CancerCompass message board discussion started by wordis on 9/25/2007 http://www.cancercompass.com/message-board/message/all,16479,0.htm Tue, 02 Dec 2008 00:00:00 GMT Tue, 02 Dec 2008 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ I'm just looking to talk to anyone who's had some experience with this treatment.  I'm about to start it tomorrow.  I had a mixed glioma removed from my right temporal lobe in 2001, thet couldn't get it all so I had 2 cycles of PCV chemo and radiation after surgery.  I've been fine since then, justtaking Dilantin to keep seizures at bay.  Went back to work in 2004.  Then earlier this year hd a seizure and had to have a second surgery to drain a cyst that popped up.  After that I started temodar and after 2 months there was no change. Now I'm starting CPT11 and Avastin.   anything would be helpful.  thanks wordis Tue, 25 Sep 2007 00:00:00 GMT Just an Update on my progress,  The First treatment went well.  Just had  fatigue, and some nausea the next day that was cured with zofiran.Then I went back for the second treatment on the 10th and this time I had some Diarhea the next day.  A little more nausea this time around, but zofiran really helps.  3rd treatment is on the 24th.  I'm just hoping the side effects don't become worse as the treatment continues.I'll keep you posted. wordis Fri, 12 Oct 2007 00:00:00 GMT