CancerCompass message board discussion started by princess1 on 9/22/2007 http://www.cancercompass.com/message-board/message/all,16416,0.htm Fri, 05 Sep 2008 00:00:00 GMT Fri, 05 Sep 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My husband was diagnosed with appendix cancer (Goblet Cell Carcinoid) which is a rare cancer 3 years ago. After many tries with conventional therapies, we are now considering alternative medicine. Has any one with this kind of cancer have a success story to share with us? Either with alternative medicine or may be with a chemotherapy that we might not have tried yet? So far doctors have treated my husband with all the colo-rectal chemotherapy that is available which has somewhat stablized the disease that is in his peritoneum, however the disease is progressing and there are no other therapies available.We appreciate any one with any info. princess1 Sat, 22 Sep 2007 00:00:00 GMT My wife (C.U.P.-Syndrome-Stage 2, most evidence indicating cancer of the appendix) has been undergoing an alternative therapy at an oncological practice in northern Germany since early April. The doctors at the clinic where surgery was performed (appendix, fallopian tubes/ovaries, several lymph nodes, sections of the peritoneum removed) in March released my wife with the statement: "We cannot do anything for you. Take care of your personal affairs as we give you from 3-6 months..." We were left to our own devices and had to find many answers with no time to spare.My wifes´ current therapy consists of:1.) Local electrohyperthermal treatment 3 times weekly (1 hour sessions)2.) Monthly primed Dendritic Cell vaccinations (per injection)3.) Monthly injection of ND (Newcastle Disease) virus.4.) Supplemented by intake of Xeloda5.) Infusion of clinical Vitamin C+ supplements 1-2 weekly.6.) Approx. 3000mg Curcuma Longa (Tumeric) in tablet form daily7.) Practices Chilel-Qigong approx. 1 1/2 hours dailySince commencement of therapy, my wifes´ tumor marker values have diminished considerably, as has her ascites. Her energy levels are high.It may be well worth your while contacting a reknown German oncologist and biologist, Dr. Thomas Nesselhut. His tumor clinic is located in Duderstadt, Germany. As many of his patients are from the U.S. and the U.K., the clinics´ staff speak English fluently. See the following website:http://www.dendritic.info/DCTreatmentCenters.html Dr. Nesselhut and his associates have been of great help to us.Hope that this information is of help to you and your husband. My wife and I wish you the very best. Symcha Thu, 04 Oct 2007 00:00:00 GMT  On 10/4/2007 Symcha wrote:My wife (C.U.P.-Syndrome-Stage 2, most evidence indicating cancer of the appendix) has been undergoing an alternative therapy at an oncological practice in northern Germany since early April. The doctors at the clinic where surgery was performed (appendix, fallopian tubes/ovaries, several lymph nodes, sections of the peritoneum removed) in March released my wife with the statement: "We cannot do anything for you. Take care of your personal affairs as we give you from 3-6 months..." We were left to our own devices and had to find many answers with no time to spare.My wifes´ current therapy consists of:1.) Local electrohyperthermal treatment 3 times weekly (1 hour sessions)2.) Monthly primed Dendritic Cell vaccinations (per injection)3.) Monthly injection of ND (Newcastle Disease) virus.4.) Supplemented by intake of Xeloda5.) Infusion of clinical Vitamin C+ supplements 1-2 weekly.6.) Approx. 3000mg Curcuma Longa (Tumeric) in tablet form daily7.) Practices Chilel-Qigong approx. 1 1/2 hours dailySince commencement of therapy, my wifes´ tumor marker values have diminished considerably, as has her ascites. Her energy levels are high.It may be well worth your while contacting a reknown German oncologist and biologist, Dr. Thomas Nesselhut. His tumor clinic is located in Duderstadt, Germany. As many of his patients are from the U.S. and the U.K., the clinics´ staff speak English fluently. See the following website:http://www.dendritic.info/DCTreatmentCenters.html Dr. Nesselhut and his associates have been of great help to us.Hope that this information is of help to you and your husband. My wife and I wish you the very best.  princess1 Thu, 04 Oct 2007 00:00:00 GMT Thank you so much for the great info. The doctor we saw here in New York had also mentioned these various treatments, but we were not sure if we should go that route without researching first and your e-mail is very reassuring. Our best wishes and prayers to your wife and you.  princess1 Thu, 04 Oct 2007 00:00:00 GMT I am so happy to find you.  My father has Goblet Cell Carnoid and have yet to find another person that actually has the same cancer.  We too have done the conventional colon cancer treatments but aren't having much success.  I would certainly like to speak with you to share what you have done and what we have done and see if we can explore other options.  You can reach me at --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- , toll free at my office --Message edited by CancerCompass staff. For personal protection, phone number removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--  or my cell number is --Message edited by CancerCompass staff. For personal protection, phone number address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- .  