will be happy to respond.  I hope you are doing okay.  Take care, B  warrior1 Sat, 26 Apr 2008 00:00:00 GMT