CancerCompass message board discussion started by luvtogolf on 9/25/2007 http://www.cancercompass.com/message-board/message/all,16474,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ HI thereI was diagnosed with ALL PH+ on Oct 16th 2003, Had a allogeneic stem cell transplant On march 23 2004.  I am still on some anti-rejection meds as well as a plethera of others, but the GVHD is under control, using photophoresis. So to be abit on the proactive side and after having 3 surgery's for SCC in the last year my derm decided to go the 5FU route.  I am now on day 22 and am really miserable, I started putting the efudex on 2 times daily on just the AK's and the surgery sites, but that has changed as the surrounding areas showed activity.  In that case the doc wanted me to put it there, and after a week well there was alot to cover day and night.  I am glad for the forum as I see that I am experiencing the norm.  The dryness and stinging I thought was just part of the process and my doc doesnt even want to see me till after the 6 wk process.  It is hard to believe that this is all good when it hurts so much.  He did not say to use any vaseline, aguaphor or eucerin cream, but I see from the posts that it is commonly used after a 2hr waiting period and then to clean the area prior to an additional treatment.  I also dont get much sleep since I get woken up when turning and rubbing my face (sides) or neck on the pillow.. any thoughts here?  I guess that is enough for now.. thanks luvtogolf Tue, 25 Sep 2007 00:00:00 GMT