We pray for you and hope to hear from you soon.Tracy G, Myrtle Beach, SC   5max3 Thu, 01 Nov 2007 00:00:00 GMT  On 11/1/2007 5max3 wrote:I am so happy to find you.  My father has Goblet Cell Carnoid and have yet to find another person that actually has the same cancer.  We too have done the conventional colon cancer treatments but aren't having much success.  I would certainly like to speak with you to share what you have done and what we have done and see if we can explore other options.  You can reach me at tgraham85@yahoo.com, toll free at my office 866-444-2717 or my cell number is 843-421-2248.  We pray for you and hope to hear from you soon.Tracy Graham, Myrtle Beach, SC  Hello Tracy,I am sorry to hear about your dad. As you know it is a very rare cancer.We have tried all colon cancer chemo and now are seeking alternative therapy. Depending on the stage of your dad's cancer, you may want to research further debulking and intraperitoneal heated chemotherapy. The pioneer of this procedure is Dr. Sugarbaker in Washington DC. Although it is a risky and long surgery, it might be an option. We have gone to an alternative medicine doctor in New York and as a matter of fact we are starting treatment with him this week. I might not be able to contact you this week (a hectic schedule) but I will surely try to either call you or e-mail you next week. The treatment with the MD in NY (Dr. Raymond Chang) consists of a cocktail of different therapies that may or maynot be approved here in USA. I will let you know how it goes!My prayers are with you. Speak to you soon!   princess1 Thu, 01 Nov 2007 00:00:00 GMT  On 11/1/2007 5max3 wrote:I am so happy to find you.  My father has Goblet Cell Carnoid and have yet to find another person that actually has the same cancer.  We too have done the conventional colon cancer treatments but aren't having much success.  I would certainly like to speak with you to share what you have done and what we have done and see if we can explore other options.  You can reach me at --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- , toll free at my office --Message edited by CancerCompass staff. For personal protection, phone number removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html--  or my cell number is --Message edited by CancerCompass staff. For personal protection, phone number address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- .  We pray for you and hope to hear from you soon.Tracy G, Myrtle Beach, SC  Hello Tracy,As you can see your e-mail and phone numbers have been deleted from your message. My husband started the alternative medicine therapy which consists of Lentinan shots which is a medicinal mushroom therapy and also Dendritic cell therapy. He has just started, so we probably wont see any results for at least a couple of months. As I told you before we are working with Dr.. Raymond Chang in New York city for these therapies. The onconlogist basically told us there is not much more he can offer us as far as conventional therapies. I hope your dad gets better results with chemo. My prayers are with you.Kathrin princess1 Mon, 19 Nov 2007 00:00:00 GMT  On 9/22/2007 princess1 wrote:My husband was diagnosed with appendix cancer (Goblet Cell Carcinoid) which is a rare cancer 3 years ago. After many tries with conventional therapies, we are now considering alternative medicine. Has any one with this kind of cancer have a success story to share with us? Either with alternative medicine or may be with a chemotherapy that we might not have tried yet? So far doctors have treated my husband with all the colo-rectal chemotherapy that is available which has somewhat stablized the disease that is in his peritoneum, however the disease is progressing and there are no other therapies available.We appreciate any one with any info.You may want to contact Dr, Raymond Chang in NYC Meridian medcial.ask him re Buphenyl. It is an HDAC inhibitor. 32543 Sat, 16 Feb 2008 00:00:00 GMT Try this website..........pmpawareness.com...........Randy Maxum2199 Sat, 16 Feb 2008 00:00:00 GMT Does Dr. Chang's New York clinic offer electrohyperthermal (hyperthermia) treatments that are performed in that related Gernman clinic ?Any idea as to approx. costs ?Any info or insight welcomeed !Many thanks...jeffrey  heysous Thu, 24 Jul 2008 00:00:00 GMT Here is some information that I hope will be helpful. http://www.meridianmedical.org/team_rc.html Shemay Thu, 24 Jul 2008 00:00:00 GMT  On 7/24/2008 heysous wrote:Does Dr. Chang's New York clinic offer electrohyperthermal (hyperthermia) treatments that are performed in that related Gernman clinic ?Any idea as to approx. costs ?Any info or insight welcomeed !Many thanks...jeffrey Hi Jeffrey,I don't know if Dr. Chang offers hyperthermia here in the USA. We did not try that. Call his office here in manhattan. I am sure if he does not do it he can refer you to someone who does. Investigate the intraperitoneal heated chemotherapy. Although we did not try that, I have heard good things about it. There are more and more places that offer it. However the one with most experience is Dr. Sugarbaker in Washington DC.Good luck with everything. princess1 Thu, 24 Jul 2008 00:00:00 GMT