CancerCompass message board discussion started by kimsjcc on 9/24/2007 http://www.cancercompass.com/message-board/message/all,16471,0.htm Thu, 21 Aug 2008 00:00:00 GMT Thu, 21 Aug 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ Just found out my mom has liver cancer at final stage.  It already spread to lungs and other part of the bodies.  She is having a lot of pain.  By researching, liver canser at this stage can be survive within 6 months.  I feel so hopeless, she is now in Vietnam in Cho Ray Hospital just went thru ER.  She is now admited to the hospital.  Can you believe they put her into a room with 2 patients in a bed.  What should I do now?  Do you thinkNexavar help to get her life longer?  And where should I get it?  How much does it cost???Please help and advise?? kimsjcc Mon, 24 Sep 2007 00:00:00 GMT Sorry to hear about your mom.  Are you with her in Vn?  Spend alot of time with her if you can.  Yes, liver cancer is very aggressive.  Nexavar is very expensive - in thousands.  I am Asian, and I understand your situation.  Best wish to your Mom.    katie1 Tue, 25 Sep 2007 00:00:00 GMT I am truly sorry about your mother's situation. My dear brother found peace yesterday after a valiant and courageous yearlong battle with primary liver cancer. He took Nexavar for about two months but the side effects were difficult and it did not halt progression of the disease. Even if it extended his life a little--and there is no way to know if it did--I do not believe he would accept any chemotherapy if he had it to do over again. The chemoembolization and evaluation for liver transplant he had in the first months following diagnosis were procedures he could live with. But he definitely would not have taken adriamycin and probably not Nexavar unless it would have been started earlier in his treatment. Nexavar may extend life but the quality of life while on the drug was not good for him. My brother's liver cancer was secondary to Hepatitis B. One of the greatest lessons I have learned is the importance of supporting education programs encouraging testing and vaccination for the virus. Peace be with you and with all those affected by this terrible disease. Athena Tue, 25 Sep 2007 00:00:00 GMT The cost of Nexavar is aproximately 4,000 to 5000 USD per month.  My brother took Nexavar for 1 month with no improvement.  He had advanced primary liver cancer, diagnosed in July.  The tumor was 11cm on the right lobe, and few smaller ones in the left lobe.  The Nexavar side effects that he had was rash on the forehead and extreme tireness.  After 1 month, he had to stop Nexavar because bilirubin rose so rapidly (bilirubin is a sign of liver failure).  I'm really sorry to hear about your mom.  I lost my brother just 3 weeks ago, exactly 2 months after he was diagnosed.  The survivor rate for primary liver is extremely low.  You may want to consider alternative treatment. Take Care, katie1 Tue, 25 Sep 2007 00:00:00 GMT  On 9/25/2007 katie1 wrote:Sorry to hear about your mom.  Are you with her in Vn?  Spend alot of time with her if you can.  Yes, liver cancer is very aggressive.  Nexavar is very expensive - in thousands.  I am Asian, and I understand your situation.  Best wish to your Mom.    Thanks for your reply.  I'm not in VN yet but I'll go next Friday.  I got a lot of adivises from everyone that it's a good time now to see her now. and don't wait until at last minute.  Thanks so much for your care and wishes. kimsjcc Wed, 26 Sep 2007 00:00:00 GMT  On 9/25/2007 katie1 wrote:The cost of Nexavar is aproximately 4,000 to 5000 USD per month.  My brother took Nexavar for 1 month with no improvement.  He had advanced primary liver cancer, diagnosed in July.  The tumor was 11cm on the right lobe, and few smaller ones in the left lobe.  The Nexavar side effects that he had was rash on the forehead and extreme tireness.  After 1 month, he had to stop Nexavar because bilirubin rose so rapidly (bilirubin is a sign of liver failure).  I'm really sorry to hear about your mom.  I lost my brother just 3 weeks ago, exactly 2 months after he was diagnosed.  The survivor rate for primary liver is extremely low.  You may want to consider alternative treatment. Take Care,Thanks for letting me know the price, it is expensive but if it could get my mom's life longer then I'd try.  I'm sorry for your loss of your brother.  Some of my brother's friend that had that and he went to see a doctor that specialty on making medicine from some kind of plants, and he used and drank it and he's fine now.  Feel really amazing, but we'll try anything that would help my mom live longer with us. kimsjcc Wed, 26 Sep 2007 00:00:00 GMT There is a Chinese herbal tea called Sunrecome that, according to my brother's oncologist, helped one of his patients with liver cancer. It is very expensive and limited information about how it works can be found by googling Sunrecome and looking at websites, some of which are in Chinese. It appears to be more extensively used in Asia and there has been some clinical research on it in China so you might be able to get better information than we were able to find in the US. Athena Thu, 27 Sep 2007 00:00:00 GMT I'm vietnamese as well.  The liver cancer that my brother in law had was so advance that the doctors give us  no option.  We tried alternative treatment (Chinese Herbal) as well since Nexavar didn't work.  But at the end, nothing really work as the disease is so advance.  I hope the alternative treatment will work on your mom.  It doens't hurt to take a chance.  katie1 Thu, 27 Sep 2007 00:00:00 GMT She passed away early this morning.  iIt is so quick, witnhin a week. Cry! cry!!!!! that all I can do at his moment.  But I'll fly back to VN tonight!.  Thanks! kimsjcc Thu, 27 Sep 2007 00:00:00 GMT I'm sorry to hear about your Mom.  I lost my Mom to Lung cancer many years ago.Right now I am care-giver and proxy for my uncle who has final stage liver cancer.  He had held up very well for many, many months.  Up until last week, he was able to go up and down stairs, heat up his food and even go out and about with me in the car.  But, within only a few days he cannot do any of that anymore.   Working with Hospice I was able to secure all the equipment (bed, commode, side table, oxygen, etc) and the 24 hour care he now needs.  My Uncle's wish was to stay at home as long as he could.  With everything we now have in place in his home, his wish will be granted.    I've been told by our Nurse that he will slip away at a fairly rapid rate now.  So, my point is that the final days come very quickly once you see the sleepiness, increased fluid retention and confusion.  Blessings to you and your family. Care Provider Tue, 05 Aug 2008 00:00:00 GMT  On 9/24/2007 kimsjcc wrote:Just found out my mom has liver cancer at final stage.  It already spread to lungs and other part of the bodies.  She is having a lot of pain.  By researching, liver canser at this stage can be survive within 6 months.  I feel so hopeless, she is now in Vietnam in Cho Ray Hospital just went thru ER.  She is now admited to the hospital.  Can you believe they put her into a room with 2 patients in a bed.  What should I do now?  Do you thinkNexavar help to get her life longer?  And where should I get it?  How much does it cost???Please help and advise??hi Im sorry your mum has liver cancer but I know this will help because other patient will have told me the same thing that carrot juice helps with liver cancer if you wish go to this web site  to find out more  http://www.cancertutor.com/Cancer/RawFood.html  Fiddlle876 wrote  First hand information......My brother had melanoma when he was 10. They gave him 6 months 28 years ago. He is a bull today. My father with colon cancer and was given 6 months 3 years ago. His doctor asked "What is your secret"!!! A close neighbor that was told if he did not get a liver transplant he would die. Now they say he was misdiagnosed. It would take volumes to say exactly what I believe helped but I'll recommend the book "beating cancer with nutrition" and carrot juice, carrot juice, carrot juice!   jcr65566 Tue, 05 Aug 2008 00:00:00 GMT